Page updated 1/4/12
 |
| |
 |
| |
 |
Lymphland International Lymphedema Online
We need your help spreading the word about the Lymphedema Treatment Act!
To assist you in doing so we would be happy to send you information cards to distribute to your doctor's
office, treatment center, garment fitter, support group, family and friends, church, etc. Just contact us at
info@LymphedemaTreatmentAct.org with an estimate of how many you can hand out and your mailing
address.
And I would like to alert all patients about the new National Lymphatic Disease and Lymphedema
Registry which can be accessed through www.lymphaticresearch.org. This registry is a confidential
database that contains information about individuals who carry the diagnosis of a lymphatic disease or of
lymphedema. "This comprehensive registry will serve as a repository of information that will enhance the
future ability of health care professionals to accurately identify, categorize, treat and prevent these
diseases." - taken from the Lymphatic Research Foundation website.
Please feel free to contact me with questions and I hope to hear from many of you requesting information
cards.
Heather Ferguson
info@LymphedemaTreatmentAct.org
Dear Supporters,
A heartfelt thanks to all of you who have helped to make the accomplishments of 2011 a reality!
Highlights from 2011 include:
•On June 12, 2011, HR 2499 was introduced in the House and to date has garnered 46 bipartisan
cosponsors. (To view the current list of cosponsors click here.)
•The bill gained the endorsement of the American Cancer Society, American Occupational Therapy
Association, American Physical Therapy Association, Lymphatic Research Foundation, Oncology
Nursing Society, and others. (For a complete list of endorsements click here.)
•In November, patient advocates from around the country convened in DC to visit hundreds of House
and Senate offices and to conduct a Congressional Staff Briefing to educate legislators and their staff
about lymphedema and HR 2499. (To read more about this year’s Lobby Days click here.)
Our work will continue in 2012, and one of our most important goals is to reach 100 House cosponsors!
If your Representative has not yet cosponsored (click here to check) then please write him/her
MONTHLY until they do. Use the submission form on our website and make sure to personalize the
template letter.
It's important to remember that federal legislation of this nature takes years to get passed, therefore we
must remain vigilant. While we have much to be proud of and should celebrate the progress we have
made, we must also be undaunted by the long road that still lies ahead. So on behalf of the entire
Lymphedema Advocacy Group Board, our most sincere thanks for your past, current and continued
support of the Lymphedema Treatment Act!
A very happy New Year to you and your loved ones,
Heather Ferguson
Chair, Lymphedema Advocacy Group
To assist you in doing so we would be happy to send you information cards to distribute to your doctor's
office, treatment center, garment fitter, support group, family and friends, church, etc. Just contact us at
info@LymphedemaTreatmentAct.org with an estimate of how many you can hand out and your mailing
address.
And I would like to alert all patients about the new National Lymphatic Disease and Lymphedema
Registry which can be accessed through www.lymphaticresearch.org. This registry is a confidential
database that contains information about individuals who carry the diagnosis of a lymphatic disease or of
lymphedema. "This comprehensive registry will serve as a repository of information that will enhance the
future ability of health care professionals to accurately identify, categorize, treat and prevent these
diseases." - taken from the Lymphatic Research Foundation website.
Please feel free to contact me with questions and I hope to hear from many of you requesting information
cards.
Heather Ferguson
info@LymphedemaTreatmentAct.org
Dear Supporters,
A heartfelt thanks to all of you who have helped to make the accomplishments of 2011 a reality!
Highlights from 2011 include:
•On June 12, 2011, HR 2499 was introduced in the House and to date has garnered 46 bipartisan
cosponsors. (To view the current list of cosponsors click here.)
•The bill gained the endorsement of the American Cancer Society, American Occupational Therapy
Association, American Physical Therapy Association, Lymphatic Research Foundation, Oncology
Nursing Society, and others. (For a complete list of endorsements click here.)
•In November, patient advocates from around the country convened in DC to visit hundreds of House
and Senate offices and to conduct a Congressional Staff Briefing to educate legislators and their staff
about lymphedema and HR 2499. (To read more about this year’s Lobby Days click here.)
Our work will continue in 2012, and one of our most important goals is to reach 100 House cosponsors!
If your Representative has not yet cosponsored (click here to check) then please write him/her
MONTHLY until they do. Use the submission form on our website and make sure to personalize the
template letter.
It's important to remember that federal legislation of this nature takes years to get passed, therefore we
must remain vigilant. While we have much to be proud of and should celebrate the progress we have
made, we must also be undaunted by the long road that still lies ahead. So on behalf of the entire
Lymphedema Advocacy Group Board, our most sincere thanks for your past, current and continued
support of the Lymphedema Treatment Act!
A very happy New Year to you and your loved ones,
Heather Ferguson
Chair, Lymphedema Advocacy Group
FOR INFORMATION PRIOR TO APRIL 2011 CONCERNING THE TREATMENT
ACT PLEASE SEE OUR MEDICARE AND LEGISLATION PAGE.
ACT PLEASE SEE OUR MEDICARE AND LEGISLATION PAGE.
MEDICARE LEGISLATION PAGE
PAGES 1 AND 2
PAGES 1 AND 2
