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Lymphland International Lymphedema Online
January 2, 2011 - StoneCrest offers Lymphedema management - The Daily News Journal –
The StoneCrest Medical Center Physical Medicine Department is now offering lymphedema management
provided by certified lymphedema therapists. Lymphedema can be managed, but not cured. Since
lymphedema treatment is often ongoing and frequent, StoneCrest is proud to make this treatment
conveniently accessible to the community.
Lymphedema is swelling in various parts of the body caused by a build-up of lymphatic fluid in the tissues. It
can be caused by damage to lymph nodes or vessels as a result of surgery or radiation treatments for cancer
patients. It can also be caused by other trauma, infections, or the result of rare inherited conditions.
StoneCrest’s certified lymphedema therapists are specially trained in the treatment and management of
lymphedema. They may provide patient education on proper skin care and hygiene, manual lymph drainage
(by skin moving techniques), or compression therapy.
January 4, 2011 - Pensioner without heating for 12 days tells of "worst Christmas ever" – This is Scunthorpe
–
A PENSIONER said she had the "worst Christmas ever" after she was left without heating or hot water for
12 days over the festive period.
Sheila Harvey, 68, of Willoughby Road, Scunthorpe, suffers from lymphedema (fluid retention) in her legs
and has to bathe them with hot water every day.
But she was left without central heating or hot water after her boiler broke down on December 18.
She contacted social housing landlords North Lincolnshire Homes and it took three visits before her heating
was fully restored.
She said: "It's the worst Christmas I've ever had. I can't believe they've left me this long.
"Somebody came out to sort it on December 18 because they thought it was a frozen pipe, but when they
realised it was the boiler they said they would have to send a gas man.
"At dinner on Christmas Eve, a joiner came to look at it. He said a gas man would be sent, but nobody has
been since.
"I've not had a bath for 11 days. I've had to use the kettle to have a strip wash and I've had to use two
electric heaters, which I cannot afford to use."
A spokesman for North Lincolnshire Homes said: "We are really disappointed to find that some of our
customers have had a very difficult time over this period.
"The reason that some of our tradesmen have been attending to heating problems which they were not
necessarily qualified to solve is that some repairs involved frozen condensing pipes, an operation which does
not break rules or law.
"It is true that Mrs Harvey has not had any reliable heating since December 18.
"We have tremendous sympathy for Mrs Harvey. During that time our tradesmen attended the property
twice and on the third occasion we are not able to say whether the tradesman gained access to the property,
as Mrs Harvey stayed with family over this period.
"A full repair was carried out on Thursday."
January 5, 2011 - Docs say breast cancer survivors should lift weights - Newsworks.org (blog) – By
Meggan Kole –
Research from the University of Pennsylvania school of Medicine reverses long-running advice that breast
cancer survivors should avoid lifting anything over five-pounds to prevent lymphedema -- an incurable side
effect of cancer treatment.
The study shows a slow progressive weightlifting regimen not only didn't increase lymphedema, but reduced
the risk by 35 percent in the 154 participants. These results go against typical doctor's orders.
The debilitating condition prevents women from living a normal life after cancer. It causes chronic swelling
in the arm. It's so common, some survivors are warned not to pick-up their own children because it may
bring on the disorder.
Lead author Kathryn Schmitz said the conclusions from the study are game changing. “I am at this point on a
mission to make it standard of care for breast cancer survivors to be automatically referred for evaluation of
arm and shoulder problems at the end of their breast cancer treatment,” Scgnutz said. “It is my hope that
some day breast cancer rehabilitation will be as common as cardiac rehabilitation after a heart attack," she
said.
Schmitz also said, the weightlifting should only be done with a certified fitness professional.
Marie McCrone participated in the study. McCrone said other than cancer returning, the fear of
lymphedema is huge. Developing it would be a constant reminder of the cancer. She said, “You know you
do your treatment and then they kind of send you on your way. Things have changed and it's nice to have
someone understands that we do want to survive and we do want go on and live a normal life instead of
always being a breast cancer survivor”
McCrone says she is still lymphedema-free. Her arm, where the nodes were removed is stronger.
January 6, 2011 - Start Out Your New Year By Helping With a Great Project - BlogHer (blog) – by
Melissa Ford –
BlogHer Susan Niebur of Toddler Planet was speaking with her lymphedema therapist during a session to
reduce the swelling in her arms post-mastectomy when she learned that many cancer survivors cannot afford
the compression sleeves worn to deal with the swelling brought on by lymphatic fluid.
Susan thought, "Can't afford lymphedema sleeves? Well of course that's true, isn't it, as they cost $100 and
up for each arm, and it's important to have two sets - one to wash, and one to wear. I started rolling
solutions around in my brain."
And out of adversity a great advocacy project was born. Creating a union between a foundation and a
compression sleeve company, Susan is working to bring these sleeves to cancer survivors who can't afford
the cost. And she is opening up this project to all of us -- and here is what you can do to help:
Put it on Twitter and Facebook or blog about the project.
Donate your connections, money, or time by leaving a comment on the post stating how you can help.
Connect those in need with the project so they can receive these much needed sleeves.
See, simple.
I spoke with Susan about her new project on Wednesday:
So many people don't realize the on-going side effects from cancer and surgery. What is lymphedema and
how does it affect your day-to-day world?
Three years ago, I had chemotherapy, radiation, and a double mastectomy to fight inflammatory breast
cancer. Like many of us, I assumed that after that treatment, I'd be fine. Or at least after recovery, I'd be
fine. I was surprised to learn that the act of having a mastectomy, the removal of a breast, also typically
includes the removal of one or all of the lymph nodes under that arm. Now these lymph nodes normally act
to remove waste fluid and proteins from the tissue in the arm, wrist, and hand. When the nodes are
removed, the waste fluid isn't removed. I quickly learned that every time I exercised, cooked, or went
outside in warm weather, my arm would swell, up to an inch in diameter. They call this "congestion" in the
arm, and it feels about as great as congestion in your sinuses. And I don't know about everyone, but it
makes me crabby!
Because of lymphedema, I limited myself to indoor activity. I stopped going to playgroups at the park, and I
turned down the opportunity to coach my kids in preschool soccer. In fact, I pulled my kids from soccer
entirely last summer, and we all missed it.
What is the role of lymphedema sleeves?
Compression sleeves play an important part in the treatment of lymphedema, whether it is a side effect of
treatment for breast cancer or a stand-alone disease. Sleeves are made of knit, latex, and/or silicone fabrics
that stretch as a person moves, allowing them to be worn all day, but they apply enough pressure that the
arm does not swell as quickly, allowing people to be outside for longer periods, to do strengthening
exercises, and to cook on or near a hot stove (but don't tell my husband that last part, okay?).
And the need for lymphedema sleeves remains with the person forever?
Yes. Sleeves typically cost about $100 each and have a typical lifespan of about six months. Each patient
needs two sets (and this is important) because the garments need to be washed after each wearing to
maintain the graduated compression in the fabric. Patients also need to do manual lymphedema therapy each
day and/or see a professional for reduction of the swelling, but the sleeves are an essential part of therapy,
so that the progress isn't lost the moment a patient steps outside.
The two places you're working with to bring these sleeves to people in need are the foundation Crickett's
Answer, and the company, LympheDIVAs. Can you tell people a little bit about this organization and
company?
Crickett’s Answer is a 501(c)3 nonprofit organization founded in memory of Crickett Julius. Crickett
survived breast cancer only four months after her diagnosis at 39, but her mother and cousin are dedicated
to helping other women enjoy their life post-diagnosis by providing wigs, mastectomy products,
oncology/mastectomy/ lymphedema massage, facials, and other pampering services as a way to help women
feel feminine and beautiful after losing their hair and/or breasts.
LympheDIVAs was founded by Rachel Troxell and Robin Miller, friends and breast cancer survivors who
wanted to create a more elegant and comfortable compression sleeve. Rachel continued to build the
company during her later recurrence. Even though she died two years ago, at the age of 37, her father,
mother, and brother continue to grow the company in her honor and in the hope that LympheDIVAs’
compression apparel will continue to inspire breast cancer survivors everywhere to feel as beautiful, strong,
and confident as Rachel was.
How did life change for you when you went from wearing the original sleeve to the LympheDIVA sleeve? I
think for many people, when they think about appearance and cancer treatments, they think about hair. How
do you think these compression sleeves will change the emotional lives of other cancer survivors?
From the first, I wore my sleeve and glove everywhere, but it was hard. More often than not, even well-
meaning friends and former associates looked shocked when I approached with the thick work-glove like
glove outstretched, and they thought the thick sleeve was a kind of cast. Strangers commented regularly, and
everyone and anyone would ask brusquely: “What on Earth happened to your arm?” When I dutifully
answered their questions, saying that I had had inflammatory breast cancer, had a mastectomy, and now
wear these sleeves, yes, for the rest of my life, the questioners would react strongly, and conversation would
be difficult. I didn’t like going out to meet new people anymore, and I stuck close to friends when we did. It
wasn't good for me. I love being around people, and it got harder and harder to force myself to go out,
when I knew I'd have to answer strangers' questions.
Now, I hear "Ooh, that's so pretty!" or "Girl, where did you get those tats?" as often as I do rude questions,
as the pretty designs on my LympheDIVAs sleeves prompt people to smile first, and ask questions later.
I hope that by providing lymphedema sleeves to women who need them but can't afford them, it will help
breast cancer survivors to continue to step out of the shadows and get back into life.
The announcement for this project falls during a difficult time for you. How has working on this project been
as you wait for your next oncology appointment?
When I asked Crickett's Answer and LympheDIVAs to help other women in this way, it was at a time when
I was finishing chemo for my third cancer, and I was happy to wrap up my treatment with this project,
forcing something good to come of this horrible disease and its recurrence. I had hoped to announce it on
Monday along with the news of clear scans (meaning that my cancer was still gone, and I would be in
remission again). Well, I didn't get clear scans, but I'm moving ahead on the project anyway.
Cancer takes so much from us, but it cannot take away two things: love and the power to act. Nothing the
oncologist can tell me on Thursday will change that.
Please help spread word about this very important project and help connect those in need with this
incredible gift of tools that can aid in life with cancer.
January 6, 2011 - Seroma After Breast Cancer Surgery Triples Lymphedema Risk - Internal Medicine
News Digital Network – BY Bruce Jancin –
SAN ANTONIO – Women who form a seroma following breast cancer surgery are at threefold increased
risk of developing lymphedema, a case-control study has shown.
Of 135 breast cancer survivors (26%) participating in the study, 35 developed postsurgical symptomatic
seromas requiring needle aspiration. The seromas were located in the axilla, upper chest, and breast.
Of the 35 women with a seroma, 33 had a greater than 200-mL increase in arm volume. Based on the
International Criteria for Lymphedema Diagnosis, 26 of the 35 women with a seroma had severe
lymphedema, 6 had moderate lymphedema, and 3 had mild lymphedema symptoms, Mei R. Fu, Ph.D.,
reported at the annual San Antonio Breast Cancer Symposium.
Patients with a higher body mass index were significantly more likely to form a seroma; however, age, type
of surgery performed, axillary lymph node status, and number of nodes removed proved unrelated to the
occurrence of a seroma, according to Dr. Fu of the New York University College of Nursing.
Lymphedema is caused by accumulation of lymphatic fluid in interstitial spaces due to injury to the lymphatic
system as a consequence of breast cancer therapy. Patients dread this common, distressing, long-term, and
indeed often lifelong complication, she said.
Lymphedema is a syndrome with multiple symptoms. In this study, seroma formation – that is, excessive
build-up of serous fluid – was associated with a markedly increased likelihood of the lymphedema-related
symptoms of arm swelling, heaviness, numbness, stiffness, firmness, tenderness, and redness, as well as
increased arm temperature. Patients with a seroma had a greater number of lymphedema-related symptoms
than did women who developed lymphedema without a seroma.
A seroma is believed to form in response to surgical trauma and leakage of inflammatory exudates in the
acute phase of wound healing. The excessive build-up of serous fluid leads to delayed wound healing, with
tissue inflammation followed by fibrosis and necrosis.
Current standard management of a symptomatic seroma consists of needle aspiration, which may need to be
done repeatedly. The clinical implication of this study is that aspiration of serous fluid isn’t sufficient to
prevent lymphedema, Dr. Fu said. Further research is warranted on a novel means of preventing
symptomatic seroma formation as a means of avoiding the development of lymphedema. Possibilities include
the use of ultrasound for early detection and drainage of subclinical seromas, as well as potent anti-
inflammatory therapy.
Her study was funded by the Avon Foundation and grants from other nonprofit organizations. She said she
had no relevant financial disclosures.
January 7, 2011 - Gottfried Medical, Inc. celebrates its anniversary in its new facility - Healthcare Digital
(press release) - BY: Nargis Namazi –
Medical device manufacturer Gottfried Medical talks about its stint in the healthcare industry on its
anniversary
For Gottfried Medical, Inc., the American Dream is alive and well. This second generation, family-owned
and operated business settles in to their new facility, doubling their size. In 2011 they celebrate 30 years in
business in Toledo, Ohio, the city of its birth.
Gottfried Medical manufactures medical devices. They specialize in the engineering and manufacturing of
made-to-measure compression garments, including: stockings and sleeves. The majority of their products aid
in controlling numerous vascular conditions and lymphedema. They also manufacture compression garments
specially engineered to suppress and control hypertrophic scarring, resulting (most often) from serious burn
injury.
Their new facility is almost 12,000 square feet, nearly double the previous.
What amenities, or improvements, does the new location provide, that previous did not?
“We absolutely love our drop docks, as well as the additional warehouse capacity and a spacious parking
lot, all notably absent at our previous location.”
What prompted the re-location and was it anticipated?
“Based upon our historical growth and projections, we anticipated needing either a newer, larger facility or
an extensive expansion of our (then) current one within three years. Previous experience and the state of the
Real Estate market suggested we begin our search when we did.”
“The building we ultimately purchased was (curiously enough) one of the first ones we considered. Six
months later and after $75,000 in renovations and upgrades, it was ready for Gottfried Medical to occupy.
From our initial search to the move-in, everything came together much faster than we had experienced
previously.”
“Much of our good fortune is a result of the wonderful companies that helped make it all happen. The entire
project was financed by: Signature Bank N.A. Our general contractor was: JMS Real Estate Services. Both
companies are (like us) also Toledo-based and worked very closely with us.”
“Our 30 year success story is due (in large part) to our customer service. Even today, every call Gottfried
Medical receives is answered by a person. No voicemail, no buttons to push. In our new facility, we
invested in state-of-the-art fiber optics for even more efficient communication both internally and with our
customers.”
“It’s not just about getting bigger,” Brent continued, “As we grow, we are constantly evaluating our methods
and workflow. Our new facility provides the added space we need to accommodate the staff and equipment
necessary to meet the increased demand. By design, the facility has also allowed us to streamline some of
our operations, thereby increasing our efficiency, so that we may continue to provide the delivery service our
customers have come to expect.”
Why Toledo? What keeps your business from moving offshore?
“Toledo,” said Brent, “is not only my home and birthplace; it is the birthplace of the industry Gottfried
Medical serves. Conrad Jobst, who originated and developed the concepts for gradient pressure stockings,
lived in Toledo and worked for Owens-Illinois, then a Toledo-based company. Jobst (Conrad Jobst’s
namesake) was also originally a Toledo-based company. My father, Max Gottfried, the founder of Gottfried
Medical, began his career in this field working for Jobst.”
“Manufacturing offshore is not practical for our business model. Virtually everything we produce is one of a
kind; therefore, economies of scale do not apply. Our products are time-sensitive. For the reason of efficacy
alone, from the time an order is placed, engineered, manufactured and finally delivered, is counted in days.
Although it might be possible to save a few pennies (in my opinion) the loss in time and quality control could
never justify the savings of moving manufacturing offshore.”
You mentioned Max Gottfried, your father, and the company’s founder. How did it all start?
“Max Gottfried believed a lower cost and longer life made-to-measure compression garment could be made
without reducing its quality or compromising its efficacy. With three employees in 1,000 square feet of
space, he proved he was right and so in 1981 Gottfried Medical, Inc. was born. His dream lives-on in our
new facility, now employing 30 people.”
How will e-business, technology and virtual world affect Gottfried Medical?
“To look into our future, we must look at our past. Our first fax machine was very expensive. At the time we
wondered if its cost would ever be justified, yet we made the investment to better serve our customers.
Before there were PC’s, we had an internal computer network that could multi-task. This provided us a
means for efficient and accurate recordkeeping, helping to keep costs down.”
“We were also early entrants into Internet and are proud of our website: www.GottfriedMedical.com, going
through several major upgrades over the years. We continue to work on improvements and online content.
Soon, we hope to be offering online ordering.”
“Reflecting on how the company technology has changed in the last 30 years makes the future look very
exciting. 3D imaging and ultrasonic sewing are just two of many areas that hold promise. It’s simple: at
Gottfried Medical, we embrace technology we feel will improve our products and service.”
How do you envision the move to the new location will affect your role at Gottfried Medical and why?
(Brent Gottfried, President) “The move has taken some pressure off me. We now have elbow room and the
space to grow. That’s what we have done every year of our existence. We also now have the space to
evaluate some of the new technologies we are interested in. Personally, I am gratified by the level at which
the employees are enjoying our new home.”
(Beth Joy, General Manager) “By moving to the new building and including the entire staff throughout the
process, the sense of ownership is heightened for each employee. This sense of ownership creates more of a
team atmosphere. We all love our new surroundings and want to continue to grow the business and provide
the service we are known for. The move has affected my role as General Manager by the positive attitude of
the employees and their willingness to do what it takes.”
(Brandon Scanes, Sales Manager) “A move such as this, by default, puts added pressure on all those
involved. As an example, my role expanded and shifted to one of logistics – organizing the transfer of
product and inventory to the new location. Prior to and throughout the move itself, new situations required
quick and decisive decisions. As we settle-in to our new offices although things are returning to ‘normal,’ as
a result of that move (going forward) I now possess new skills to call upon that will help me deal with my
workday.”
(Darla Hredzak, National Sales Representative) “What the move represents has a huge impact on my
motivation. To be a part of a company that grows every year is an honor. It stands upon the promise of its
President, Brent Gottfried: ‘do one thing and do it well.’ As their national sales rep, that means providing our
customers the highest quality products to aid in their patients’ journey to either recovery or maintenance of
their unique health concerns.”
As Gottfried Medical turns the corner on thirty years in business, their future remains bright, as does their
commitment to the Toledo-area as their home and to their promise to remain a company sought-out by
employee and customer alike.
January 7, 2011 - Tahoe Forest Health System's 'Exercise for Energy' for current and recovering cancer
patients - Sierra Sun –
TAHOE/TRUCKEE, Calif. —This free six-week class, Exercise for Energy, is a supportive care program
for current and recovering cancer patients. It offers patients guidance, support, and useful tools to return to
and maintain health and wellness. The class will incorporate strengthening, stretching, breathing, balance,
cardio, yoga and wellness education. Education topics may include foods that fight cancer, cooking
demonstration, lymphedema prevention, stress, Feldenkrais and exercise strategies. All classes are
supportive, medically managed and taught by health professionals, giving you the tools you need in a
supervised environment.
Classes are offered in Truckee and Incline Village. New sessions begin in Incline Village Jan. 12 and April
13. Class meets Wednesdays and Fridays, 12:30-1:30 p.m., with Wednesday Wellness Educational Topics
1:30-2:30 p.m. at IVCH Physical Therapy and Medical Fitness, 333 Village Blvd. Suite 201, on the corner
of Village and Alder, one block from Incline Village Community Hospital. Truckee sessions begin March 1
and May 31.
Prescreening required. For more information or to sign up call 582-7415 or e-mail mlarson@tfhd.com. Visit
www.tfhd.com.
January 9, 2011 - Weight lifting does not appear to increase risk of arm swelling, discomfort for breast
cancer survivors - The Virtual Medical Centre –
A slowly progressive weight lifting program for breast cancer survivors did not increase their risk of
lymphedema (arm swelling and discomfort), according to a study in the December 22/29 issue of JAMA.
The study is being released early online to coincide with its presentation at the San Antonio Breast Cancer
Symposium.
Lymphedema is a frequent complication among breast cancer survivors and ranks high among their
concerns, as it may impair arm function and quality of life. "Breast cancer survivors at risk for lymphedema
alter activity, limit, activity, or both from fear and uncertainty about their personal risk level, and upon
guidance advising them to avoid lifting children, heavy bags, or other objects with the at-risk arm. Such
guidance is often interpreted in a manner that de-conditions the arm, increasing the potential for injury,
overuse, and, ironically, lymphedema onset," according to background information in the article. The authors
add that adherence to these precautions may limit physical recovery after breast cancer.
Lymphedema often occurs after lymph vessels or lymph nodes in the axilla (armpit) are removed by surgery
or damaged by radiation, impairing the normal drainage of lymphatic fluid.
Kathryn H. Schmitz, PhD, MPH, of the University of Pennsylvania School of Medicine and Abramson
Cancer Center, Philadelphia, and colleagues examined the incidence of lymphedema after a one year weight
lifting intervention among survivors at risk for breast cancer related lymphedema (BCRL). The randomised
controlled trial included 154 female breast cancer survivors who had been diagnosed one to five years prior
to entry in the study and had at least twio lymph nodes removed and were without clinical signs of BCRL at
study entry. Participants (ages 36 to 75 at the beginning of the study) were randomised to either the weight
lifting intervention, which included a gym membership and thirteen weeks of supervised instruction, with the
remaining nine months unsupervised, or no exercise (control group). Data collection ended in August 2008.
A total of 134 participants completed follow-up measures at one year.
The researchers found that the proportion of women who experienced new BCRL onset was 11% (eight
out of 72) in the weight lifting intervention group and 17% (thirteen out of 75) in the control group. "Among
women with five or more lymph nodes removed, the proportion who experienced incident BCRL onset was
7% (three out of 45) in the weight lifting intervention group and 22% (eleven otu of 49) in the control group.
Clinician-defined BCRL onset occurred in one woman in the weight lifting intervention group and three
women in the control group (1.5% vs 4.4%)."
"The majority of breast cancer survivors do not have lymphedema; however, they alter the use of their arms
and upper body activities out of fear of developing lymphedema. The findings from our trial should help
clarify clinical advice to patients who have completed breast cancer treatment regarding the safety of
resuming or beginning a weight lifting program," the authors write.
The researchers note that the primary goal of this study was to test safety of weight lifting, not superiority,
and that additional research is needed before concluding that weight lifting prevents lymphedema. "However,
even with the finding of no harm, our results combined with previously published results for women with
breast cancer related lymphedema suggest that the many health benefits of weight lifting should now become
available to all breast cancer survivors."
January 11, 2011 - Manual Drainage Fails to Prevent Lymphedema in Breast Cancer Patients - Internal
Medicine News Digital Network – by Kerri Wachter –
SAN ANTONIO – Adding manual lymph drainage to exercise therapy did not prevent lymphedema in a
study of 160 breast cancer patients who underwent axillary lymph node dissection.
Researchers reported that the incidence of lymphedema following axillary lymph node dissection (ALND)
was similar whether or not women had manual drainage in a randomized trial presented at the annual San
Antonio Breast Cancer Symposium.
[Check out our comprehensive coverage of the San Antonio Breast Cancer Symposium.]
Based on these findings and previous data, "breast cancer patients have to perform exercise therapy
immediately started after the axillary dissection to prevent arm lymphedema," said Nele Devoogdt, a
physical therapist at University Hospitals Leuven in Belgium.
Manual lymph drainage involves stretching/massaging the skin around lymph nodes to improve resorption by
the lymph capillaries, increase lymph transport (by stimulating lymph collectors), and to create collateral
pathways of lymph transport, Ms. Devoogdt said. Although manual lymph drainage is used in several
countries, including Belgium, to prevent lymphedema, the preventive effect has not been previously
demonstrated in a peer-reviewed randomized trial.
For this study, the researchers recruited 160 breast cancer patients, who underwent ALND in one arm.
Both arms were assessed prior to the procedure to assess the natural difference in size.
A total of 79 patients were randomized to exercise therapy and manual lymph drainage, while 81 patients
had only exercise therapy. Both groups were given lifestyle guidelines for minimizing lymphedema.
Patients in both groups attended 1-2 sessions per week (29 exercise therapy sessions on average). In the
treatment group, manual lymph drainage was performed 1-3 times per week (34 sessions on average).
At 1 month post-ALND, patients started treatment and an arm assessment was performed. Arm
assessments followed at 3 months, 6 months (at which point treatment was stopped), and 12 months.
The primary outcome measure was the incidence of arm lymphedema – defined as a circumference increase
of at least 2 cm at two successive measurements. The researchers found no significant difference in
lymphedema incidence between the two groups at any time point. At 3 months, the incidence was 7% in the
drainage group, compared with 5% in the exercise-only group; at 6 months, the incidence was 12% and
10%, respectively; and at 12 months, it was 23% and 18%.
Secondary outcomes also showed no significant differences in time to lymphedema, increase in arm volume,
mental and physical health-related quality of life, and functional problems related to arm lymphedema.
The investigators reported that they have no relevant financial relationships.
January 11, 2011 - Support Groups, updated Jan. 11 – TCPalm –
DATED MEETINGS
Lymphedema Support Group: Focus on encouragement, education, socialization. Advanced Motion
Therapeutic, 2965 20th St., Vero Beach, 6:30 p.m., Jan. 13, Feb. 10, Mar. 10. RSVP: 772-567-8585;
AMTvero.com.
Lymphedema: St. Lucie Medical Center, 1800 S.E. Tiffany Ave., Port St. Lucie, 5:30 p.m., Jan. 28, Feb.
24, March 24, April 28, May 26, June 23, July 28, Aug. 25, Sept. 22, Oct. 27. 772-335-4000;
StLucieMed.com
January 11, 2011 - HOUSE CALL: Lymphedema —yes, it's treatable - San Angelo Standard Times –
SAN ANGELO, Texas — Lymphedema is the result of an abnormal accumulation of protein-enriched fluid
that causes swelling of a body part, usually the arm or leg. Approximately 2.5 million Americans suffer from
lymphedema, and many of them go undiagnosed or untreated.
If left untreated, lymphedema can potentially cause repeated soft tissue infections, inability to use the arm or
leg, and could possibly lead to amputation of the arm or leg.
Lymphedema often develops after cancer-related treatments, surgery, obesity, injury, rheumatoid arthritis, or
chronic venous insufficiency. Approximately 30 percent of women who develop breast cancer and undergo
radiation will develop lymphedema, and approximately 74 percent of men who develop prostate cancer will
develop it. With age, a person who undergoes total knee or hip replacement is at higher risk of developing
lymphedema. Whereas in the past a person may have been told there was no treatment available, now
through lymphedema therapy, there is hope for alleviating this debilitating condition.
Untreated lymphedema could progress through the following stages:
* Stage I is identified when lymphedema fluctuates throughout the day. Patients often express, “My legs are
only swollen at the end of the day.” Or, “The swelling comes and goes, but I’m fine.” Symptoms include
feeling of tightness, achy discomfort, heavy feeling of the arm or leg, and pitting. If left untreated, it can
progress to Stage II.
* Stage II is the state when the soft tissue turns hard and it becomes difficult to press a finger into the
affected skin, skin color begins to change, repeated infections (cellulitis) occur, and leakage of fluid through
the skin (weeping edema) appears.
* State III, termed elephantiasis, may be more difficult to treat. However, through lymphedema therapy, the
person may regain the quality of life they may have lost.
Lymphedema therapy, a specialized therapy also known as Complete Decongestive Therapy, consists of:
(1) Manual lymph drainage, a gentle specialized massaging technique used to reroute lymph flow around
the blocked areas into more centrally located healthy lymph vessels that drain into the venous system;
(2) Compression therapy that applies short stretch bandaging to the affected body part to maintain the
progress made through manual lymph drainage, prevent back flow of the lymph fluid, and improve the
muscle pumping action that assists proper lymph flow;
(3) Lymphedema exercises;
(4) Skin care and infection prevention education;
(5) Compression garment measurement and fitting, which will help the person maintain the progress made
through lymphedema therapy.
Cost of lymphedema therapy is covered by Medicare, Medicaid, and most private insurances. A doctor’s
referral is required to receive therapy.
At San Angelo Community Medical Center, a medical admissions specialist is available at (325) 947-6989
to answer questions regarding insurance coverage to receive this therapy. For more information or to
schedule an appointment, please call (325) 949-5900.
Selina Elder, is an Occupational Therapist, Certified Lymphedema Therapist and Certified Custom Garment
Fitter who practices at San Angelo Community Outpatient Therapy.
TINA: SORRY THIS ONE BELOW SAYS IT IS A PAID ARTICLE WHEN I CLICKED ON THE
LINK
January 12, 2011 - Free programs set for cancer patients - South Bend Tribune –
Lymphedema: Isn't it Swell? will be at 4 pm Jan. 20 at RiverBend Wellness Center. Learn the serious
symptoms of lymphedema and when to seek help. ...
January 12, 2011 - Reaching Out to Breast Cancer Patients - Care2.com (blog) – by: Ann Bibby –
Due to the arbitrary way that Medicare and private insurance companies decide what is medically necessary
and what is optional, breast cancer patients are often left paying for lymphedema sleeves – which control
swelling after a mastectomy – themselves. Those who cannot afford them go without and suffer.
It Takes a Villager
Susan Niebur, astrophysicist, mother, currently undergoing treatments for a fourth reoccurence of the
disease, wants to ensure that all breast cancer patients have access to lymphedema sleeves, gauntlets, and/or
gloves, and she's taken to the blogging community via her own site, Toddler Planet, to ask for help raising
money to make this happen.
Using Social Media to Promote Awareness
To generate donations to organizations devoted to providing lymphedema sleeves Niebur wrote the
following in a post to her readers,
Today, I am pleased to announce a NEW opportunity for breast cancer survivors who have had a
mastectomy and/or axillary dissection of the lymph nodes due to breast cancer and have swelling of one or
both arms but cannot afford the $200-$500+ cost for two sets of the compression sleeves and gauntlets that
survivors with lymphedema must wear every day to keep the swelling in check.
Although lymphedema sleeves are medically necessary, they are not covered by Medicare OR most
insurance plans under current law, and thousands of survivors go without the sleeves, needlessly suffering
congestion, swelling, and pain that interferes with their normal activities.
Two Organizations Making a Difference
Cricket’s Answer, a non-profit organization founded in memory of Cricket Julius has teamed up with
LymphaDIVAs to make sure that all breast cancer survivors who need sleeves, gauntlets and gloves, will
have them. People can donate through Cricket's Answer's website.
Niebur asked that her readers promote the cause via their blogs or other social media accounts and to email
the appeal to friends. She also urged readers to contact Congress in support of the Lymphedema Treatment
Act bill designed to change the rules that make it impossible for some patients to get the treatment they need.
Online communities increasingly play important roles in social change and raising awareness, but it's thanks
to bloggers like Susan Niebur that these things happen, and it’s proof that one person really can make a
difference.
January 13, 2011 – TINA THIS ONE WAS A ONE TIME MEETING THAT HAS PASSED, SORRY:
January 15, 2011 - Love 101; lymphedema in Japan; CM of the week: Z-kai - The Japan Times –
January 16, 2011 - Weightlifting Reduces Risk of Lymphedema Post Breast-Cancer Treatment - Massage
Magazine –
Lymphedema management is a specialty that some massage therapists train in, and many of their clients are
breast-cancer survivors who develop lymphedema after having lymph nodes removed.
New research shows that weightlifting slashes lymphedema risk after breast cancer treatment.
Researchers from the University of Pennsylvania School of Medicine say that slowly progressive weight-
training program reduces chances of developing lymphedema by as much as 70 percent
"Lymphedema is a dreaded, common side effect of breast cancer treatment. Women worry that they will
recover from their cancer only to be plagued by this condition that often limits their ability to work, maintain
their homes, and care for their children or grandchildren," said lead author Kathryn Schmitz, PhD, MPH, an
associate professor of Epidemiology and Biostatistics and a member of Penn's Abramson Cancer Center.
"Our study shows that they now have a weapon to reduce their risk of developing lymphedema,
The research results were presented in December at the San Antonio Breast Cancer Symposium and
published online concurrently in the Journal of the American Medical Association.
January 19, 2011 - Indian River Health Listings Updated XX - Abilene Reporter-News –
January 26, 2011 - North American Seminars, Inc. Introduces a New Physical Therapy Continuing
Education Course, Advanced Management of Breast Cancer Rehabilitation - PR.com –
North American Seminars, Inc. introduces a two day physical therapy continuing education course that is
designed to expand and advance current clinical knowledge by providing more in depth clinical information
needed to problem solve through a complex variety of breast cancer diagnoses.
Franklin, TN, January 26, 2011 --(PR.com)-- This two-day advanced seminar is designed to expand and
advance current clinical knowledge by providing more in depth clinical information needed to problem solve
through a complex variety of breast cancer diagnoses. Complex diagnoses include patients with aggressive
forms of breast cancer, patients with metastatic breast cancer such as bone and lung metastases, patients
with associated co-morbidities such as auto-immune diseases, diabetes, CHF, patients with differential
diagnoses such as superior vena cava syndrome, sarcomas, etc., and patients with treatment complications
such as seromas, hematomas, infections, open wounds, axillary web syndrome, and mondors syndrome.
Centered on systems management, a series of advanced, synchronized manual therapy treatment techniques
are taught in the lab sessions. These advanced clinical treatment techniques will allow experienced therapists
to build on their current expertise by being inclusive of all the major systems involved in the medical
treatment of breast cancer patients, namely the musculo-skeletal system, the nervous system, the vascular
system, the lymphatic system, and the endocrine system. Careful study of how each of these systems are
affected in the breast cancer population will enable clinicians to apply advanced treatment concepts and
integrative skills to effectively and successfully treat a multitude of complex patient scenarios that go beyond
the routine post surgery and post radiation management of this population. Additionally, the integrated skills
taught in the seminar will add leverage to current treatment protocols, optimize the functioning of patients,
and bring about improved sustainable results. Upon completion of the course, clinicians will be able to
design specific exercise protocols and use integrated systems management techniques in the advanced
treatment of breast cancer patients with surgical complications, severe side effects of radiation, side effects
of chemotherapy, and side effects of targeted hormone therapies. The information presented in the course
will enhance therapists' ability to develop a continuum of care, lead a multi-disciplined approach, and
effectively market new concepts in the management of patients with breast cancer to the medical community.
The course presents evidence-based material both in the medical management of patients with breast cancer
and in the rehabilitative therapy management of patients with breast cancer. The information obtained in this
course can be immediately applied in the clinic to achieve sustainable, functional outcomes in patients with
breast cancer.
The objectives of this physical therapy continuing education course are:
- Understand the anatomy of breast cancer cells, their functional capabilities, and how modern medicine is
responding in its design to treat breast cancer effectively.
- Expand clinical knowledge about differential diagnoses, treatment side effects, and physical sequelea of
chemotherapy, radiation therapy, and targeted hormone therapies.
- Advance understanding of the biology and physiology of the acute trauma that occurs to the lymphatic
system after surgery and radiation therapy, and how this affects normal healing processes in the body.
- Understand the difference between treating lymphedema as a condition, and the advanced concepts of
treating acute trauma of the lymphatic system as it relates to other body systems in the healing processes of
surgery, radiation, and chemotherapy.
- Advance and integrate manual lymphatic drainage skills with orthopedic manual therapy skills to include
system management of the musculo-skeletal system, the nervous system, the vascular system, the lymphatic
system, and the endocrine system during and post breast cancer treatment.
- Understand complex co-morbidities and adverse treatment complications of breast cancer, how they affect
the healing capacity of patients, and how treatment can be structured to minimize their effect.
- Identify clearly the specific clinical goals of specialized manual therapy skills and targeted exercise
protocols for patients undergoing advanced forms of breast surgery, new chemotherapy treatments, and/or
targeted radiation therapy so as to achieve optimal function, as well as sustainable treatment results.
- Have increased knowledge about advances in breast cancer diagnoses, advances in breast cancer
management, and advances in breast cancer research
- Gain and advance leadership skills in the continuum of care and multi-disciplined approach to the
management of patients with breast cancer.
This course will be presented at the following locations:
Jan 29, 2011 - Jan 30, 11: Multicare Medical Center, Tacoma, WA
Feb 12, 2011 - Feb 13, 11: Summerlin Hospital, Las Vegas, NV
Feb 26, 2011 - Feb 27, 11: Methodist Dallas Medical Center, Dallas, TX
Mar 26, 2011 - Mar 27, 11: San Ramon Regional Medical Center, San Ramon, CA
Aug 20, 2011 - Aug 21, 11: Legacy Emanuel Hospital, Portland, OR
Aug 27, 2011 - Aug 28, 11: St. Anthony's Medical Center, St. Louis, MO
Oct 01, 2011 - Oct 02, 11: Elliott Hospital, Manchester, NH
Nov 05, 2011 - Nov 06, 11: St. Agnes, Hospital Baltimore, MD
For more information visit www.healthclick.com
January 29, 2011 - Hands helped her keep home - Winnipeg Free Press – By: Kevin Rollason -
Bills piled up during battle with breast cancer
Martha Adair was already battling for her life against breast cancer -- the last thing she wanted was to win
the battle but lose her home with bills mounting up.
Thankfully, there were helping hands to come to her aid.
Actually, it was Helping Hands for Manitobans with Breast Cancer Inc.
The Landmark-area resident credits the six-year-old charity with helping her and her husband keep on their
financial feet during her year-and-a-half battle with breast cancer starting in December 2007.
"I couldn't work," Adair said.
"We cleared out our savings. I was paying an average of $2,000 for drugs not covered (by pharmacare) per
month. These were the darkest days when the bills were hurting us.
"We might have lost our house if Helping Hands didn't help us."
Helping Hands helps women and men who are facing financial problems during their breast cancer treatment
and recovery.
Candace Propp, the organization's president, said it tries to step in to help individuals who need help paying
for things not covered by insurance, social assistance or non-insured health coverage.
"People are modest about what they're asking for," Propp said.
"They're asking for basic things so they don't have to use food dollars. Fighting cancer is really hard on single
women and single mothers... we've heard people have lost their homes while fighting breast cancer."
There are several ways Helping Hands can help people, including uninsured medical or treatment costs,
transportation to and from appointments, hospital or doctor's office parking, a wig (limit of $250),
lymphedema garments, and support care services.
Helping Hands will not help people with the cost of rent, loans, utilities or food or with optional items like
scarves or prosthesis bathing suits.
Anyone who needs help has to be referred by a medical counsellor or licensed social worker.
Because the organization is run totally by volunteers, all of the money raised goes to help people.
Starting in 2005, Helping Hands helped one person with a few hundred dollars; the year after it helped three
people with $2,700, then four people with $9,000 the next year.
By 2010, the organization was helping 20 people with more than $20,000 in total.
Sharon Phillips, owner of the Bra Bar and the organization's current vice-president, came up with the idea
for the charity and founded it with three other women, including Propp.
"We saw the need at my business," Phillips said. "We saw so many women going through breast cancer and
couldn't afford it. We all think we have medical coverage, but there is a lot that's not covered by the system."
Phillips said what surprises her the most is how the need for the charity grows each year.
"We kept thinking someday the system will catch up, but it hasn't," she said. "And more and more people
are finding out about us."
Phillips said the organization holds an annual Dance for Dollars, but it is hoping somewhere out there is a
company or group of individuals that can raise funds for them by running an event.
Propp said each year about 800 Manitobans are diagnosed with breast cancer and 80 to 100 of those end
up on social assistance.
"We're helping about 20 people," she said.
"We're still not reaching everybody that we need to... and we'd like to open it up for all cancers, but we
don't have the money now."
The first woman Helping Hands assisted, 45-year-old Myla (who asked that her last name not be used), lost
her employment during her breast cancer fight, which included several rounds of chemotherapy and radiation.
Myla, a single mother with two children, said the organization helped her buy a special compression sleeve
to wrap around her arm to reduce the swelling from the lymphedema she has as a result of her breast cancer
fight.
"They cost about $200 and they helped me pay for it," she said, adding they also helped her with some bills.
"It was pretty tough at the time -- I even had to go to the food bank.
"It's phenomenal what Helping Hands does for people like us."
Adair, who is still dealing with some of the effects of her breast cancer battle, said when it is behind her she
wants to return the favour and volunteer for Helping Hands.
"I really want to contribute to them," she said.
"My hat is off for Helping Hands. When I got the first cheque from them I thought I was dreaming.
"They are kind and they came through for us.
"I know how much their help is appreciated."
January 31, 2011 - Healthy Living: Do you have lymphedema? - Bristol Press – By Rekha Singh, M.D. –
If you’ve had cancer treatment that involved removal of lymph nodes or vessels and now have swelling in an
arm or leg, ask your doctor to check for lymphedema.
Lymphedema is a common condition affecting the body’s lymphatic system.
Part of the immune system, the lymphatic system consists of lymph glands, or “nodes”, and a network of
lymphatic vessels (similar to veins and arteries) throughout the body. The vessels carry lymph, a fluid
containing protein, white blood cells and other substances.
Lymphedema occurs when lymph vessels in an area stop pumping and lymph accumulates in body tissues.
Swelling results, usually in an arm or leg, but sometimes in the chest, face, neck or genitals.
There are two types of lymphedema:
n Primary lymphedema results when a person is born without lymph vessels ornodes.
n Secondary lymphedema occurs when lymphatic vessels or nodes are damaged or removed, most often
after surgery and radiation therapy to treat breast, prostate or pelvic area cancers, lymphoma or melanoma.
Untreated, lymphedema can lead to further swelling, skin changes and infection, and can be life-threatening.
While the condition can’t be cured, lymphedema therapy can significantly reduce swelling, discomfort and
risk of infection.
One commonly used treatment is called Complete Decongestive Therapy, which includes a technique called
manual lymph drainage (MLD). During MLD, specially trained lymphedema therapists use massage-like
techniques to re-route lymph around damaged nodes or vessels.
Compression therapy is used between MLD treatments. Patients wear special bandages or garments on the
affected area to prevent re-accumulation of lymph fluid.
Different wrapping materials and techniques are used depending on each patient’s ncondition. When patients
reach a maintenance phase of treatment, they learn how to use mnbandages and compression garments
themselves and perform self-MLD.
They also learn special exercises for the affected area and deep-abdominal breathing techniques to increase
lymph circulation. Because lymphedema patients are more prone to infection, treatment also includes
extensive education on meticulous skin and nail care.
Rekha Singh, M.D., is a general surgeon at The Hospital of Central Connecticut. For information on
lymphedema therapy at the hospital, call (860) 224-5121
The StoneCrest Medical Center Physical Medicine Department is now offering lymphedema management
provided by certified lymphedema therapists. Lymphedema can be managed, but not cured. Since
lymphedema treatment is often ongoing and frequent, StoneCrest is proud to make this treatment
conveniently accessible to the community.
Lymphedema is swelling in various parts of the body caused by a build-up of lymphatic fluid in the tissues. It
can be caused by damage to lymph nodes or vessels as a result of surgery or radiation treatments for cancer
patients. It can also be caused by other trauma, infections, or the result of rare inherited conditions.
StoneCrest’s certified lymphedema therapists are specially trained in the treatment and management of
lymphedema. They may provide patient education on proper skin care and hygiene, manual lymph drainage
(by skin moving techniques), or compression therapy.
January 4, 2011 - Pensioner without heating for 12 days tells of "worst Christmas ever" – This is Scunthorpe
–
A PENSIONER said she had the "worst Christmas ever" after she was left without heating or hot water for
12 days over the festive period.
Sheila Harvey, 68, of Willoughby Road, Scunthorpe, suffers from lymphedema (fluid retention) in her legs
and has to bathe them with hot water every day.
But she was left without central heating or hot water after her boiler broke down on December 18.
She contacted social housing landlords North Lincolnshire Homes and it took three visits before her heating
was fully restored.
She said: "It's the worst Christmas I've ever had. I can't believe they've left me this long.
"Somebody came out to sort it on December 18 because they thought it was a frozen pipe, but when they
realised it was the boiler they said they would have to send a gas man.
"At dinner on Christmas Eve, a joiner came to look at it. He said a gas man would be sent, but nobody has
been since.
"I've not had a bath for 11 days. I've had to use the kettle to have a strip wash and I've had to use two
electric heaters, which I cannot afford to use."
A spokesman for North Lincolnshire Homes said: "We are really disappointed to find that some of our
customers have had a very difficult time over this period.
"The reason that some of our tradesmen have been attending to heating problems which they were not
necessarily qualified to solve is that some repairs involved frozen condensing pipes, an operation which does
not break rules or law.
"It is true that Mrs Harvey has not had any reliable heating since December 18.
"We have tremendous sympathy for Mrs Harvey. During that time our tradesmen attended the property
twice and on the third occasion we are not able to say whether the tradesman gained access to the property,
as Mrs Harvey stayed with family over this period.
"A full repair was carried out on Thursday."
January 5, 2011 - Docs say breast cancer survivors should lift weights - Newsworks.org (blog) – By
Meggan Kole –
Research from the University of Pennsylvania school of Medicine reverses long-running advice that breast
cancer survivors should avoid lifting anything over five-pounds to prevent lymphedema -- an incurable side
effect of cancer treatment.
The study shows a slow progressive weightlifting regimen not only didn't increase lymphedema, but reduced
the risk by 35 percent in the 154 participants. These results go against typical doctor's orders.
The debilitating condition prevents women from living a normal life after cancer. It causes chronic swelling
in the arm. It's so common, some survivors are warned not to pick-up their own children because it may
bring on the disorder.
Lead author Kathryn Schmitz said the conclusions from the study are game changing. “I am at this point on a
mission to make it standard of care for breast cancer survivors to be automatically referred for evaluation of
arm and shoulder problems at the end of their breast cancer treatment,” Scgnutz said. “It is my hope that
some day breast cancer rehabilitation will be as common as cardiac rehabilitation after a heart attack," she
said.
Schmitz also said, the weightlifting should only be done with a certified fitness professional.
Marie McCrone participated in the study. McCrone said other than cancer returning, the fear of
lymphedema is huge. Developing it would be a constant reminder of the cancer. She said, “You know you
do your treatment and then they kind of send you on your way. Things have changed and it's nice to have
someone understands that we do want to survive and we do want go on and live a normal life instead of
always being a breast cancer survivor”
McCrone says she is still lymphedema-free. Her arm, where the nodes were removed is stronger.
January 6, 2011 - Start Out Your New Year By Helping With a Great Project - BlogHer (blog) – by
Melissa Ford –
BlogHer Susan Niebur of Toddler Planet was speaking with her lymphedema therapist during a session to
reduce the swelling in her arms post-mastectomy when she learned that many cancer survivors cannot afford
the compression sleeves worn to deal with the swelling brought on by lymphatic fluid.
Susan thought, "Can't afford lymphedema sleeves? Well of course that's true, isn't it, as they cost $100 and
up for each arm, and it's important to have two sets - one to wash, and one to wear. I started rolling
solutions around in my brain."
And out of adversity a great advocacy project was born. Creating a union between a foundation and a
compression sleeve company, Susan is working to bring these sleeves to cancer survivors who can't afford
the cost. And she is opening up this project to all of us -- and here is what you can do to help:
Put it on Twitter and Facebook or blog about the project.
Donate your connections, money, or time by leaving a comment on the post stating how you can help.
Connect those in need with the project so they can receive these much needed sleeves.
See, simple.
I spoke with Susan about her new project on Wednesday:
So many people don't realize the on-going side effects from cancer and surgery. What is lymphedema and
how does it affect your day-to-day world?
Three years ago, I had chemotherapy, radiation, and a double mastectomy to fight inflammatory breast
cancer. Like many of us, I assumed that after that treatment, I'd be fine. Or at least after recovery, I'd be
fine. I was surprised to learn that the act of having a mastectomy, the removal of a breast, also typically
includes the removal of one or all of the lymph nodes under that arm. Now these lymph nodes normally act
to remove waste fluid and proteins from the tissue in the arm, wrist, and hand. When the nodes are
removed, the waste fluid isn't removed. I quickly learned that every time I exercised, cooked, or went
outside in warm weather, my arm would swell, up to an inch in diameter. They call this "congestion" in the
arm, and it feels about as great as congestion in your sinuses. And I don't know about everyone, but it
makes me crabby!
Because of lymphedema, I limited myself to indoor activity. I stopped going to playgroups at the park, and I
turned down the opportunity to coach my kids in preschool soccer. In fact, I pulled my kids from soccer
entirely last summer, and we all missed it.
What is the role of lymphedema sleeves?
Compression sleeves play an important part in the treatment of lymphedema, whether it is a side effect of
treatment for breast cancer or a stand-alone disease. Sleeves are made of knit, latex, and/or silicone fabrics
that stretch as a person moves, allowing them to be worn all day, but they apply enough pressure that the
arm does not swell as quickly, allowing people to be outside for longer periods, to do strengthening
exercises, and to cook on or near a hot stove (but don't tell my husband that last part, okay?).
And the need for lymphedema sleeves remains with the person forever?
Yes. Sleeves typically cost about $100 each and have a typical lifespan of about six months. Each patient
needs two sets (and this is important) because the garments need to be washed after each wearing to
maintain the graduated compression in the fabric. Patients also need to do manual lymphedema therapy each
day and/or see a professional for reduction of the swelling, but the sleeves are an essential part of therapy,
so that the progress isn't lost the moment a patient steps outside.
The two places you're working with to bring these sleeves to people in need are the foundation Crickett's
Answer, and the company, LympheDIVAs. Can you tell people a little bit about this organization and
company?
Crickett’s Answer is a 501(c)3 nonprofit organization founded in memory of Crickett Julius. Crickett
survived breast cancer only four months after her diagnosis at 39, but her mother and cousin are dedicated
to helping other women enjoy their life post-diagnosis by providing wigs, mastectomy products,
oncology/mastectomy/ lymphedema massage, facials, and other pampering services as a way to help women
feel feminine and beautiful after losing their hair and/or breasts.
LympheDIVAs was founded by Rachel Troxell and Robin Miller, friends and breast cancer survivors who
wanted to create a more elegant and comfortable compression sleeve. Rachel continued to build the
company during her later recurrence. Even though she died two years ago, at the age of 37, her father,
mother, and brother continue to grow the company in her honor and in the hope that LympheDIVAs’
compression apparel will continue to inspire breast cancer survivors everywhere to feel as beautiful, strong,
and confident as Rachel was.
How did life change for you when you went from wearing the original sleeve to the LympheDIVA sleeve? I
think for many people, when they think about appearance and cancer treatments, they think about hair. How
do you think these compression sleeves will change the emotional lives of other cancer survivors?
From the first, I wore my sleeve and glove everywhere, but it was hard. More often than not, even well-
meaning friends and former associates looked shocked when I approached with the thick work-glove like
glove outstretched, and they thought the thick sleeve was a kind of cast. Strangers commented regularly, and
everyone and anyone would ask brusquely: “What on Earth happened to your arm?” When I dutifully
answered their questions, saying that I had had inflammatory breast cancer, had a mastectomy, and now
wear these sleeves, yes, for the rest of my life, the questioners would react strongly, and conversation would
be difficult. I didn’t like going out to meet new people anymore, and I stuck close to friends when we did. It
wasn't good for me. I love being around people, and it got harder and harder to force myself to go out,
when I knew I'd have to answer strangers' questions.
Now, I hear "Ooh, that's so pretty!" or "Girl, where did you get those tats?" as often as I do rude questions,
as the pretty designs on my LympheDIVAs sleeves prompt people to smile first, and ask questions later.
I hope that by providing lymphedema sleeves to women who need them but can't afford them, it will help
breast cancer survivors to continue to step out of the shadows and get back into life.
The announcement for this project falls during a difficult time for you. How has working on this project been
as you wait for your next oncology appointment?
When I asked Crickett's Answer and LympheDIVAs to help other women in this way, it was at a time when
I was finishing chemo for my third cancer, and I was happy to wrap up my treatment with this project,
forcing something good to come of this horrible disease and its recurrence. I had hoped to announce it on
Monday along with the news of clear scans (meaning that my cancer was still gone, and I would be in
remission again). Well, I didn't get clear scans, but I'm moving ahead on the project anyway.
Cancer takes so much from us, but it cannot take away two things: love and the power to act. Nothing the
oncologist can tell me on Thursday will change that.
Please help spread word about this very important project and help connect those in need with this
incredible gift of tools that can aid in life with cancer.
January 6, 2011 - Seroma After Breast Cancer Surgery Triples Lymphedema Risk - Internal Medicine
News Digital Network – BY Bruce Jancin –
SAN ANTONIO – Women who form a seroma following breast cancer surgery are at threefold increased
risk of developing lymphedema, a case-control study has shown.
Of 135 breast cancer survivors (26%) participating in the study, 35 developed postsurgical symptomatic
seromas requiring needle aspiration. The seromas were located in the axilla, upper chest, and breast.
Of the 35 women with a seroma, 33 had a greater than 200-mL increase in arm volume. Based on the
International Criteria for Lymphedema Diagnosis, 26 of the 35 women with a seroma had severe
lymphedema, 6 had moderate lymphedema, and 3 had mild lymphedema symptoms, Mei R. Fu, Ph.D.,
reported at the annual San Antonio Breast Cancer Symposium.
Patients with a higher body mass index were significantly more likely to form a seroma; however, age, type
of surgery performed, axillary lymph node status, and number of nodes removed proved unrelated to the
occurrence of a seroma, according to Dr. Fu of the New York University College of Nursing.
Lymphedema is caused by accumulation of lymphatic fluid in interstitial spaces due to injury to the lymphatic
system as a consequence of breast cancer therapy. Patients dread this common, distressing, long-term, and
indeed often lifelong complication, she said.
Lymphedema is a syndrome with multiple symptoms. In this study, seroma formation – that is, excessive
build-up of serous fluid – was associated with a markedly increased likelihood of the lymphedema-related
symptoms of arm swelling, heaviness, numbness, stiffness, firmness, tenderness, and redness, as well as
increased arm temperature. Patients with a seroma had a greater number of lymphedema-related symptoms
than did women who developed lymphedema without a seroma.
A seroma is believed to form in response to surgical trauma and leakage of inflammatory exudates in the
acute phase of wound healing. The excessive build-up of serous fluid leads to delayed wound healing, with
tissue inflammation followed by fibrosis and necrosis.
Current standard management of a symptomatic seroma consists of needle aspiration, which may need to be
done repeatedly. The clinical implication of this study is that aspiration of serous fluid isn’t sufficient to
prevent lymphedema, Dr. Fu said. Further research is warranted on a novel means of preventing
symptomatic seroma formation as a means of avoiding the development of lymphedema. Possibilities include
the use of ultrasound for early detection and drainage of subclinical seromas, as well as potent anti-
inflammatory therapy.
Her study was funded by the Avon Foundation and grants from other nonprofit organizations. She said she
had no relevant financial disclosures.
January 7, 2011 - Gottfried Medical, Inc. celebrates its anniversary in its new facility - Healthcare Digital
(press release) - BY: Nargis Namazi –
Medical device manufacturer Gottfried Medical talks about its stint in the healthcare industry on its
anniversary
For Gottfried Medical, Inc., the American Dream is alive and well. This second generation, family-owned
and operated business settles in to their new facility, doubling their size. In 2011 they celebrate 30 years in
business in Toledo, Ohio, the city of its birth.
Gottfried Medical manufactures medical devices. They specialize in the engineering and manufacturing of
made-to-measure compression garments, including: stockings and sleeves. The majority of their products aid
in controlling numerous vascular conditions and lymphedema. They also manufacture compression garments
specially engineered to suppress and control hypertrophic scarring, resulting (most often) from serious burn
injury.
Their new facility is almost 12,000 square feet, nearly double the previous.
What amenities, or improvements, does the new location provide, that previous did not?
“We absolutely love our drop docks, as well as the additional warehouse capacity and a spacious parking
lot, all notably absent at our previous location.”
What prompted the re-location and was it anticipated?
“Based upon our historical growth and projections, we anticipated needing either a newer, larger facility or
an extensive expansion of our (then) current one within three years. Previous experience and the state of the
Real Estate market suggested we begin our search when we did.”
“The building we ultimately purchased was (curiously enough) one of the first ones we considered. Six
months later and after $75,000 in renovations and upgrades, it was ready for Gottfried Medical to occupy.
From our initial search to the move-in, everything came together much faster than we had experienced
previously.”
“Much of our good fortune is a result of the wonderful companies that helped make it all happen. The entire
project was financed by: Signature Bank N.A. Our general contractor was: JMS Real Estate Services. Both
companies are (like us) also Toledo-based and worked very closely with us.”
“Our 30 year success story is due (in large part) to our customer service. Even today, every call Gottfried
Medical receives is answered by a person. No voicemail, no buttons to push. In our new facility, we
invested in state-of-the-art fiber optics for even more efficient communication both internally and with our
customers.”
“It’s not just about getting bigger,” Brent continued, “As we grow, we are constantly evaluating our methods
and workflow. Our new facility provides the added space we need to accommodate the staff and equipment
necessary to meet the increased demand. By design, the facility has also allowed us to streamline some of
our operations, thereby increasing our efficiency, so that we may continue to provide the delivery service our
customers have come to expect.”
Why Toledo? What keeps your business from moving offshore?
“Toledo,” said Brent, “is not only my home and birthplace; it is the birthplace of the industry Gottfried
Medical serves. Conrad Jobst, who originated and developed the concepts for gradient pressure stockings,
lived in Toledo and worked for Owens-Illinois, then a Toledo-based company. Jobst (Conrad Jobst’s
namesake) was also originally a Toledo-based company. My father, Max Gottfried, the founder of Gottfried
Medical, began his career in this field working for Jobst.”
“Manufacturing offshore is not practical for our business model. Virtually everything we produce is one of a
kind; therefore, economies of scale do not apply. Our products are time-sensitive. For the reason of efficacy
alone, from the time an order is placed, engineered, manufactured and finally delivered, is counted in days.
Although it might be possible to save a few pennies (in my opinion) the loss in time and quality control could
never justify the savings of moving manufacturing offshore.”
You mentioned Max Gottfried, your father, and the company’s founder. How did it all start?
“Max Gottfried believed a lower cost and longer life made-to-measure compression garment could be made
without reducing its quality or compromising its efficacy. With three employees in 1,000 square feet of
space, he proved he was right and so in 1981 Gottfried Medical, Inc. was born. His dream lives-on in our
new facility, now employing 30 people.”
How will e-business, technology and virtual world affect Gottfried Medical?
“To look into our future, we must look at our past. Our first fax machine was very expensive. At the time we
wondered if its cost would ever be justified, yet we made the investment to better serve our customers.
Before there were PC’s, we had an internal computer network that could multi-task. This provided us a
means for efficient and accurate recordkeeping, helping to keep costs down.”
“We were also early entrants into Internet and are proud of our website: www.GottfriedMedical.com, going
through several major upgrades over the years. We continue to work on improvements and online content.
Soon, we hope to be offering online ordering.”
“Reflecting on how the company technology has changed in the last 30 years makes the future look very
exciting. 3D imaging and ultrasonic sewing are just two of many areas that hold promise. It’s simple: at
Gottfried Medical, we embrace technology we feel will improve our products and service.”
How do you envision the move to the new location will affect your role at Gottfried Medical and why?
(Brent Gottfried, President) “The move has taken some pressure off me. We now have elbow room and the
space to grow. That’s what we have done every year of our existence. We also now have the space to
evaluate some of the new technologies we are interested in. Personally, I am gratified by the level at which
the employees are enjoying our new home.”
(Beth Joy, General Manager) “By moving to the new building and including the entire staff throughout the
process, the sense of ownership is heightened for each employee. This sense of ownership creates more of a
team atmosphere. We all love our new surroundings and want to continue to grow the business and provide
the service we are known for. The move has affected my role as General Manager by the positive attitude of
the employees and their willingness to do what it takes.”
(Brandon Scanes, Sales Manager) “A move such as this, by default, puts added pressure on all those
involved. As an example, my role expanded and shifted to one of logistics – organizing the transfer of
product and inventory to the new location. Prior to and throughout the move itself, new situations required
quick and decisive decisions. As we settle-in to our new offices although things are returning to ‘normal,’ as
a result of that move (going forward) I now possess new skills to call upon that will help me deal with my
workday.”
(Darla Hredzak, National Sales Representative) “What the move represents has a huge impact on my
motivation. To be a part of a company that grows every year is an honor. It stands upon the promise of its
President, Brent Gottfried: ‘do one thing and do it well.’ As their national sales rep, that means providing our
customers the highest quality products to aid in their patients’ journey to either recovery or maintenance of
their unique health concerns.”
As Gottfried Medical turns the corner on thirty years in business, their future remains bright, as does their
commitment to the Toledo-area as their home and to their promise to remain a company sought-out by
employee and customer alike.
January 7, 2011 - Tahoe Forest Health System's 'Exercise for Energy' for current and recovering cancer
patients - Sierra Sun –
TAHOE/TRUCKEE, Calif. —This free six-week class, Exercise for Energy, is a supportive care program
for current and recovering cancer patients. It offers patients guidance, support, and useful tools to return to
and maintain health and wellness. The class will incorporate strengthening, stretching, breathing, balance,
cardio, yoga and wellness education. Education topics may include foods that fight cancer, cooking
demonstration, lymphedema prevention, stress, Feldenkrais and exercise strategies. All classes are
supportive, medically managed and taught by health professionals, giving you the tools you need in a
supervised environment.
Classes are offered in Truckee and Incline Village. New sessions begin in Incline Village Jan. 12 and April
13. Class meets Wednesdays and Fridays, 12:30-1:30 p.m., with Wednesday Wellness Educational Topics
1:30-2:30 p.m. at IVCH Physical Therapy and Medical Fitness, 333 Village Blvd. Suite 201, on the corner
of Village and Alder, one block from Incline Village Community Hospital. Truckee sessions begin March 1
and May 31.
Prescreening required. For more information or to sign up call 582-7415 or e-mail mlarson@tfhd.com. Visit
www.tfhd.com.
January 9, 2011 - Weight lifting does not appear to increase risk of arm swelling, discomfort for breast
cancer survivors - The Virtual Medical Centre –
A slowly progressive weight lifting program for breast cancer survivors did not increase their risk of
lymphedema (arm swelling and discomfort), according to a study in the December 22/29 issue of JAMA.
The study is being released early online to coincide with its presentation at the San Antonio Breast Cancer
Symposium.
Lymphedema is a frequent complication among breast cancer survivors and ranks high among their
concerns, as it may impair arm function and quality of life. "Breast cancer survivors at risk for lymphedema
alter activity, limit, activity, or both from fear and uncertainty about their personal risk level, and upon
guidance advising them to avoid lifting children, heavy bags, or other objects with the at-risk arm. Such
guidance is often interpreted in a manner that de-conditions the arm, increasing the potential for injury,
overuse, and, ironically, lymphedema onset," according to background information in the article. The authors
add that adherence to these precautions may limit physical recovery after breast cancer.
Lymphedema often occurs after lymph vessels or lymph nodes in the axilla (armpit) are removed by surgery
or damaged by radiation, impairing the normal drainage of lymphatic fluid.
Kathryn H. Schmitz, PhD, MPH, of the University of Pennsylvania School of Medicine and Abramson
Cancer Center, Philadelphia, and colleagues examined the incidence of lymphedema after a one year weight
lifting intervention among survivors at risk for breast cancer related lymphedema (BCRL). The randomised
controlled trial included 154 female breast cancer survivors who had been diagnosed one to five years prior
to entry in the study and had at least twio lymph nodes removed and were without clinical signs of BCRL at
study entry. Participants (ages 36 to 75 at the beginning of the study) were randomised to either the weight
lifting intervention, which included a gym membership and thirteen weeks of supervised instruction, with the
remaining nine months unsupervised, or no exercise (control group). Data collection ended in August 2008.
A total of 134 participants completed follow-up measures at one year.
The researchers found that the proportion of women who experienced new BCRL onset was 11% (eight
out of 72) in the weight lifting intervention group and 17% (thirteen out of 75) in the control group. "Among
women with five or more lymph nodes removed, the proportion who experienced incident BCRL onset was
7% (three out of 45) in the weight lifting intervention group and 22% (eleven otu of 49) in the control group.
Clinician-defined BCRL onset occurred in one woman in the weight lifting intervention group and three
women in the control group (1.5% vs 4.4%)."
"The majority of breast cancer survivors do not have lymphedema; however, they alter the use of their arms
and upper body activities out of fear of developing lymphedema. The findings from our trial should help
clarify clinical advice to patients who have completed breast cancer treatment regarding the safety of
resuming or beginning a weight lifting program," the authors write.
The researchers note that the primary goal of this study was to test safety of weight lifting, not superiority,
and that additional research is needed before concluding that weight lifting prevents lymphedema. "However,
even with the finding of no harm, our results combined with previously published results for women with
breast cancer related lymphedema suggest that the many health benefits of weight lifting should now become
available to all breast cancer survivors."
January 11, 2011 - Manual Drainage Fails to Prevent Lymphedema in Breast Cancer Patients - Internal
Medicine News Digital Network – by Kerri Wachter –
SAN ANTONIO – Adding manual lymph drainage to exercise therapy did not prevent lymphedema in a
study of 160 breast cancer patients who underwent axillary lymph node dissection.
Researchers reported that the incidence of lymphedema following axillary lymph node dissection (ALND)
was similar whether or not women had manual drainage in a randomized trial presented at the annual San
Antonio Breast Cancer Symposium.
[Check out our comprehensive coverage of the San Antonio Breast Cancer Symposium.]
Based on these findings and previous data, "breast cancer patients have to perform exercise therapy
immediately started after the axillary dissection to prevent arm lymphedema," said Nele Devoogdt, a
physical therapist at University Hospitals Leuven in Belgium.
Manual lymph drainage involves stretching/massaging the skin around lymph nodes to improve resorption by
the lymph capillaries, increase lymph transport (by stimulating lymph collectors), and to create collateral
pathways of lymph transport, Ms. Devoogdt said. Although manual lymph drainage is used in several
countries, including Belgium, to prevent lymphedema, the preventive effect has not been previously
demonstrated in a peer-reviewed randomized trial.
For this study, the researchers recruited 160 breast cancer patients, who underwent ALND in one arm.
Both arms were assessed prior to the procedure to assess the natural difference in size.
A total of 79 patients were randomized to exercise therapy and manual lymph drainage, while 81 patients
had only exercise therapy. Both groups were given lifestyle guidelines for minimizing lymphedema.
Patients in both groups attended 1-2 sessions per week (29 exercise therapy sessions on average). In the
treatment group, manual lymph drainage was performed 1-3 times per week (34 sessions on average).
At 1 month post-ALND, patients started treatment and an arm assessment was performed. Arm
assessments followed at 3 months, 6 months (at which point treatment was stopped), and 12 months.
The primary outcome measure was the incidence of arm lymphedema – defined as a circumference increase
of at least 2 cm at two successive measurements. The researchers found no significant difference in
lymphedema incidence between the two groups at any time point. At 3 months, the incidence was 7% in the
drainage group, compared with 5% in the exercise-only group; at 6 months, the incidence was 12% and
10%, respectively; and at 12 months, it was 23% and 18%.
Secondary outcomes also showed no significant differences in time to lymphedema, increase in arm volume,
mental and physical health-related quality of life, and functional problems related to arm lymphedema.
The investigators reported that they have no relevant financial relationships.
January 11, 2011 - Support Groups, updated Jan. 11 – TCPalm –
DATED MEETINGS
Lymphedema Support Group: Focus on encouragement, education, socialization. Advanced Motion
Therapeutic, 2965 20th St., Vero Beach, 6:30 p.m., Jan. 13, Feb. 10, Mar. 10. RSVP: 772-567-8585;
AMTvero.com.
Lymphedema: St. Lucie Medical Center, 1800 S.E. Tiffany Ave., Port St. Lucie, 5:30 p.m., Jan. 28, Feb.
24, March 24, April 28, May 26, June 23, July 28, Aug. 25, Sept. 22, Oct. 27. 772-335-4000;
StLucieMed.com
January 11, 2011 - HOUSE CALL: Lymphedema —yes, it's treatable - San Angelo Standard Times –
SAN ANGELO, Texas — Lymphedema is the result of an abnormal accumulation of protein-enriched fluid
that causes swelling of a body part, usually the arm or leg. Approximately 2.5 million Americans suffer from
lymphedema, and many of them go undiagnosed or untreated.
If left untreated, lymphedema can potentially cause repeated soft tissue infections, inability to use the arm or
leg, and could possibly lead to amputation of the arm or leg.
Lymphedema often develops after cancer-related treatments, surgery, obesity, injury, rheumatoid arthritis, or
chronic venous insufficiency. Approximately 30 percent of women who develop breast cancer and undergo
radiation will develop lymphedema, and approximately 74 percent of men who develop prostate cancer will
develop it. With age, a person who undergoes total knee or hip replacement is at higher risk of developing
lymphedema. Whereas in the past a person may have been told there was no treatment available, now
through lymphedema therapy, there is hope for alleviating this debilitating condition.
Untreated lymphedema could progress through the following stages:
* Stage I is identified when lymphedema fluctuates throughout the day. Patients often express, “My legs are
only swollen at the end of the day.” Or, “The swelling comes and goes, but I’m fine.” Symptoms include
feeling of tightness, achy discomfort, heavy feeling of the arm or leg, and pitting. If left untreated, it can
progress to Stage II.
* Stage II is the state when the soft tissue turns hard and it becomes difficult to press a finger into the
affected skin, skin color begins to change, repeated infections (cellulitis) occur, and leakage of fluid through
the skin (weeping edema) appears.
* State III, termed elephantiasis, may be more difficult to treat. However, through lymphedema therapy, the
person may regain the quality of life they may have lost.
Lymphedema therapy, a specialized therapy also known as Complete Decongestive Therapy, consists of:
(1) Manual lymph drainage, a gentle specialized massaging technique used to reroute lymph flow around
the blocked areas into more centrally located healthy lymph vessels that drain into the venous system;
(2) Compression therapy that applies short stretch bandaging to the affected body part to maintain the
progress made through manual lymph drainage, prevent back flow of the lymph fluid, and improve the
muscle pumping action that assists proper lymph flow;
(3) Lymphedema exercises;
(4) Skin care and infection prevention education;
(5) Compression garment measurement and fitting, which will help the person maintain the progress made
through lymphedema therapy.
Cost of lymphedema therapy is covered by Medicare, Medicaid, and most private insurances. A doctor’s
referral is required to receive therapy.
At San Angelo Community Medical Center, a medical admissions specialist is available at (325) 947-6989
to answer questions regarding insurance coverage to receive this therapy. For more information or to
schedule an appointment, please call (325) 949-5900.
Selina Elder, is an Occupational Therapist, Certified Lymphedema Therapist and Certified Custom Garment
Fitter who practices at San Angelo Community Outpatient Therapy.
TINA: SORRY THIS ONE BELOW SAYS IT IS A PAID ARTICLE WHEN I CLICKED ON THE
LINK
January 12, 2011 - Free programs set for cancer patients - South Bend Tribune –
Lymphedema: Isn't it Swell? will be at 4 pm Jan. 20 at RiverBend Wellness Center. Learn the serious
symptoms of lymphedema and when to seek help. ...
January 12, 2011 - Reaching Out to Breast Cancer Patients - Care2.com (blog) – by: Ann Bibby –
Due to the arbitrary way that Medicare and private insurance companies decide what is medically necessary
and what is optional, breast cancer patients are often left paying for lymphedema sleeves – which control
swelling after a mastectomy – themselves. Those who cannot afford them go without and suffer.
It Takes a Villager
Susan Niebur, astrophysicist, mother, currently undergoing treatments for a fourth reoccurence of the
disease, wants to ensure that all breast cancer patients have access to lymphedema sleeves, gauntlets, and/or
gloves, and she's taken to the blogging community via her own site, Toddler Planet, to ask for help raising
money to make this happen.
Using Social Media to Promote Awareness
To generate donations to organizations devoted to providing lymphedema sleeves Niebur wrote the
following in a post to her readers,
Today, I am pleased to announce a NEW opportunity for breast cancer survivors who have had a
mastectomy and/or axillary dissection of the lymph nodes due to breast cancer and have swelling of one or
both arms but cannot afford the $200-$500+ cost for two sets of the compression sleeves and gauntlets that
survivors with lymphedema must wear every day to keep the swelling in check.
Although lymphedema sleeves are medically necessary, they are not covered by Medicare OR most
insurance plans under current law, and thousands of survivors go without the sleeves, needlessly suffering
congestion, swelling, and pain that interferes with their normal activities.
Two Organizations Making a Difference
Cricket’s Answer, a non-profit organization founded in memory of Cricket Julius has teamed up with
LymphaDIVAs to make sure that all breast cancer survivors who need sleeves, gauntlets and gloves, will
have them. People can donate through Cricket's Answer's website.
Niebur asked that her readers promote the cause via their blogs or other social media accounts and to email
the appeal to friends. She also urged readers to contact Congress in support of the Lymphedema Treatment
Act bill designed to change the rules that make it impossible for some patients to get the treatment they need.
Online communities increasingly play important roles in social change and raising awareness, but it's thanks
to bloggers like Susan Niebur that these things happen, and it’s proof that one person really can make a
difference.
January 13, 2011 – TINA THIS ONE WAS A ONE TIME MEETING THAT HAS PASSED, SORRY:
January 15, 2011 - Love 101; lymphedema in Japan; CM of the week: Z-kai - The Japan Times –
January 16, 2011 - Weightlifting Reduces Risk of Lymphedema Post Breast-Cancer Treatment - Massage
Magazine –
Lymphedema management is a specialty that some massage therapists train in, and many of their clients are
breast-cancer survivors who develop lymphedema after having lymph nodes removed.
New research shows that weightlifting slashes lymphedema risk after breast cancer treatment.
Researchers from the University of Pennsylvania School of Medicine say that slowly progressive weight-
training program reduces chances of developing lymphedema by as much as 70 percent
"Lymphedema is a dreaded, common side effect of breast cancer treatment. Women worry that they will
recover from their cancer only to be plagued by this condition that often limits their ability to work, maintain
their homes, and care for their children or grandchildren," said lead author Kathryn Schmitz, PhD, MPH, an
associate professor of Epidemiology and Biostatistics and a member of Penn's Abramson Cancer Center.
"Our study shows that they now have a weapon to reduce their risk of developing lymphedema,
The research results were presented in December at the San Antonio Breast Cancer Symposium and
published online concurrently in the Journal of the American Medical Association.
January 19, 2011 - Indian River Health Listings Updated XX - Abilene Reporter-News –
January 26, 2011 - North American Seminars, Inc. Introduces a New Physical Therapy Continuing
Education Course, Advanced Management of Breast Cancer Rehabilitation - PR.com –
North American Seminars, Inc. introduces a two day physical therapy continuing education course that is
designed to expand and advance current clinical knowledge by providing more in depth clinical information
needed to problem solve through a complex variety of breast cancer diagnoses.
Franklin, TN, January 26, 2011 --(PR.com)-- This two-day advanced seminar is designed to expand and
advance current clinical knowledge by providing more in depth clinical information needed to problem solve
through a complex variety of breast cancer diagnoses. Complex diagnoses include patients with aggressive
forms of breast cancer, patients with metastatic breast cancer such as bone and lung metastases, patients
with associated co-morbidities such as auto-immune diseases, diabetes, CHF, patients with differential
diagnoses such as superior vena cava syndrome, sarcomas, etc., and patients with treatment complications
such as seromas, hematomas, infections, open wounds, axillary web syndrome, and mondors syndrome.
Centered on systems management, a series of advanced, synchronized manual therapy treatment techniques
are taught in the lab sessions. These advanced clinical treatment techniques will allow experienced therapists
to build on their current expertise by being inclusive of all the major systems involved in the medical
treatment of breast cancer patients, namely the musculo-skeletal system, the nervous system, the vascular
system, the lymphatic system, and the endocrine system. Careful study of how each of these systems are
affected in the breast cancer population will enable clinicians to apply advanced treatment concepts and
integrative skills to effectively and successfully treat a multitude of complex patient scenarios that go beyond
the routine post surgery and post radiation management of this population. Additionally, the integrated skills
taught in the seminar will add leverage to current treatment protocols, optimize the functioning of patients,
and bring about improved sustainable results. Upon completion of the course, clinicians will be able to
design specific exercise protocols and use integrated systems management techniques in the advanced
treatment of breast cancer patients with surgical complications, severe side effects of radiation, side effects
of chemotherapy, and side effects of targeted hormone therapies. The information presented in the course
will enhance therapists' ability to develop a continuum of care, lead a multi-disciplined approach, and
effectively market new concepts in the management of patients with breast cancer to the medical community.
The course presents evidence-based material both in the medical management of patients with breast cancer
and in the rehabilitative therapy management of patients with breast cancer. The information obtained in this
course can be immediately applied in the clinic to achieve sustainable, functional outcomes in patients with
breast cancer.
The objectives of this physical therapy continuing education course are:
- Understand the anatomy of breast cancer cells, their functional capabilities, and how modern medicine is
responding in its design to treat breast cancer effectively.
- Expand clinical knowledge about differential diagnoses, treatment side effects, and physical sequelea of
chemotherapy, radiation therapy, and targeted hormone therapies.
- Advance understanding of the biology and physiology of the acute trauma that occurs to the lymphatic
system after surgery and radiation therapy, and how this affects normal healing processes in the body.
- Understand the difference between treating lymphedema as a condition, and the advanced concepts of
treating acute trauma of the lymphatic system as it relates to other body systems in the healing processes of
surgery, radiation, and chemotherapy.
- Advance and integrate manual lymphatic drainage skills with orthopedic manual therapy skills to include
system management of the musculo-skeletal system, the nervous system, the vascular system, the lymphatic
system, and the endocrine system during and post breast cancer treatment.
- Understand complex co-morbidities and adverse treatment complications of breast cancer, how they affect
the healing capacity of patients, and how treatment can be structured to minimize their effect.
- Identify clearly the specific clinical goals of specialized manual therapy skills and targeted exercise
protocols for patients undergoing advanced forms of breast surgery, new chemotherapy treatments, and/or
targeted radiation therapy so as to achieve optimal function, as well as sustainable treatment results.
- Have increased knowledge about advances in breast cancer diagnoses, advances in breast cancer
management, and advances in breast cancer research
- Gain and advance leadership skills in the continuum of care and multi-disciplined approach to the
management of patients with breast cancer.
This course will be presented at the following locations:
Jan 29, 2011 - Jan 30, 11: Multicare Medical Center, Tacoma, WA
Feb 12, 2011 - Feb 13, 11: Summerlin Hospital, Las Vegas, NV
Feb 26, 2011 - Feb 27, 11: Methodist Dallas Medical Center, Dallas, TX
Mar 26, 2011 - Mar 27, 11: San Ramon Regional Medical Center, San Ramon, CA
Aug 20, 2011 - Aug 21, 11: Legacy Emanuel Hospital, Portland, OR
Aug 27, 2011 - Aug 28, 11: St. Anthony's Medical Center, St. Louis, MO
Oct 01, 2011 - Oct 02, 11: Elliott Hospital, Manchester, NH
Nov 05, 2011 - Nov 06, 11: St. Agnes, Hospital Baltimore, MD
For more information visit www.healthclick.com
January 29, 2011 - Hands helped her keep home - Winnipeg Free Press – By: Kevin Rollason -
Bills piled up during battle with breast cancer
Martha Adair was already battling for her life against breast cancer -- the last thing she wanted was to win
the battle but lose her home with bills mounting up.
Thankfully, there were helping hands to come to her aid.
Actually, it was Helping Hands for Manitobans with Breast Cancer Inc.
The Landmark-area resident credits the six-year-old charity with helping her and her husband keep on their
financial feet during her year-and-a-half battle with breast cancer starting in December 2007.
"I couldn't work," Adair said.
"We cleared out our savings. I was paying an average of $2,000 for drugs not covered (by pharmacare) per
month. These were the darkest days when the bills were hurting us.
"We might have lost our house if Helping Hands didn't help us."
Helping Hands helps women and men who are facing financial problems during their breast cancer treatment
and recovery.
Candace Propp, the organization's president, said it tries to step in to help individuals who need help paying
for things not covered by insurance, social assistance or non-insured health coverage.
"People are modest about what they're asking for," Propp said.
"They're asking for basic things so they don't have to use food dollars. Fighting cancer is really hard on single
women and single mothers... we've heard people have lost their homes while fighting breast cancer."
There are several ways Helping Hands can help people, including uninsured medical or treatment costs,
transportation to and from appointments, hospital or doctor's office parking, a wig (limit of $250),
lymphedema garments, and support care services.
Helping Hands will not help people with the cost of rent, loans, utilities or food or with optional items like
scarves or prosthesis bathing suits.
Anyone who needs help has to be referred by a medical counsellor or licensed social worker.
Because the organization is run totally by volunteers, all of the money raised goes to help people.
Starting in 2005, Helping Hands helped one person with a few hundred dollars; the year after it helped three
people with $2,700, then four people with $9,000 the next year.
By 2010, the organization was helping 20 people with more than $20,000 in total.
Sharon Phillips, owner of the Bra Bar and the organization's current vice-president, came up with the idea
for the charity and founded it with three other women, including Propp.
"We saw the need at my business," Phillips said. "We saw so many women going through breast cancer and
couldn't afford it. We all think we have medical coverage, but there is a lot that's not covered by the system."
Phillips said what surprises her the most is how the need for the charity grows each year.
"We kept thinking someday the system will catch up, but it hasn't," she said. "And more and more people
are finding out about us."
Phillips said the organization holds an annual Dance for Dollars, but it is hoping somewhere out there is a
company or group of individuals that can raise funds for them by running an event.
Propp said each year about 800 Manitobans are diagnosed with breast cancer and 80 to 100 of those end
up on social assistance.
"We're helping about 20 people," she said.
"We're still not reaching everybody that we need to... and we'd like to open it up for all cancers, but we
don't have the money now."
The first woman Helping Hands assisted, 45-year-old Myla (who asked that her last name not be used), lost
her employment during her breast cancer fight, which included several rounds of chemotherapy and radiation.
Myla, a single mother with two children, said the organization helped her buy a special compression sleeve
to wrap around her arm to reduce the swelling from the lymphedema she has as a result of her breast cancer
fight.
"They cost about $200 and they helped me pay for it," she said, adding they also helped her with some bills.
"It was pretty tough at the time -- I even had to go to the food bank.
"It's phenomenal what Helping Hands does for people like us."
Adair, who is still dealing with some of the effects of her breast cancer battle, said when it is behind her she
wants to return the favour and volunteer for Helping Hands.
"I really want to contribute to them," she said.
"My hat is off for Helping Hands. When I got the first cheque from them I thought I was dreaming.
"They are kind and they came through for us.
"I know how much their help is appreciated."
January 31, 2011 - Healthy Living: Do you have lymphedema? - Bristol Press – By Rekha Singh, M.D. –
If you’ve had cancer treatment that involved removal of lymph nodes or vessels and now have swelling in an
arm or leg, ask your doctor to check for lymphedema.
Lymphedema is a common condition affecting the body’s lymphatic system.
Part of the immune system, the lymphatic system consists of lymph glands, or “nodes”, and a network of
lymphatic vessels (similar to veins and arteries) throughout the body. The vessels carry lymph, a fluid
containing protein, white blood cells and other substances.
Lymphedema occurs when lymph vessels in an area stop pumping and lymph accumulates in body tissues.
Swelling results, usually in an arm or leg, but sometimes in the chest, face, neck or genitals.
There are two types of lymphedema:
n Primary lymphedema results when a person is born without lymph vessels ornodes.
n Secondary lymphedema occurs when lymphatic vessels or nodes are damaged or removed, most often
after surgery and radiation therapy to treat breast, prostate or pelvic area cancers, lymphoma or melanoma.
Untreated, lymphedema can lead to further swelling, skin changes and infection, and can be life-threatening.
While the condition can’t be cured, lymphedema therapy can significantly reduce swelling, discomfort and
risk of infection.
One commonly used treatment is called Complete Decongestive Therapy, which includes a technique called
manual lymph drainage (MLD). During MLD, specially trained lymphedema therapists use massage-like
techniques to re-route lymph around damaged nodes or vessels.
Compression therapy is used between MLD treatments. Patients wear special bandages or garments on the
affected area to prevent re-accumulation of lymph fluid.
Different wrapping materials and techniques are used depending on each patient’s ncondition. When patients
reach a maintenance phase of treatment, they learn how to use mnbandages and compression garments
themselves and perform self-MLD.
They also learn special exercises for the affected area and deep-abdominal breathing techniques to increase
lymph circulation. Because lymphedema patients are more prone to infection, treatment also includes
extensive education on meticulous skin and nail care.
Rekha Singh, M.D., is a general surgeon at The Hospital of Central Connecticut. For information on
lymphedema therapy at the hospital, call (860) 224-5121