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Lymphland International Lymphedema Online
1. Tickets on-sale for Trinity Stylin Against Breast Cancer events - Friday, March 26, 2010, 3:12 PM -
Quad-Cities Online
Press release submitted by Trinity Regional Health System.
Tickets are now on-sale for the two 2010 Stylin' Against Breast Cancer events. The winner of the Roxanne
Kramer Award will be honored during the fifth annual Stylin' against Breast Cancer luncheon and fashion
show that features local breast cancer survivors modeling clothing from area stores, Thursday, April 22, at
the Quad-Cities Waterfront Convention Center in Bettendorf. One hundred percent of the proceeds from
this charitable fundraiser benefit local breast cancer survivors and promote education about breast cancer
and breast health.
Doors open at 11 a.m. with the luncheon beginning at 11:30 a.m. Trinity Health Foundation, in partnership
with Always a Woman, Midwest Hope and Healing, The American Cancer Society, the Trinity Cancer
Center and women who do not represent an organization but who are advocates of breast health and
survivors, are presenting the event. Tickets are $25 per person.
In addition to the luncheon, the group will again host a wine and cheese party from 6:30-8 p.m.,
Wednesday, April 21, also at the Quad-Cities Waterfront Convention Center. Proceeds also benefit area
breast cancer education and awareness projects. Tickets for the wine and cheese party are $15 per person.
To reserve tickets, call the Trinity Health Foundation at (563) 355-0746 or visit www.trinityhealthfoundation.
com.
About the Roxanne Kramer Award:The Roxanne Kramer Award is an annual honor to be given to an
outstanding individual(s), organization or business that has tirelessly contributed to the quality of life of breast
cancer survivors and which through deed, word and ongoing advocacy, has helped educate the community
about breast cancer and breast health. The award winner will be honored during the Stylin' Against Breast
Cancer luncheon and style show in April.
"This award honors the persons or entity that most closely exemplifies the standards of compassionate care,
integrity, courage and vigor set by Roxanne Kramer in her service to breast cancer survivors, their families
and the community," said Berlinda Tyler-Jamison, President of the Trinity Health Foundation.
Kramer, a breast cancer survivor herself, owns "Always a Woman" boutique in Moline that specializes in
wigs, head wear, specialty bras and fits breast prostheses for breast cancer survivors. She also co-founded
the Quad City Breast Cancer & Lymphedema Support Group, made up of almost 2,000 area women, and
devotes countless hours coordinating survivor models for and emceeing the style show fundraiser.
2. Lymphedema Depot Announces Spring Discounts - Saturday, March 27, 2010, 2:17 PM - PR-USA.
net (press release)
Lymphedema Depot Announces Spring Discounts
The discounts were announced to the professional lymphedema-care community. The information is also
available to the public on the Lymphedema Depot website at http://www.LymphedemaDepot.com.
“Our company was formed out of a sincere desire to help advance lymphedema care in Canada by
introducing new, quality products and by providing expert, professional but personal service to match,” said
company vice-president and clinical specialist John Mulligan. “We feel that offering discounts is a way we
can help introduce these life-changing products to a broader client base.”
Solaris products include the Solaris Tribute, a soft, quilted compression garment that is meant to be worn
overnight, providing a comfortable and effective treatment to the lymphedema patient while they sleep.
“We feel that the Solaris Tribute is a breakthrough product that directly improves the quality of life of the
lymphedema patient,” says Mulligan.
Lymphedema is a condition of chronic swelling of a limb or body part. It can be caused by damage to the
lymphatic system such as the removal of lymph nodes in diagnostic procedures for cancer patients, among
other causes.
Lymphedema patients are required to wear a compression garment on their affected limb during the day.
The standard treatment protocol also recommends wearing multilayer compression bandaging at night while
the patient is sleeping.
“Mastering the technique for self-application of multi-layer compression bandaging before going to bed each
night is difficult, tedious and possibly counter-productive. It is very difficult to do it correctly and safely. The
Solaris Tribute is a wonderful alternative to nighttime bandaging because it is custom made for each patient
and it slips on and off easily and quickly. It is very simple and strikingly effective in helping to manage your
lymphedema successfully while you sleep,” according to Mulligan.
Other Solaris lymphedema care products include the Caresia bandage liner, Swell Spot edema and fibrosis
reduction pads, and ReadyWrap inelastic medical binders for the legs. More information is available at http:
//www.LymphedemaDepot.com.
Lymphedema Depot is a Canadian company dedicated to bringing new options in lymphedema care
products to Canada. We are the exclusive Canadian distributor of the Solaris line of medical compression
garments for the management of lymphatic and venous edemas.
Lymphedema Depot and Solaris both strive for continuous improvement to make the management of
lymphedema less complex, more effective, and ultimately easier for patients.
3. Cancer patients can find Serenity - Thursday, March 25, 2010, 3:24 AM - The Desert Sun - by Maggie
Downs -
Are you an underinsured or uninsured woman who has had breast cancer? Then Serenity in Rancho Mirage
is looking for you.
The shop — which specializes in products for women with breast cancer — recently received funding to
provide some free products for women who need them.That includes lymphedema garments, breast
prosthesis and specialty bras.Grant money was provided from the Kommah Seray Inflammatory Breast
Cancer Foundation to pay for these items, which are usually not covered by insurance.Owner Dori LaLanne
is currently taking appointments for March 30. Call (760) 699-8685.Serenity is located at 35800 Bob
Hope Drive, Rancho Mirage.
4. A 'dream day' for a local cancer survivor - Thursday, March 25, 2010, 3:10 AM - Baltimore Sun - By
Jessica Anderson
Tamara Leak-Jones traded her green heels for rubber boots from the National Aquarium in Baltimore.
The Randallstown woman did not know she would be getting her feet wet next to the 28-year-old Atlantic
bottlenose dolphin named Chinook.
Leak-Jones, 33, started her day Wednesday at a BMW dealership in Towson, where she had been told she
would talk to reporters about her four-year battle with breast cancer. Instead, she was greeted by an
unexpected guest with other plans.
5. Rep. Kissell breaks ranks over health care - Monday, March 22, 2010, 9:50 PM - Richmond County
Daily Journal - by Philip D. Brown
A majority of the U.S. House of Representatives and Senate are now on the same page on health care
reform, and President Obama is expected to sign the bill he’s been waiting for since taking office.
The U.S. House of Representatives passed the Senate’s version of health care reform by seven votes
Sunday evening - 219-212 - meaning a Senate reconciliation vote is all that remains between health care
reform and the president’s signature. The bill needed 216 votes to pass.
The topic has been a hot-button issue throughout the country, but even more so in North Carolina’s Eighth
District where U.S. Rep. Larry Kissell broke ranks with the Democratic leadership to oppose the plan.
The move earned him support from some of the district’s more conservative voters, while raising the ire of
many in the liberal base that helped him in his consecutive campaigns against former-U.S. Rep. Robin Hayes.
Fayetteville activist Nancy Shakur even signed up to face Kissell in the May primary, citing his opposition to
the Democrats’ plan.
In a Monday statement, Kissell said he didn’t vote for the bill because of the nearly $500 billion in Medicare
cuts that will be needed over the next 10 years to pay for it.
“I promised to protect Medicare,” Kissell said. “While I believe we need health care reform and was proud
to be an original co-sponsor of the bill to end the anti-trust exemption for insurance companies, I gave my
word to the citizens of the Eighth District that I would protect Medicare ... I am a man of my word, and I
have kept my word to protect Medicare.”
Kissell pointed out that while he isn’t opposed to health care reform, he is opposed to doing it this way.
Aside from his bill to end anti-trust exemptions for health insurance companies, Kissell has also voted to
expand health insurance for children, introduced legislation that would require Medicare to offer coverage
for citizens with lymphedema, voted to repeal a payment reduction to physicians from Medicare and voted
to support home health care during this session of Congress.
Kissell was joined by North Carolina Democrats Mike McIntyre and Heath Shuler in opposing the bill. All
of North Carolina’s Republican delegation opposed it.
For Richmond County Democratic Party Chairman Antonio Blue, Sunday’s vote felt like a victory, and “a
good start.”
“I think it’s a very good thing, because people need health care,” Blue said. “Hopefully, we’ll work on
getting whatever needs to be fixed fixed, and people who need to be seen or need treatment can get it.”
Blue said he’d only had the opportunity to talk to a few county Democrats since the passage of the bill, but
there was a lot of support in the party heading up to the vote.
“I think the majority of the people were for health care reform,” Blue said. “There was a lot of support here
in the county, and just like anything else, there were some that were against it.”
Now that health care reform has passed all its major hurdles, the details of what it actually does should
become more clear.
In the lead up to the vote, advocacy groups on both sides of the coin spun the facts to support their own
positions.
According to the Associated Press, the nonpartisan Congressional Budget Office said the legislation will
extend coverage to 32 million Americans, ban insurers from denying coverage based on pre-existing
conditions and cut deficits by an estimated $138 billion in the next decade.
This would expand health coverage to 95 percent of everyone who is eligible under 65.
According to the leadership of the Richmond County Republican Party, that’s not all it will do.
“What many Americans don’t realize is that what happened last night was the Trojan Horse for the
government takeover of the country,” said Lee Butler, Richmond County Republican Party chairman. “The
problem is that on the Left, they’re hiding behind the slogan of health care reform. Everybody on both sides
of the aisle want health care reform, meaning they want health care to be affordable. But this bill is the
vehicle by which government will expand its control over our everyday lives.”
Butler said those who believe they will now “have free health care and live in a utopian society,” are in for a
rude awakening once doctors and nurses become government employees.
“They are going to be caught in the nuance, the technicality, the red tape that is government,” Butler said.
“And their everyday health care decisions will now be dictated by a government bureaucrat.”
He said he has one question for those who suggest the government won’t be involved in the health care
decisions of its citizens.
“Can you prove it with what’s written in the bill,” Butler asked. “Most people don’t know what’s in the bill,
and when you have (U.S. Speaker of the House) Nancy Pelosi saying point blank that you’ll see what’s in
the bill after we pass it, we know it’s a bad piece of legislation.”
The bill must now be reconciled in the Senate, then will move on to President Obama’s desk to be signed.
Staff Writer Philip D. Brown can be reached at (910) 997-3111 ext. 32, or by e-mail at
pbrown@yourdailyjournal.com.
6. Scavenger Hunt for a Good Cause - Friday, March 19, 2010, 1:22 PM - Newsday - By Joie Tyrrell
Bethpage High School senior Jordan Schessler twice exceeded her goal to raise funds for the education and
cure of Lymphedema. With the help of school social worker Christine Kennedy and 15 members of the
teaching staff, Jordan raised $2,000 for the National Lymphedema Network by hosting a schoolwide
scavenger hunt.
Approximately 85 students participated in the activity, during which they searched...
Tina, for the full article for this II would have to be a subscriber to Newsday and I do not subscribe to
things, ss, I copied as much of the article as I could, I guess the only way to do the rest of it would be if you
gave me your logon info to Newsday if you are a subscriber to it.
7. A celebration of women in the 111th Congress - Monday, March 15, 2010, 10:24 PM - Richmond
County Daily Journal - by Larry Kissell
In honor of all the women of the 8th Congressional district, and in celebration of the Women’s History
Month, I want to tell you a little bit about some of what I’ve done to address women’s issues in the 111th
Congress.
As your Congressman, I get the opportunity to meet remarkable people like Heather Ferguson, a Charlotte
mom fighting to help her three-year-old son, and others like him, to get critical treatment for lymphedema.
Heather struggled to get her health insurance to pay for the relatively-inexpensive treatment to help her son
live a normal life without the serious complications of untreated lymphedema. She knew if she didn’t do
something, she would be fighting with this issue her entire life. So she took the issue to her state
representative, another great woman, Tricia Cotham, and then, brought her issue to me. Together, we
introduced legislation to ensure Medicare covers treatment for lymphedema sufferers.
One of the largest groups of lymphedema sufferers are cancer patients. The condition can be caused by
cancer treatments that affect the lymphatic system. Breast cancer patients are especially susceptible to
lymphedema.
Breast cancer is the leading cause of cancer death in women ages 15 to 54. As we all know too well, one in
eight of all women will get breast cancer in her lifetime. Yet, more than 60 percent of breast cancer
occurrences are detected in early stages. If detected early, 96 percent of women are cancer-free after five
years. Breast cancer can strike at any age.
As we know, educating our daughters about early detection is one of the most critical things we can do. In
an effort to promote early detection, I have joined my colleagues in sponsoring a bill to increase breast
cancer awareness in young women and provide support for young women diagnosed with breast cancer.
I am putting an emphasis on holding insurance companies more accountable for minimum hospital stays for
breast cancer treatment. I have sponsored a bill to require minimum stays for mastectomies, lumpectomies
and lymph node dissections in the course of breast cancer treatment. It would also require coverage for
secondary consultations. Unfortunately, many rural medical facilities aren’t equipped with the necessary
mammogram systems. I have supported a bill to help address this need by expanding mobile mammography
vehicle access, to help bring the necessary technologies and treatment to those that need it.
This week, I proudly joined with my colleagues to support an appropriation for the Department of Defense
Peer-Reviewed Breast Cancer Research Program. I also voted to expand and improve health care services
from the Department of Veterans Affairs available to women veterans, especially those serving in Operation
Enduring Freedom and Operation Iraqi Freedom. Our brave female service members deserve to have their
needs taken into consideration when receiving medical treatment.
Back in January, I sponsored a resolution recognizing the importance of cervical health and the early
detection of cervical cancer. It was a resolution I was honored to sponsor. We are also working on diabetes
research, treatment and education as well as fighting Sickle Cell Disease. I am a strong supporter and
sponsor of H.R. 1032 which improves prevention, diagnosis and treatment of heart disease, stroke and
other cardiovascular diseases in women. Heart disease is the number one killer of women in our country. It
is vital that we continue to educate on ways to prevent heart disease in all of us.
Health issues are of course not the only issues important to women. One of the first bills I voted for was the
Lily Ledbetter Fair Pay Act. I was so proud to support this bill, which is designed to ensure equal pay for
equal work. It overturned a 2007 Supreme Court decision that made it more difficult for women and others
to pursue claims of pay discrimination. It is important to close the pay gap for women who work just as hard
as their male counterparts.
In November, I voted to modify the Small Business Act to improve women’s business centers. We need to
continue encouraging female entrepreneurs, who are helping to create the small businesses which are driving
our economic recovery.
I have been blessed in many ways during my life. Not the least of which is the four amazing women who help
shape my view of the world - my mother Virene, my wonderful wife Tina and my amazing daughters Jenny
and Aspen.
My 94-year-old mother is one of the strongest people I have ever met. She is a retired mathematics teacher
and instilled in me a deep sense of community. She inspired me to pursue a career in teaching and helped
give me the strength to run for Congress. My wife and daughters are my rock. These three generations of
Kissell women amaze me every day.
I hope you will take a moment this month to thank the women in your life for everything they do.
Congressman Larry Kissell (D-N.C. -8) offices include Rockingham: 230 East Franklin St., Rockingham,
NC 28379, Phone: 997-2070; Concord number (704) 786-1612; Fayetteville number (910) 920-2070;
Washington office: 512 Cannon House Office Building, Washington, DC 20515; phone (202) 225-3715.
Web site, kissell.house.gov.
8 (a). Demystifying Lymphedema - Wednesday, March 17, 2010, 12:57 PM - Orland Park Prairie -
Tina, for this one when I click on the link itself I only get a calendar, and when I click on the link that says
"See all stories on this topic" it goes to a page with an error message saying "No related articles were
found." I tried searching on the website too and did not find this article there.
8(b). New Treatment Relieves Arm Lymphedema After Breast Cancer - Wednesday, March 17, 2010, 12:
57 PM - About - News & Issues (blog) - By Pam Stephan
Sandi Johnson went for a routine mammogram and came out with a diagnosis of Inflammatory Breast
Cancer. She endured a range of treatments: chemotherapy, surgery, radiation. Sandi is dealing with bone
metastasis and the loss of her husband's job. She's also raising two sons and managing a gym. Refusing to
gripe (not much anyway) and still searching for hope and answers, she decided to work on her life and
health instead of giving in to despair.
She developed arm lymphedema soon after her first surgery, as a result of axillary lymph node dissection -
the removal of several underarm lymph nodes - a test for metastasis. Without the full number of lymph
nodes to process and clean lymphatic fluid, the lymph builds up near your surgery site and causes swelling.
Sometimes it's just in the upper arm, but Sandi's lymphedema extended clear down to her fingertips and was
very debilitating. This was so bad that it caused her some trouble with getting dressed and it actually caused
her pain. She had tried therapeutic massage, a pump, a compression sleeve, and special arm exercises.
Accustomed to being very fit, slim, and shapely, Sandi decided to try a new procedure which offered her
some hope for relief from lymphedema.
Lymph nodes make immune cells to help fight infection, and filter out bacteria or cancer. When nodes near
your ears or throat swell, you know that you've got an infection. We have lymph nodes throughout our
bodies and all of them work the same way. A new microsurgery technique takes lymph nodes from your
groin or abdomen and transplants them into your armpit area. Microsurgery is the same surgical specialty
used in free-flap breast reconstruction. Your surgeon will use a high-powered microscope to see the tiny
vessels which need to be connected with your existing lymph system. Once the transferred lymph nodes
begin functioning in your armpit, 90% of patients experience rapid relief from lymphedema symptoms. This
procedure is done by a plastic surgeon that specializes in microsurgery, and must be done in a facility with
the proper equipment. Choose a very experienced surgeon for your lymph node transplant, and ask to
speak with other patients who have had this surgery.
9. War declared on breast cancer - Tuesday, March 23, 2010, 8:01 PM - Arab News - by K.S.
RAMKUMAR -
JEDDAH: Breast cancer is one of the world’s most dreaded diseases and accounts for a majority of deaths
among women cancer patients all over the world. In light of this, local health experts, doctors and
educationists have launched a new campaign to raise awareness about it, showing people how to prevent
and treat it.
“In fact, breast cancer has entered a new era and an intensive campaign is continuing with the projects
undertaken at King Abdulaziz University (KAU),” said Dr. Samia Al-Amoudi, associate professor,
consultant obstetrician, gynecologist and head of Sheikh Mohammed Hussein Al-Amoudi Breast Cancer
Chair at KAU, in her presentation on Sunday.
Dr. Benjamin O. Anderson, chair and director of Breast Health Global Initiative (BHGI) and full member of
epidemiology at the public health sciences division of the Seattle-based Fred Hutchinson Cancer Research
Center, delivered a presentation on breast health.
“The key to breast cancer’s new era includes the various programs and projects undertaken at KAU,” said
Dr. Samia. The university’s education and training unit is involved in integrating the breast- health program
into the existing health-care system with the involvement of health-care providers and medical students.
A screening center with a mobile unit is in operation, she said, adding that with the cooperation of the
Ministry of Health a national program has also been launched with the involvement of a psychosocial support
group and a breast-counseling unit.
A long-term follow up program for survivors includes the establishment of a lymphedema clinic,
implementing an education program through postgraduate studies at KAU, oncology nursing and psycho-
social oncology programs, nutrition for cancer patients, and a research center with evidence-based studies.
Several key initiatives have been accomplished or have seen substantial progress. Faculty support is strong
and the dean and department chairs are committed, she said.
She added: “Let us commit ourselves to address the breast cancer issue for my daughter, your daughters
and every daughter in the world.”
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Ski for a Cure raises $40000 plus for cancer research - March 29, 2010 - Montreal Gazette by SUSAN
SCHWARTZ
Event in memory of Rob Lutterman
Shortly after Montrealer Rob Lutterman died of pancreatic cancer in 1999 at age 63, his family and a group
of friends created an annual ski event in his name to celebrate his passion for skiing and to raise money for
research into a cure for this deadly cancer: No effective treatment for cancer of the pancreas has yet been
found.
The Rob Lutterman Memorial Fund of the Cancer Research Society was created in his memory, with the
goal of promoting and funding pancreatic cancer research.
This year the 11th Annual Rob Lutterman Ski for a Cure day, held March 13 at Mont Sutton in the Eastern
Townships, raised more than $40,000 for the Cancer Research Society.
The second Cancer Research Society/Rob Lutterman Pancreatic Cancer Research Grant has been
awarded, to a team from McGill University. The three-year, $300,000 grant will go to Dr. Michel L.
Tremblay and his McGill University team, Dr. Bruno Gagnon and Dr. Neil McDonald. The first research
grant was awarded in 2007 to an Alberta researcher.
One reason that cancer of the pancreas has so poor a prognosis is that it is difficult to detect early, before it
has spread to other parts of the body. The metastatic process, as it is called, is especially aggressive in
pancreatic cancer.
Tremblay's team has collected a blood bank and urine samples from cancer patients to permit them to
identify early markers of pancreatic cancer, with a view toward improving survival.
The mission of the Canadian Cancer Research Society, a national not-for-profit organization founded in
1945, is to fund basic cancer research and to provide seed money for promising original ideas, projects and
researchers across Canada.
Tight 'n Bright, a club-themed event held March 12 at Club 3519 on St. Laurent Blvd., raised $6,000 for
the Lymphedema Association of Quebec. Guests were encouraged to wear - you guessed it - tight, bright,
wacky clothing.
Another goal of the event, in addition to fundraising, was to raise awareness about lymphedema - a
progressive disorder caused by damage to the body's lymphatic vessels; it can occur near the site where
lymph nodes have been damaged or removed. In severe cases, lymphedema causes unsightly swelling, most
often in limbs. It occurs most commonly as a result of cancer treatment; between 20 and 30 per cent of
people with breast cancer, for instance, are affected.
The Lymphedema Association of Quebec is a volunteer-run charity, based in Montreal; it relies on
donations to help people with lymphedema.
Visit www.infolympho.ca for more information.
Bengala, a charity dinner and party held Feb. 25 at the Parisian Laundry, raised $100,000 for Haitian relief.
About 180 people attended the dinner/auction portion, including Montreal mayor Gerald Tremblay and his
wife, Suzanne Tailleur; Lise Watier; Peter Svoboda, a former player with the Montreal Canadiens and
Quebec business leaders. About 400 people turned up later for a party which lasted into the wee hours.
The event was a fundraiser for MAÂT, an independent, not-for-profit organization founded in 2007 to
improve the quality of life and opportunities for young single women and their children. Main event partners
were Belvedere vodka, the Velvet Speakeasy, La Porte Rouge on Mount Royal Ave. E., Hype Energy
Drink and Boréale.MAÂT has been in Haiti for several months; following the Jan. 12 earthquake, the
kindergarten and training centre for young women it was funding became a shelter for orphaned children.
For more information, go to www.maatworld.org.
Brenda Fahey-DeJean, a Grade 6 teacher at Wilder Penfield Elementary School, says the best thing about
fundraising efforts for Haiti relief by the 72 Grade 6 students at the Dollard des Ormeaux school was that
they were a result of the kids' own interest and initiative. "In teaching, we do not always see the results of the
seeds we have planted," she wrote in an email. "The school community at Wilder has a culture of generosity
and has often supported various causes; sometimes we answer to a specific situation and sometimes it has
been an ongoing commitment."
The school, part of the Lester B. Pearson School Board, holds fundraising days called Wilder Days; this
time, the Grade 6 students chose four themes for days dedicated to raising money for Haiti relief: on Bubble
Gum Day, for instance, students brought 25 cents to be able to chew bubble gum in class. On Extreme Hair
Day, they paid 50 cents to curl, colour or otherwise decorate their hair for the day.
On Feb. 12, Wear Canada Day, held in honour of the opening of the Olympics, children were encouraged
to wear red and white or anything representing Canada and donate $1. For the fourth Wilder Day, Wear the
Colours of Haiti's Flag Day, students donated $2 apiece.
The children raised a total of $2,444.95. Much of that amount, $1,600, will be matched by a federal
government program that was in place until Feb. 12.
"We are very proud of the actions of our sixth graders," Fahey-DeJean wrote. "They saw a problem and
took an action. If we have young people who are paying attention to the plight of their community, both local
and global, and doing something about it, we feel that true education has taken place - and that bodes well
for the future."
By mid-March, English Montreal School Board schools and centres had raised close to $108,750 for Haiti
relief. The EMSB has decided not to publicize their totals individually, said EMSB Chairman Angela
Mancini, so as not to give the impression the schools were competing with each other.
Westmount High School Principal Michael Cristofaro said in a message to his students: "One of the greatest
acts of charity is to give without expectation, without promise of something in return and with the notion that
our giving will assist a human being less fortunate than ourselves. Perhaps some of you gave up a snack at
recess or a drink at the depanneur and instead gave that loonie or toonie to a greater good. Because of your
actions you have put rice into empty bowls, water in thirsty mouths, and blankets around shivering children."
Funds are being directed to the Canadian Red Cross Society, World Vision, UNICEF, Canada Care, New
Missions, Oxfam and the Centre canadien d'études et de coopération internationale.
Among many highlights of the EMSB efforts: Nesbitt Elementary School in Rosemount has decided to assist
families from Haiti who have settled in Montreal following the earthquake and need basic items to start a
new home. Each grade level, from kindergarten to Grade 6, will adopt one family each and determine their
needs.
Michelangelo Elementary School in Rivière-des-Prairies held a drum-a-thon: students participated in a
continuous drum circle through the school day. "Haiti took a beating and we are beating for Haiti," was the
slogan used.
Staff and students of Haitian background at John F. Kennedy High School in St. Michel manned a donation
table during two lunch periods and showed images of the devastation; money was also raised through
classroom collections and a dress-down day.
Also in St. Michel, Perspectives Alternative High School students collected funds the day after the
earthquake and walked them over to the Haitian Community Centre a few doors away.
Honoré-Mercier Elementary School in St. Léonard held a Pennies for Haiti program involving students in
Grades 1 through 6. Kindergarten students held a Hearts for Haiti campaign: they designed magnetic hearts
by colouring, gluing and painting them, then took them home to family or gave them to friends, with a letter
explaining the project.
applause@thegazette.canwest.com
The Montreal Gazette
Read more: http://www.montrealgazette.com/health/Cure+raises+plus+cancer+research/2738001/story.
html#ixzz0jbSl0h1Z 2. Free Post-Surgery Breast Cancer Garments - March 29, 2010 - KPSP Local 2
News -
Breast cancer surivors who are under-insured or uninsured can schedule an appointment to get free post-
surgery garments Tuesday.On March 30, 2010 from 10:00 a.m. to 3:00 p.m., the Kommah Seray
Inflammatory Breast Cancer Foundation (KSIBCF) is partnering with Serenity: A Fitting Place for Women,
to offer free Mastectomy Bras, Prosthesis, Lymphedema Sleeves, and Gauntlets for the uninsured, Medi-
Cal, Medi-Care, and underinsured residents in the desert.
Serenity is located at 35-800 Bob Hope Drive, Suite 245 in Rancho Mirage.
"As a survivor, I understand firsthand how expensive these garments could be for survivors," said Kommah
McDowell, Executive Director of KSIBCF.
Unfortunately, for the community we serve, these garments are more of a privilege, and that shouldn't be.
No one should have to walk around feeling uncomfortable just because they had or have breast cancer,"
said McDowell.
Interested people are encouraged to make an appointment. Call (760) 699-8685 to schedule an
appointment for Tuesday.
=======================
Eema treatment demonstrated - Victoria Times Colonist - Thursday, March 4, 2010 -
A special demonstration event for those needing treatment for lymphedema and other chronic edemas,
caused by cancer surgery and other conditions, will be held tomorrow from 12:20 to 5:30 p.m. at the Emily
Carr Branch of the Greater Victoria Library, 3500 Blanshard St.
During this free presentation, compression garments will be shown and their use demonstrated by garment
fitters. Everyone is welcome including therapists, medical professionals and patients. Experts will also be on
hand to answer questions. For more information call 905-687-8500.
Yahoo! AlertsTaking action to better their own health - Parksville Qualicum Beach News Mon, 01 Mar
2010 - By Auren Ruvinsky Parksville’s Lynn Holloway is one of the founders of the BC Lymphedema
Association and suffers with the condition (below).
Sufferers of lymphedema growing grass roots awareness of their condition and their hopes
People suffering with lymphedema don’t have a lot of hope treatment will be covered by the medicare
system any time soon, so they are pushing for grassroots awareness, education and support.
Parksville’s Lynn Holloway has suffered with the debilitating condition since she survived her second battle
with cancer in 2002.
Lymphedema is not the best-known medical condition, despite the fact that it afflicts 20 to 40 per cent of
people who survive cancer in the breast or groin areas.
“It effects every person differently depending on the level and location of the lymph system destruction from
radiation and surgery,” Holloway said.
She explained damage to the lymph system causes secondary lymphedema, while some people are born
with what is called primary lymphedema.
It occurs when the lymphatic system doesn’t function properly, causing protein and enzyme fluids to collect
in the limbs.
The often dramatically swollen limbs can become painful and difficult to move and can lead to severe
infections and other complications requiring hospitalization.
While cancer treatments are the most common cause it can also come from any physical trauma to the areas
including burns and surgery.
When cancer returned to Holloway’s groin area in 2002, after surviving a 1995 bout with it, doctors told her
lymphedema was a strong possibility after treatment, but she didn’t think much of it.
“I could live with swollen ankles if I could be cancer free,” she said, but the condition that followed has also
changed her life.
There is no cure, but she said it can be managed with special massages to move the fluids around manually
and with expensive compression garments.
“Treatment can be extremely expensive and isn’t often covered by health plans,” she said.
“Compression garments have to be replaced every four to six months at a cost of $450 to $1,000 at a time.”
She also said it would be useful to get the massages daily, but at $70 or more per treatment, most people
are lucky if they can afford one a week. They also require extensive treatment before they get re-fitted for
the compression garments at least once a year.
To help support the unknown number of people suffering with lymphedema Holloway was one of the
founding members of the provincial association four years ago, along with some of the limited number of
experts in the province including a registered massage therapist and doctor.
Because lymphedema is an effect that comes after cancer has been treated, it isn’t covered by the
considerable support services that exist for people suffering with things like breast cancer, she pointed out.
She said that while they do need more government support, their more immediate hope is developing public
awareness and moral support to help cut down on some of the reclusion and depression they often suffer.
“Our best hope is people living with the condition are educated about it and when they need psychological
or social support they can reach out to us and find someone who feels their pain.”
The association is also developing a system of best practices for medical professionals and hoping to
develop some better estimates of the number of people suffering with it in the province.
To raise awareness, Saturday, March 6 has been declared Lymphedema Awareness Day in many B.C.
communities, including Parksville, and the provincial association is holding their annual general meeting and
an educational event in Burnaby.
Holloway thanked the City of Parksville and Parksville Pharmasave for their ongoing support of the
association.
The association is staging Tuesdays with Morrie as a fundraiser, featuring award-winning 90-year-young
Antony Holland from Gabriola Island.
There are only two shows, at 2 and 7 p.m. on Friday, April 11 at Knox United Church, with tickets $20 at
the door or $15 in advance, available from the association.
For more information visit www.bclymph.org or call Holloway at 1-866-991-2252 or e-mail mlholloway@.
shaw.caw.ca.
MHNCS: Lymphedema Common in Head and Neck Cancer - MedPage Today - Tuesday, March 2, 2010
- By Charles Bankhead
PHOENIX -- Treatment of head and neck cancer causes potentially severe lymphedema, which responds
to complete decongestive therapy in most cases, a retrospective chart review showed.
The most severe lymphedema occurred in patients treated with surgery and radiation therapy, followed by
definitive surgery alone. Complete decongestive therapy led to clinical improvement in a majority of the
patients, including 83% of those treated with surgery alone.
"Lymphedema is vastly under-recognized and under-reported in patients with head and neck cancer," Jan S.
Lewin, PhD, of M.D. Anderson Cancer Center in Houston, said in an interview at the Multidisciplinary
Head and Neck Cancer Symposium.
"The lymphedema can be just as severe as what's seen after treatment of breast and other types of cancer.
Lymphedema in patients with head and neck cancer can be terribly disfiguring and cause severe functional
problems."
"Complete decongestive therapy leads to clinically significant improvement in most patients, whether it's
performed in a clinic or at home," she added.
Available evidence suggests that fewer than half of patients with head and neck cancer develop lymphedema
after treatment. However, cosmetic and functional sequelae can be severe, including problems with
speaking, eating, airway obstruction, and drooling, as well as self-image.
As compared with lymphedema in other cancers, a paucity of information exists about the presentation and
treatment of the condition in patients with head and neck cancer, said Lewin.
In an effort to add to the information base, she and her colleagues retrospectively reviewed records of
patients referred for evaluation of lymphedema following treatment of head and neck cancer.
Data collection included patient and disease characteristics, site and severity of lymphedema, and the type of
complete decongestive therapy each patient received (outpatient or at home).
Investigators stratified patients by type of cancer treatment and decongestive therapy regimen. Outcomes
were assessed by clinical examination, and improvement was defined as a reduction in lymphedema stage,
resolution of the lymphedema site, or =2% decrease in total surface area affected.
Complete decongestive therapy conformed to recognized standards and consisted of manual lymphatic
drainage massage, use of compression bandages, physical exercise, and a skin-care regimen.
Outpatient therapy was performed by a certified therapist and consisted of an intensive phase of three to five
sessions weekly for two to four weeks, followed by maintenance home therapy. Patients who were unwilling
or unable to complete the outpatient regimen were assigned to a self-administered home-based regimen.
The study population consisted of 270 patients, 30% of whom were treated with definitive external beam
radiation therapy, 9% with surgery alone, and 61% with surgery and radiation therapy.
The neck was the most common site of lymphedema (89%), followed by the submental (84%), facial
(32%), and intraoral (6%) areas. Some patients had more than one affected area.
Lewin reported that 53% of the patients had moderately severe lymphedema, defined as M.D. Anderson
stage 1b (reversible, pitting edema). Combined therapy resulted in significantly worse lymphedema (P=0.
001).
Overall, 161 (60%) patients reported functional problems related to lymphedema, including difficulty
swallowing in 80 patients (30%) and speech problems in 31 (11%).
Outcome data were available for 152 patients who received complete decongestive therapy and returned
for follow-up evaluation (an average of 10.7 weeks after initial evaluation).
Lewin and colleagues found that 54% (82 of 152) of patients had improved clinically at follow-up (15 of 20
who had outpatient therapy and 67 of 132 who had home-based therapy).
Improvement was observed in 83% of patients treated by surgery alone, 55% of patients treated with
definitive radiation therapy, and 49% of patients treated with surgery and radiation.
Evaluation of functional outcomes is ongoing, said Lewin.
Lewin and her co-investigators had no disclosures Making sure those with breast cancer get help -
9NEWS.com - Tuesday, March 9, 2010 - DENVER - When Wendy Newman was 27 years old, she was
starting her own business and trying to save some money. Since she was healthy and had no family history of
serious illnesses, she decided to let her health insurance lapse. Then, she found a lump in her breast.Newman
learned she had stage III breast cancer. With the help of two tenacious doctors Newman was able to get
treatment through grant programs for the uninsured.
Still, she became aware of the many women and men who may not meet the specific requirements for this
type of treatment.
Newman is the founder of the Breast and Women's Reproductive Cancers Fund. In 2008, the BWRC Fund
was created to expand cancer education, screening and treatment throughout Colorado.
Competitive grants are awarded to organizations across the state to increase survival rates and improve the
quality of life of Coloradans affected by these cancers. Two past grantees include the Klose Lymphedema
Care Center and the Colorado Ovarian Cancer Alliance.
Every year in Colorado, nearly 1,000 women are diagnosed with reproductive cancers and more than 2,800
men and women are diagnosed with breast cancer. An estimated 17 percent of Coloradans are uninsured
and many others have inadequate insurance coverage.
Last month, with the help of the BWRC Fund, breast cancer survivor Sharon Farnsworth acquired a
compression garment to control her lymphedema, a chronic and sometimes debilitating condition
characterized by swelling in the arms or chest, affecting approximately 20 percent of breast and other
reproductive cancer patients that have undergone surgery or radiation treatment.
Farnsworth was diagnosed with stage III breast cancer when she was 33 years old and after undergoing a
radical mastectomy, she started experiencing signs of lymphedema. In order to control the swelling in her
arm and hand, Farnsworth needs to wear compression garments 24 hours a day.
The BWRC Fund has also helped expand cancer education programs across the state. Survivors Teaching
Students, a program sponsored by the Colorado Ovarian Cancer Alliance (COCA), brings ovarian cancer
survivors into the lives of medical students with the goal of helping them become more sensitive to the
symptoms of and risk factors for ovarian cancer.
"The majority of ovarian cancer cases are not diagnosed until the disease is advanced and women's survival
is compromised, so the key to treatment is early diagnosis," said Lucy Trujillo, COCA executive director
and ovarian cancer survivor. "We have the unique opportunity to connect with health practitioners, and with
the help of the Breast & Women's Reproductive Cancers Fund, we've been able to expand the program
statewide."
In 2009, the BWRC Fund awarded more than $24,000 in grants. Colorado tax filers may have any amount
of their refund check directed toward the BWRC Fund.
Colorado taxpayers can show their support in the fight against breast cancer and other reproductive cancers
by checking off line 38 on their 2009 income tax forms. All donations will go toward the Breast and
Women's Reproductive Cancers (BWRC) Fund.
For more information about the BWRC Fund, visit www.coloradocancercheckoff.org or contact Wendy
Newman, BWRC Fund project director, at info@coloradocancercheckoff.org or 1-800-511-4998.
To learn more about lymphedema, visit www.lymphnet.org.
To learn more about the Colorado Ovarian Cancer Alliance, visit www.colo-ovariancancer.org.
(KUSA-TV © 2010 Multimedia Holdings Corporation)
What Is Lymphedema? What Causes Lymphedema? - Medical News Today - Tuesday, March 2, 2010 -
by Christian Nordqvist
Lymphedema, lymphoedema, or lymphatic obstruction is a chronic (long-term) condition in which excess
fluid (lymph) collects in tissues causing edema (swelling). Lymphedema can be very debilitating. In short,
lymphedema is edema due to lymphatic fluid; a blockage of the lymphatic system. The lymphatic system is
an important part of our immune and circulatory systems.
Lymphedema commonly affects one of the arms or legs. In some cases, both arms or both legs may be
affected. Some patients may experience swelling in the head, genitals or chest. It is often a consequence of
surgically removing the lymph nodes in the armpit (axilla) or groin, or their damage caused by radiotherapy.
The normal drainage of lymphatic fluid is faulty. Lymphedema can also be caused by a tumor which presses
on lymphatic vessels.
According to Medilexicon's medical dictionary:
Lymphedema is "Swelling (especially in subcutaneous tissues) as a result of obstruction of lymphatic vessels
or lymph nodes and the accumulation of large amounts of lymph in the affected region."
Lymphedema is incurable. However, with diligent care it can be controlled.
What is the lymphatic system?
The lymphatic system consists of the tissues and organs that produce and store cells that fight disease and
infection. They include the bone marrow, thymus, lymph nodes and spleen, as well as the channels that carry
lymph.
Most of us know about the circulation system that pumps blood from the heart to the rest of the body. A
significant number of individuals, however, are not aware that the body also has a second circulation system
- the lymphatic system.
There is a series of vessels and glands (lymph nodes) that comprise the lymphatic system. They are spread
throughout the body, in a similar way to blood vessels.
The lymphatic system has three main functions:
•Fighting infection - the lymphatic system transports a watery, clear fluid full of lymphocytes. Lymphocytes
are infection-fighting cells. The white fluid is known as lymph.
•Draining excess fluid - after blood has circulated through tissues it leaves fluids and proteins behind; these
are waste products. The excess fluid is drained through tiny capillaries and into the lymphatic system. After
filtering out bacteria, viruses and other undesirable substances or organisms, the clean fluid is then returned
to the blood. This filtering is done by the lymphatic system.
•Lipid (fat) absorption - the lymphatic system also absorbs lipids from the intestine and transports them to
the blood.
A disruption to the lymphatic system can eventually undermine its ability to drain fluid properly, resulting in
excess fluid (swelling) in parts of the body. Patients with lymphoma have a higher risk of infection
complications because their lymphocytes cannot reach parts of the body where swelling occurs. Cellulitis, a
type of bacterial skin infection, is a common infection for patients with lymphedema.
There are two main types of lymphedema:
Primary lymphedema - often called congenital lymphedema. The lymphedema is evident at birth or shortly
after puberty. It is caused by a congenital malformation (faulty genes) of the lymphatic system. This type of
lymphedema is rare; affecting approximately 1 in every 10,000 people.
Secondary lymphedema - the lymphedema occurs as a result of something else, such as an infection, injury,
trauma or cancer which affects the lymphatic system. Lymphedema may be a side effect of cancer treatment,
such as radiotherapy or the removal of some lymph nodes, which may damage the lymphatic system. This
type of lymphedema is more common. According to the National Health Service, UK, approximately
100,000 British people have secondary lymphedema. More women are affected than men.
What are the signs and symptoms of lymphedema?
A symptom is something the patient feels and reports, while a sign is something other people, such as the
doctor detect. For example, pain may be a symptom while a rash may be a sign. Lymphedema signs and
symptoms include:
•Swelling of either part or the whole leg or arm, may include the fingers or toes. Some patients experience
just slight changes in limb size, while others have severe swelling. Some people may find it difficult to wear
jewelry, watches or fit into clothes or shoes.
•Sometimes the head or neck may swell
•The arm or leg feels heavy
•The arm or leg feels tight
•The range of motion of the limb is restricted (affected limb loses some of its mobility)
•Discomfort in the affected limb
•The affected limb may ache
•There may be a tingling sensation in the affected limb, much like pins and needles
•Recurring skin infections in the affected limb
•The skin may thicken and harden on the affected limb; blisters or wart-like growths may develop on the skin
•Severe fatigue
What are the causes of lymphedema?
Causes of primary lymphedema - experts say it is caused by mutations in some of the genes that are
involved in the development of the lymphatic system. These faulty genes interfere with the lymphatic system's
development, undermining its ability to drain fluid properly.
A significant number of patients with primary lymphedema have a close relative who has/had the same
condition. However, this does not necessarily mean that the offspring of somebody with lymphedema will
develop the disorder themselves. Primary lymphedema is more common in females than males.
Causes of secondary lymphedema - this type of lymphedema has several possible causes, including:
•Cancer surgery - cancer may spread through the body through the lymphatic system. Sometimes surgeons
remove lymph nodes to stop the spread. There is a risk the lymphatic system may be affected, leading to
lymphedema. Surgery for breast cancer, skin cancer, vulval cancer, cervical cancer, some other female
cancers, bladder cancer and penile cancer carry a significant risk of subsequent lymphedema.
•Radiation therapy (radiotherapy) - the use of radiation to destroy cancerous tissue can sometimes damage
nearby healthy tissue as well. When radiotherapy is used to destroy cancerous cells that are or may be
present in the lymph nodes or vessels, there is a risk of node/vessel damage, with subsequent damage to the
lymphatic system, resulting in lymphedema.
•Infections - severe cellulitis infection, a type of skin infection, may damage tissue around the lymph nodes or
vessels. This may lead to scarring, increasing the risk of lymphedema. Some parasite infections which occur
in tropical parts of the world can also increase the risk of lymphedema.
•Inflammatory conditions - some conditions which cause tissue to swell (become inflamed) may permanently
damage the lymphatic system, such as rheumatoid arthritis, dermatitis or eczema.
•Cardiovascular diseases - these are diseases that affect blood flow. Some patients with cardiovascular
diseases have a higher risk of developing lymphedema, such as those with DVT (deep vein thrombosis),
venous leg ulcers and varicose veins (very rare).
•Injury and trauma - more rarely, severe skin burns or anything which results in excessive scarring may raise
the risk of developing lymphedema.
Diagnosing lymphedema
Patients who undergo cancer treatment are commonly offered lymphedema assessment as part of their after-
care treatment program.
When diagnosing lymphedema the doctor may try to rule out other possible causes of swelling, including a
blood clot or an infection that does not involve the lymph nodes. If the patient is at risk of lymphedema, e.g.
recently had cancer surgery or treatment involving the lymph nodes, the doctor may diagnose lymphedema
based on the signs and symptoms.
If there isn't an obvious cause for the lymphedema, some imaging tests may be ordered to find out what is
causing the swelling, and other signs and symptoms. The following imaging techniques may be used to have a
better look at the lymphatic system:
•MRI (magnetic resonance imaging) scan - this device uses a magnetic field and radio waves to create
detailed 3-D images of the inside of the body. The doctor can get a better look at the limb tissues, and
possibly identify characteristics of lymphedema. MRI and some other scans are also useful in ruling out
lipedemia; another condition in which the limbs swell due to abnormal fat deposits.
•CT (computerized tomography) scan - this device employs tomography. Tomography is the process of
generating a two-dimensional image of a slice or section through a 3-dimensional object (a tomogram). The
medical device (the machine) is called a CTG scanner; it is a large machine and uses X-rays. This type of
scan can reveal areas in the lymphatic system that may be blocked.
•Doppler ultrasound scan - this is a variation of the conventional ultrasound. This type of scan may help
identify obstructions, if any are present.
•Lymphoscintigraphy - a radioactive dye is injected into the lymphatic system. This dye shows up in a
special scanner, which can follow the dye's movement through the lymphatic system and identify any
blockages.
Determining the extent and severity of the swelling:
•Water displacement method - the patient places the affected limb in water. The amount of water displaced
is measured. The doctor then knows what the volume of the limb is.
•Perometery - this is a device that uses infra-red light to measure the volume of the affected body part.
•Bioimpedance test - this test can determine how much fluid there is in tissue. Electrodes are placed in
different parts of the patient's body. The electrodes release a small electrical charge, which is measured using
a hand-held device. The procedure is painless.
What are the treatment options for lymphedema?
Lymphedema is incurable. However, there is treatment which can help reduce swelling and pain.
Complex Decongestive Therapy (CDT) - this is known as the recommended treatment for lymphedema and
has four components (listed after the end of this paragraph). It starts with an intensive therapy phase, during
which the patient receives daily treatment and training which may be six weeks long. This is followed by the
maintenance phase, when the patient is encouraged to take over their own care using techniques that have
been taught to them. This will be followed by regular six monthly follow-up meetings.
The four CDT components are:
•MLD (manual lymphatic drainage) - the lymphedema therapist uses special massage techniques to move
fluid into working lymph nodes, where they are drained. It is crucial that this is done by a fully trained
lymphedema therapist, and not just a regular masseur. The therapist needs a thorough knowledge of the
lymphatic system for this to work.
The lymphedema therapist also teaches several massage techniques that can be used during the maintenance
phase.
Patients who have a history of heart disease, deep vein thrombosis or kidney disease may not be suitable for
MLD.
•MLLB (multilayer lymphedema bandaging) - muscles surrounding lymph vessels and nodes move the fluid
through the lymphatic system. Unlike the circulation of blood there is no central pump (heart). The aim here
of bandages and compression garments is to support the muscles and encourage them to move fluid out of
the affected body part. MMLB is utilized after MLD to stop fluid from building up again in the limbs.
Patients will also be taught how to apply their own bandages and compression garments correctly so that
MLLB can continue during the maintenance period.
Compression garments may include long sleeves or stockings which compress to encourage the flow of the
lymph fluid out of the affected limb. Even when swelling is reduced, the doctor may recommend that the
patient continues wearing them to prevent recurrence of swelling. It is important to get garments that fit
properly.
•Remedial exercises - these are light exercise aimed at encouraging movement of the lymph fluid out of the
limb. The exercises involve moving the affected limb. It is important that the exercise not be strenuous or
tiring. They should focus on gentle muscle contractions. Each patient is given his/her own personalized
exercise plan. This is done with a fully qualified physical therapist (UK: physiotherapist).
•Skin care - good skin care reduces the risks of skin infections, such as cellulitis. Patients are taught how to
keep their skin clean, and also how to check for cuts, abrasions and signs of infection.
Surgery - surgery has historically had disappointing results, compared to non-surgical therapies for
lymphedema. However, a new surgical technique using liposuction has proved more successful. It removes
fat form the affected limb, resulting in less swelling. Patients have to wear a compression garment for at least
one year after the procedure is done.
NICE (National Institute for Clinical Excellence), the body that approves therapies for the National Health
Service (NHS), UK, says this procedure is acceptable in terms of clinical safety, but adds there is no
evidence about its long term effectiveness.
What are the possible complications of lymphedema?
Skin infections - repeated episodes of cellulitis are common in patients with lymphedema. Cellulitis is a
bacterial infection of the dermis - the deep layer of skin - as well as the subcutaneous tissues (fat and soft
tissue layer) that are under the skin. Cellulitis is treated with antibiotics. However, if the bacteria manage to
get into the bloodstream the patient has a higher risk of developing septicemia (sepsis). Patients who are
particularly vulnerable to repeated episodes of cellulitis may be given an emergency supply of antibiotics, to
be taken as soon as signs and symptoms appear.
Lymphangitis - this is an infection of the lymph vessels, usually caused by Streptococcus, a type of bacteria.
If left untreated it can spread to the skin, causing cellulitis, or into the bloodstream, causing septicemia
(sepsis).
Psychological effects - lymphedema can affect the way the patient looks, which in turn can have a
psychological impact, especially among patients who have been coping with the stresses of living with
cancer. Some patients with lymphedema have a higher risk of developing depression.
Patients who notice signs and symptoms of depression, such as feeling particularly down, or no longer
enjoying things in a way they used to, should tell their doctor immediately. Depression can usually be treated
effectively.
Prevention
Looking after your skin - the affected limb is more vulnerable to skin infections as the supply of lymphocytes
(which fight infection) is lower than it should be. If the patient takes measures to minimize the risk of cuts and
grazes to the skin, his/her risk of subsequent infections may be significantly reduced. The following measures
may help:
•After cancer treatment avoid heavy activity with that limb; rest it while recovering.
•Avoid sun beds, steam rooms and saunas
•Do not let the affected area be used for infections or blood pressure readings. If possible, avoid medical
procedures on the affected limb
•Do not take very hot baths or showers
•Do not wear tight fitting clothes
•Do not wear tight fitting jewelry
•Don't go barefoot outdoors
•Keep a watch for changes or breaks in your skin
•Keep your skin supple by moisturizing it every day (ask your doctor about this)
•Make sure your footwear fits properly
•The risk of cuts with an electric razor is much lower
•To prevent developing athlete's foot use an anti-fungal foot powder
•Use a thimble when you sew
•Use gloves when gardening
•Use nail clippers to keep your nails short, or see a chiropodist for foot and nail care
•When going outside in an area where they may be insects, use insect repellent
•When out in the sun use a high factor sun block
•When you have a cut, treat it straight away with an antiseptic cream. And keep the area clean
•Whenever you can, raise the affected limb above the level of your heart
Diet and bodyweight - the heavier a patient with lymphedema is the higher the strain is on the areas that are
swollen. A healthy diet, aiming for an ideal body weight, may help alleviate the signs and symptoms of
lymphedema. Some patients report that spicy foods make swellings worse.
==========================
LYMPHATIC SYSTEM: Regulator of lymph vessel growth uncovered
In addition to our network of blood vessels, humans have a network of vessels known as lymphatic vessels.
These vessels have a role in many processes in the body, including regulating fluid levels in tissues and
immune surveillance. Although dysfunction in the lymphatic system contributes to human diseases such as the
spread of cancer to other sites and lymphademas (localized fluid retention and tissue swelling), little is known
about the molecules that regulate the formation of new lymphatic vessels, a process known as
lymphangiogenesis. However, a team of researchers, led by Sophia Tsai and Ming-Jer Tsai, at Baylor
College of Medicine, Houston, has now identified a role for the gene regulatory protein COUP-TFII in
lymphangiogenesis in mouse embryonic development and tumor lymphangiogenesis in adult mice. The
authors therefore suggest that COUP-TFII might be an effective molecular target in pro-lymphangiogenic
treatment of lymphedemas or in antilymphangiogenic therapy targeting tumor spreading via the lymphatic
vessels.
TITLE: Direct transcriptional regulation of neuropilin-2 by COUP-TFII modulates multiple steps in murine
lymphatic vessel development
Source:
Karen Honey
Journal of Clinical Investigation
------------------------------
Ski for a Cure raises $40000 plus for cancer research - March 29, 2010 - Montreal Gazette by SUSAN
SCHWARTZ
Event in memory of Rob Lutterman
Shortly after Montrealer Rob Lutterman died of pancreatic cancer in 1999 at age 63, his family and a group
of friends created an annual ski event in his name to celebrate his passion for skiing and to raise money for
research into a cure for this deadly cancer: No effective treatment for cancer of the pancreas has yet been
found.
The Rob Lutterman Memorial Fund of the Cancer Research Society was created in his memory, with the
goal of promoting and funding pancreatic cancer research.
This year the 11th Annual Rob Lutterman Ski for a Cure day, held March 13 at Mont Sutton in the Eastern
Townships, raised more than $40,000 for the Cancer Research Society.
The second Cancer Research Society/Rob Lutterman Pancreatic Cancer Research Grant has been
awarded, to a team from McGill University. The three-year, $300,000 grant will go to Dr. Michel L.
Tremblay and his McGill University team, Dr. Bruno Gagnon and Dr. Neil McDonald. The first research
grant was awarded in 2007 to an Alberta researcher.
One reason that cancer of the pancreas has so poor a prognosis is that it is difficult to detect early, before it
has spread to other parts of the body. The metastatic process, as it is called, is especially aggressive in
pancreatic cancer.
Tremblay's team has collected a blood bank and urine samples from cancer patients to permit them to
identify early markers of pancreatic cancer, with a view toward improving survival.
The mission of the Canadian Cancer Research Society, a national not-for-profit organization founded in
1945, is to fund basic cancer research and to provide seed money for promising original ideas, projects and
researchers across Canada.
Tight 'n Bright, a club-themed event held March 12 at Club 3519 on St. Laurent Blvd., raised $6,000 for
the Lymphedema Association of Quebec. Guests were encouraged to wear - you guessed it - tight, bright,
wacky clothing.
Another goal of the event, in addition to fundraising, was to raise awareness about lymphedema - a
progressive disorder caused by damage to the body's lymphatic vessels; it can occur near the site where
lymph nodes have been damaged or removed. In severe cases, lymphedema causes unsightly swelling, most
often in limbs. It occurs most commonly as a result of cancer treatment; between 20 and 30 per cent of
people with breast cancer, for instance, are affected.
The Lymphedema Association of Quebec is a volunteer-run charity, based in Montreal; it relies on
donations to help people with lymphedema.
Visit www.infolympho.ca for more information.
Bengala, a charity dinner and party held Feb. 25 at the Parisian Laundry, raised $100,000 for Haitian relief.
About 180 people attended the dinner/auction portion, including Montreal mayor Gerald Tremblay and his
wife, Suzanne Tailleur; Lise Watier; Peter Svoboda, a former player with the Montreal Canadiens and
Quebec business leaders. About 400 people turned up later for a party which lasted into the wee hours.
The event was a fundraiser for MAÂT, an independent, not-for-profit organization founded in 2007 to
improve the quality of life and opportunities for young single women and their children. Main event partners
were Belvedere vodka, the Velvet Speakeasy, La Porte Rouge on Mount Royal Ave. E., Hype Energy
Drink and Boréale.MAÂT has been in Haiti for several months; following the Jan. 12 earthquake, the
kindergarten and training centre for young women it was funding became a shelter for orphaned children.
For more information, go to www.maatworld.org.
Brenda Fahey-DeJean, a Grade 6 teacher at Wilder Penfield Elementary School, says the best thing about
fundraising efforts for Haiti relief by the 72 Grade 6 students at the Dollard des Ormeaux school was that
they were a result of the kids' own interest and initiative. "In teaching, we do not always see the results of the
seeds we have planted," she wrote in an email. "The school community at Wilder has a culture of generosity
and has often supported various causes; sometimes we answer to a specific situation and sometimes it has
been an ongoing commitment."
The school, part of the Lester B. Pearson School Board, holds fundraising days called Wilder Days; this
time, the Grade 6 students chose four themes for days dedicated to raising money for Haiti relief: on Bubble
Gum Day, for instance, students brought 25 cents to be able to chew bubble gum in class. On Extreme Hair
Day, they paid 50 cents to curl, colour or otherwise decorate their hair for the day.
On Feb. 12, Wear Canada Day, held in honour of the opening of the Olympics, children were encouraged
to wear red and white or anything representing Canada and donate $1. For the fourth Wilder Day, Wear the
Colours of Haiti's Flag Day, students donated $2 apiece.
The children raised a total of $2,444.95. Much of that amount, $1,600, will be matched by a federal
government program that was in place until Feb. 12.
"We are very proud of the actions of our sixth graders," Fahey-DeJean wrote. "They saw a problem and
took an action. If we have young people who are paying attention to the plight of their community, both local
and global, and doing something about it, we feel that true education has taken place - and that bodes well
for the future."
By mid-March, English Montreal School Board schools and centres had raised close to $108,750 for Haiti
relief. The EMSB has decided not to publicize their totals individually, said EMSB Chairman Angela
Mancini, so as not to give the impression the schools were competing with each other.
Westmount High School Principal Michael Cristofaro said in a message to his students: "One of the greatest
acts of charity is to give without expectation, without promise of something in return and with the notion that
our giving will assist a human being less fortunate than ourselves. Perhaps some of you gave up a snack at
recess or a drink at the depanneur and instead gave that loonie or toonie to a greater good. Because of your
actions you have put rice into empty bowls, water in thirsty mouths, and blankets around shivering children."
Funds are being directed to the Canadian Red Cross Society, World Vision, UNICEF, Canada Care, New
Missions, Oxfam and the Centre canadien d'études et de coopération internationale.
Among many highlights of the EMSB efforts: Nesbitt Elementary School in Rosemount has decided to assist
families from Haiti who have settled in Montreal following the earthquake and need basic items to start a
new home. Each grade level, from kindergarten to Grade 6, will adopt one family each and determine their
needs.
Michelangelo Elementary School in Rivière-des-Prairies held a drum-a-thon: students participated in a
continuous drum circle through the school day. "Haiti took a beating and we are beating for Haiti," was the
slogan used.
Staff and students of Haitian background at John F. Kennedy High School in St. Michel manned a donation
table during two lunch periods and showed images of the devastation; money was also raised through
classroom collections and a dress-down day.
Also in St. Michel, Perspectives Alternative High School students collected funds the day after the
earthquake and walked them over to the Haitian Community Centre a few doors away.
Honoré-Mercier Elementary School in St. Léonard held a Pennies for Haiti program involving students in
Grades 1 through 6. Kindergarten students held a Hearts for Haiti campaign: they designed magnetic hearts
by colouring, gluing and painting them, then took them home to family or gave them to friends, with a letter
explaining the project.
applause@thegazette.canwest.com
======================
ASCO GU: Extensive Node Dissection Key for High-Risk Penile Cancer - MedPage Today - Monday,
March 8, 2010 - By Crystal Phend
SAN FRANCISCO -- Thorough lymph node dissection improves survival in high-risk penile cancer but is
vastly underused, researchers said.
For high-grade tumors, excision of at least eight lymph nodes was associated with 86.4% higher multivariate-
adjusted odds of survival at five years than less complete dissection (P=0.002), according to Viraj A.
Master, MD, PhD, of Emory University in Atlanta, and colleagues.
However, only 18.0% of men with high-risk penile cancer received extensive inguinal lymphadenectomy in
the analysis of a national cancer registry database.
In fact, nearly three-quarters got no lymph node dissection at all, the investigators reported here at the
Genitourinary Cancers Symposium.
No American physician groups have guidelines for treatment of this relatively rare cancer, but textbooks
generally agree with European guidelines recommending that high-risk patients get modified or radical
lymphadenectomy, Master noted.
Fear of complications appears to undermine this apparent standard of care, which has the potential to be
curative for those harboring microscopic disease in their nodes, commented Nicholas J. Vogelzang, MD,
medical director of the Developmental Therapeutics Committee of US Oncology, who was not involved in
the study.
"When you have a rare disease and a sexually-charged disease like this, patients often don't think logically
and doctors are not always forceful," he told MedPage Today.
Complications affect up to about half of patients, according to some clinical series. Lymphedema can be a
lifelong consequence, leading to skin infections or ulceration, a poor cosmetic appearance, and need for
compression stockings.
But the rationale for the procedure is clear, since penile cancer metastasizes in an orderly fashion through
embolization into the lymphatic system, starting with inguinal nodes and spreading outward, Master
explained.
His group analyzed the Surveillance, Epidemiology and End Results (SEER) database of men with a single
primary penile tumor of grade 3 or pT2-4 diagnosed from 1988 through 2005.
Among the 593 men in this group, adequate lymph node dissection defined by 8 or more nodes removed
was second only to tumor grade as a predictor of five-year survival.
For grade 3 tumors, excision of at least eight lymph nodes was associated with 66.3% five-year survival
compared with 49.2% with less complete dissection (P=0.0100 for trend).
For grade pT2-4 tumors, eight or more lymph node dissection improved five-year survival to 70.2%
compared with 53.6% for less extensive lymphadenectomy (P=0.004).
Independent predictors of receiving any lymph node dissection included:
•Age under 65 (P<0.001)
•Being widowed or separated (P=0.002)
•Higher T-stage tumor (P=0.004)
•Higher grade tumor (P=0.046 to P=0.031)
The researchers cautioned that their study was limited by the limitations of the SEER database, including
lack of data on comorbidities, vascular invasion, laterality of lymph nodes, and complications and morbidity
associated with extensive inguinal lymphadenectomy.
One solution to underutilization might be minimally invasive approaches, Master said.
His group has successfully attempted laparoscopic inguinal lymphadenectomy in a few dozen patients and
seen complications in only 19%, suggesting it is not only feasible, but may also lower morbidity, he said.
The researchers reported no conflicts of interest.
Vogelzang reported conflicts of interest with Allos Therapeutics, Ambit, Amgen, Bayer, Celgene,
Genentech, Keryx, Novartis, Onyx, Pfizer, Wilex, ArQule, Clinical Care Options, Cougar Biotechnology,
Imedex, Lippincott, Williams and Wilkins, Novartis, Wyeth, Argos Therapeutics, AstraZeneca, Endocyte,
GlaxoSmithKline, and Medarex.
Primary source: ASCO Genitourinary Cancers Symposium
Source reference:
Master VA, et al "Extensive inguinal lymphadenectomy in high-risk penile cancer and overall five-year
survival: A SEER study" ASCO GU 2010; Abstract 248.
Putting her best face forward, all the time - AsiaOne - Monday, March 8, 2010 - By Joan Chew
FOR cancer patients undergoing treatment, looking good is not always a priority.
But this is not the case for Ms Susan Ginsberg, 53, who was diagnosed with gynaecological cancer 12 years
ago.
An operation to remove her lymph nodes resulted in lymphedema, which caused her right leg to swell. Even
then, the nurses at KK Women's and Children's Hospital (KKH) rarely saw Ms Ginsberg without makeup
on.
"My husband brought me my lipstick at the hospital," she recounted with a laugh.
"I believe that when you look good, you feel good," she added.
This was also the message Ms Ginsberg shared with other patients at the Women's Cancer Support Group
at KKH: to keep up with their looks despite their illnesses.
Each time she visits them at the hospital, she takes along bottles of nail polish and gives them free manicures.
For patients undergoing chemotherapy, she shows them how to tie a scarf to conceal their thinning hair.
Ms Ginsberg said: "A little nail art will really perk them up, and they keep coming back for more."
Besides visiting patients in their wards and talking to their families, Ms Ginsberg helps to organise events and
bakes cakes to raise funds for the support group.
Ms Chew Sen Mei, a nurse clinician from KKH who nominated Ms Ginsberg for the award, said: "It is
Susan's commitment and dedication in volunteerism that motivates and inspires me to think positively while
dealing with cancer patients."
Ms Ginsberg has since recovered from her cancer, and remains actively involved in the hospital's support
group.
In brief: AHP revenues drop, Walgreens reorganizes - HME News - Friday, March 5, 2010
Lymphedema bill introduced
WASHINGTON - A bill that seeks to improve Medicare coverage for lymphedema diagnosis and
treatment was introduced Feb. 23 by Rep. Larry Kissell, D-N.C. The Lymphedema Diagnosis and Cost
Saving Act of 2010 would, among other things, establish therapist qualification requirements and require
Medicare to pay for compression garments, compression bandage systems and other devices used in the
treatment of lymphedema.
Yahoo! Alerts
House Calls with Dr. Peter Gott: Should reader seek a new physician? - The Scranton Times-Tribune Fri,
05 Mar 2010 -
Q: My doctor has told me that I have lymphedema and should take a water pill. When the 20 milligrams
wasn't sufficient, she put me on 40 milligrams. Because I wanted to know more about my condition to better
educate myself about things to do and not do, I looked online. It appeared to me that my doctor should be
looking for the cause of the swelling, not just treating it. So I pressed her into doing more. She ordered a CT
scan of my pelvis, a heart echo and a venous Doppler. My CT scan showed a lesion on my liver and no
abnormalities of the kidneys. The Doppler was negative, and I don't have the results of the echo, even
though it was done more than a month ago.
Because my doctor didn't discuss my lab work with me, I requested a copy from the front office of the
clinic. I then looked up each value online and became concerned over several of the numbers. My GFR was
71. My BUN and bili totals were high. When I asked her about these numbers, she said she wasn't
concerned. When I pointed out that the National Kidney Foundation says my GFR level indicates stage 2
kidney failure, she told me that she doesn't look at that number, and I shouldn't worry because I was
probably just dehydrated on the day of the blood drawing.
Should I be concerned about the results and continue to press my doctor into ordering more tests? Or
should I just take her word for it that those numbers don't really matter?
A: I have reduced the size of your letter owing to space restrictions but will attempt to cover all your
concerns. In my opinion, your physician is failing to provide adequate, timely medical advice. You should
discuss your concerns and disappointments regarding how she is handling your medical care. If she is
unwilling to change her habits, seek out a new primary-care physician who meets your standards.
As to your stomach pain, I am inclined to agree that it was a spontaneously resolved ulcer, but because of
the delay in getting proper testing, you may never know. If your physician was truly concerned about your
symptoms, she should have gotten into testing sooner.
Bilirubin is caused by the normal breakdown of red blood cells in the liver. You claim to have a lesion on
your liver and an elevated bilirubin, which may indicate liver damage. This is reason enough for referral to a
specialist or at least further testing to determine what the abnormality is.
In my opinion, you should not wait to see if your numbers resolve on their own, because both kidney and
liver damage can be extremely detrimental to health. The sooner a proper diagnosis and, if necessary,
appropriate treatment are received, the better the outcome is likely to be.
PETER GOTT, M.D., is a retired general internist and the author of "Dr. Gott's No Flour, No Sugar
Cookbook." Send questions to Dr. Gott, c/o United Media, 200 Madison Ave., 4th Floor, New York, NY
10016
Quad-Cities Online
Press release submitted by Trinity Regional Health System.
Tickets are now on-sale for the two 2010 Stylin' Against Breast Cancer events. The winner of the Roxanne
Kramer Award will be honored during the fifth annual Stylin' against Breast Cancer luncheon and fashion
show that features local breast cancer survivors modeling clothing from area stores, Thursday, April 22, at
the Quad-Cities Waterfront Convention Center in Bettendorf. One hundred percent of the proceeds from
this charitable fundraiser benefit local breast cancer survivors and promote education about breast cancer
and breast health.
Doors open at 11 a.m. with the luncheon beginning at 11:30 a.m. Trinity Health Foundation, in partnership
with Always a Woman, Midwest Hope and Healing, The American Cancer Society, the Trinity Cancer
Center and women who do not represent an organization but who are advocates of breast health and
survivors, are presenting the event. Tickets are $25 per person.
In addition to the luncheon, the group will again host a wine and cheese party from 6:30-8 p.m.,
Wednesday, April 21, also at the Quad-Cities Waterfront Convention Center. Proceeds also benefit area
breast cancer education and awareness projects. Tickets for the wine and cheese party are $15 per person.
To reserve tickets, call the Trinity Health Foundation at (563) 355-0746 or visit www.trinityhealthfoundation.
com.
About the Roxanne Kramer Award:The Roxanne Kramer Award is an annual honor to be given to an
outstanding individual(s), organization or business that has tirelessly contributed to the quality of life of breast
cancer survivors and which through deed, word and ongoing advocacy, has helped educate the community
about breast cancer and breast health. The award winner will be honored during the Stylin' Against Breast
Cancer luncheon and style show in April.
"This award honors the persons or entity that most closely exemplifies the standards of compassionate care,
integrity, courage and vigor set by Roxanne Kramer in her service to breast cancer survivors, their families
and the community," said Berlinda Tyler-Jamison, President of the Trinity Health Foundation.
Kramer, a breast cancer survivor herself, owns "Always a Woman" boutique in Moline that specializes in
wigs, head wear, specialty bras and fits breast prostheses for breast cancer survivors. She also co-founded
the Quad City Breast Cancer & Lymphedema Support Group, made up of almost 2,000 area women, and
devotes countless hours coordinating survivor models for and emceeing the style show fundraiser.
2. Lymphedema Depot Announces Spring Discounts - Saturday, March 27, 2010, 2:17 PM - PR-USA.
net (press release)
Lymphedema Depot Announces Spring Discounts
The discounts were announced to the professional lymphedema-care community. The information is also
available to the public on the Lymphedema Depot website at http://www.LymphedemaDepot.com.
“Our company was formed out of a sincere desire to help advance lymphedema care in Canada by
introducing new, quality products and by providing expert, professional but personal service to match,” said
company vice-president and clinical specialist John Mulligan. “We feel that offering discounts is a way we
can help introduce these life-changing products to a broader client base.”
Solaris products include the Solaris Tribute, a soft, quilted compression garment that is meant to be worn
overnight, providing a comfortable and effective treatment to the lymphedema patient while they sleep.
“We feel that the Solaris Tribute is a breakthrough product that directly improves the quality of life of the
lymphedema patient,” says Mulligan.
Lymphedema is a condition of chronic swelling of a limb or body part. It can be caused by damage to the
lymphatic system such as the removal of lymph nodes in diagnostic procedures for cancer patients, among
other causes.
Lymphedema patients are required to wear a compression garment on their affected limb during the day.
The standard treatment protocol also recommends wearing multilayer compression bandaging at night while
the patient is sleeping.
“Mastering the technique for self-application of multi-layer compression bandaging before going to bed each
night is difficult, tedious and possibly counter-productive. It is very difficult to do it correctly and safely. The
Solaris Tribute is a wonderful alternative to nighttime bandaging because it is custom made for each patient
and it slips on and off easily and quickly. It is very simple and strikingly effective in helping to manage your
lymphedema successfully while you sleep,” according to Mulligan.
Other Solaris lymphedema care products include the Caresia bandage liner, Swell Spot edema and fibrosis
reduction pads, and ReadyWrap inelastic medical binders for the legs. More information is available at http:
//www.LymphedemaDepot.com.
Lymphedema Depot is a Canadian company dedicated to bringing new options in lymphedema care
products to Canada. We are the exclusive Canadian distributor of the Solaris line of medical compression
garments for the management of lymphatic and venous edemas.
Lymphedema Depot and Solaris both strive for continuous improvement to make the management of
lymphedema less complex, more effective, and ultimately easier for patients.
3. Cancer patients can find Serenity - Thursday, March 25, 2010, 3:24 AM - The Desert Sun - by Maggie
Downs -
Are you an underinsured or uninsured woman who has had breast cancer? Then Serenity in Rancho Mirage
is looking for you.
The shop — which specializes in products for women with breast cancer — recently received funding to
provide some free products for women who need them.That includes lymphedema garments, breast
prosthesis and specialty bras.Grant money was provided from the Kommah Seray Inflammatory Breast
Cancer Foundation to pay for these items, which are usually not covered by insurance.Owner Dori LaLanne
is currently taking appointments for March 30. Call (760) 699-8685.Serenity is located at 35800 Bob
Hope Drive, Rancho Mirage.
4. A 'dream day' for a local cancer survivor - Thursday, March 25, 2010, 3:10 AM - Baltimore Sun - By
Jessica Anderson
Tamara Leak-Jones traded her green heels for rubber boots from the National Aquarium in Baltimore.
The Randallstown woman did not know she would be getting her feet wet next to the 28-year-old Atlantic
bottlenose dolphin named Chinook.
Leak-Jones, 33, started her day Wednesday at a BMW dealership in Towson, where she had been told she
would talk to reporters about her four-year battle with breast cancer. Instead, she was greeted by an
unexpected guest with other plans.
5. Rep. Kissell breaks ranks over health care - Monday, March 22, 2010, 9:50 PM - Richmond County
Daily Journal - by Philip D. Brown
A majority of the U.S. House of Representatives and Senate are now on the same page on health care
reform, and President Obama is expected to sign the bill he’s been waiting for since taking office.
The U.S. House of Representatives passed the Senate’s version of health care reform by seven votes
Sunday evening - 219-212 - meaning a Senate reconciliation vote is all that remains between health care
reform and the president’s signature. The bill needed 216 votes to pass.
The topic has been a hot-button issue throughout the country, but even more so in North Carolina’s Eighth
District where U.S. Rep. Larry Kissell broke ranks with the Democratic leadership to oppose the plan.
The move earned him support from some of the district’s more conservative voters, while raising the ire of
many in the liberal base that helped him in his consecutive campaigns against former-U.S. Rep. Robin Hayes.
Fayetteville activist Nancy Shakur even signed up to face Kissell in the May primary, citing his opposition to
the Democrats’ plan.
In a Monday statement, Kissell said he didn’t vote for the bill because of the nearly $500 billion in Medicare
cuts that will be needed over the next 10 years to pay for it.
“I promised to protect Medicare,” Kissell said. “While I believe we need health care reform and was proud
to be an original co-sponsor of the bill to end the anti-trust exemption for insurance companies, I gave my
word to the citizens of the Eighth District that I would protect Medicare ... I am a man of my word, and I
have kept my word to protect Medicare.”
Kissell pointed out that while he isn’t opposed to health care reform, he is opposed to doing it this way.
Aside from his bill to end anti-trust exemptions for health insurance companies, Kissell has also voted to
expand health insurance for children, introduced legislation that would require Medicare to offer coverage
for citizens with lymphedema, voted to repeal a payment reduction to physicians from Medicare and voted
to support home health care during this session of Congress.
Kissell was joined by North Carolina Democrats Mike McIntyre and Heath Shuler in opposing the bill. All
of North Carolina’s Republican delegation opposed it.
For Richmond County Democratic Party Chairman Antonio Blue, Sunday’s vote felt like a victory, and “a
good start.”
“I think it’s a very good thing, because people need health care,” Blue said. “Hopefully, we’ll work on
getting whatever needs to be fixed fixed, and people who need to be seen or need treatment can get it.”
Blue said he’d only had the opportunity to talk to a few county Democrats since the passage of the bill, but
there was a lot of support in the party heading up to the vote.
“I think the majority of the people were for health care reform,” Blue said. “There was a lot of support here
in the county, and just like anything else, there were some that were against it.”
Now that health care reform has passed all its major hurdles, the details of what it actually does should
become more clear.
In the lead up to the vote, advocacy groups on both sides of the coin spun the facts to support their own
positions.
According to the Associated Press, the nonpartisan Congressional Budget Office said the legislation will
extend coverage to 32 million Americans, ban insurers from denying coverage based on pre-existing
conditions and cut deficits by an estimated $138 billion in the next decade.
This would expand health coverage to 95 percent of everyone who is eligible under 65.
According to the leadership of the Richmond County Republican Party, that’s not all it will do.
“What many Americans don’t realize is that what happened last night was the Trojan Horse for the
government takeover of the country,” said Lee Butler, Richmond County Republican Party chairman. “The
problem is that on the Left, they’re hiding behind the slogan of health care reform. Everybody on both sides
of the aisle want health care reform, meaning they want health care to be affordable. But this bill is the
vehicle by which government will expand its control over our everyday lives.”
Butler said those who believe they will now “have free health care and live in a utopian society,” are in for a
rude awakening once doctors and nurses become government employees.
“They are going to be caught in the nuance, the technicality, the red tape that is government,” Butler said.
“And their everyday health care decisions will now be dictated by a government bureaucrat.”
He said he has one question for those who suggest the government won’t be involved in the health care
decisions of its citizens.
“Can you prove it with what’s written in the bill,” Butler asked. “Most people don’t know what’s in the bill,
and when you have (U.S. Speaker of the House) Nancy Pelosi saying point blank that you’ll see what’s in
the bill after we pass it, we know it’s a bad piece of legislation.”
The bill must now be reconciled in the Senate, then will move on to President Obama’s desk to be signed.
Staff Writer Philip D. Brown can be reached at (910) 997-3111 ext. 32, or by e-mail at
pbrown@yourdailyjournal.com.
6. Scavenger Hunt for a Good Cause - Friday, March 19, 2010, 1:22 PM - Newsday - By Joie Tyrrell
Bethpage High School senior Jordan Schessler twice exceeded her goal to raise funds for the education and
cure of Lymphedema. With the help of school social worker Christine Kennedy and 15 members of the
teaching staff, Jordan raised $2,000 for the National Lymphedema Network by hosting a schoolwide
scavenger hunt.
Approximately 85 students participated in the activity, during which they searched...
Tina, for the full article for this II would have to be a subscriber to Newsday and I do not subscribe to
things, ss, I copied as much of the article as I could, I guess the only way to do the rest of it would be if you
gave me your logon info to Newsday if you are a subscriber to it.
7. A celebration of women in the 111th Congress - Monday, March 15, 2010, 10:24 PM - Richmond
County Daily Journal - by Larry Kissell
In honor of all the women of the 8th Congressional district, and in celebration of the Women’s History
Month, I want to tell you a little bit about some of what I’ve done to address women’s issues in the 111th
Congress.
As your Congressman, I get the opportunity to meet remarkable people like Heather Ferguson, a Charlotte
mom fighting to help her three-year-old son, and others like him, to get critical treatment for lymphedema.
Heather struggled to get her health insurance to pay for the relatively-inexpensive treatment to help her son
live a normal life without the serious complications of untreated lymphedema. She knew if she didn’t do
something, she would be fighting with this issue her entire life. So she took the issue to her state
representative, another great woman, Tricia Cotham, and then, brought her issue to me. Together, we
introduced legislation to ensure Medicare covers treatment for lymphedema sufferers.
One of the largest groups of lymphedema sufferers are cancer patients. The condition can be caused by
cancer treatments that affect the lymphatic system. Breast cancer patients are especially susceptible to
lymphedema.
Breast cancer is the leading cause of cancer death in women ages 15 to 54. As we all know too well, one in
eight of all women will get breast cancer in her lifetime. Yet, more than 60 percent of breast cancer
occurrences are detected in early stages. If detected early, 96 percent of women are cancer-free after five
years. Breast cancer can strike at any age.
As we know, educating our daughters about early detection is one of the most critical things we can do. In
an effort to promote early detection, I have joined my colleagues in sponsoring a bill to increase breast
cancer awareness in young women and provide support for young women diagnosed with breast cancer.
I am putting an emphasis on holding insurance companies more accountable for minimum hospital stays for
breast cancer treatment. I have sponsored a bill to require minimum stays for mastectomies, lumpectomies
and lymph node dissections in the course of breast cancer treatment. It would also require coverage for
secondary consultations. Unfortunately, many rural medical facilities aren’t equipped with the necessary
mammogram systems. I have supported a bill to help address this need by expanding mobile mammography
vehicle access, to help bring the necessary technologies and treatment to those that need it.
This week, I proudly joined with my colleagues to support an appropriation for the Department of Defense
Peer-Reviewed Breast Cancer Research Program. I also voted to expand and improve health care services
from the Department of Veterans Affairs available to women veterans, especially those serving in Operation
Enduring Freedom and Operation Iraqi Freedom. Our brave female service members deserve to have their
needs taken into consideration when receiving medical treatment.
Back in January, I sponsored a resolution recognizing the importance of cervical health and the early
detection of cervical cancer. It was a resolution I was honored to sponsor. We are also working on diabetes
research, treatment and education as well as fighting Sickle Cell Disease. I am a strong supporter and
sponsor of H.R. 1032 which improves prevention, diagnosis and treatment of heart disease, stroke and
other cardiovascular diseases in women. Heart disease is the number one killer of women in our country. It
is vital that we continue to educate on ways to prevent heart disease in all of us.
Health issues are of course not the only issues important to women. One of the first bills I voted for was the
Lily Ledbetter Fair Pay Act. I was so proud to support this bill, which is designed to ensure equal pay for
equal work. It overturned a 2007 Supreme Court decision that made it more difficult for women and others
to pursue claims of pay discrimination. It is important to close the pay gap for women who work just as hard
as their male counterparts.
In November, I voted to modify the Small Business Act to improve women’s business centers. We need to
continue encouraging female entrepreneurs, who are helping to create the small businesses which are driving
our economic recovery.
I have been blessed in many ways during my life. Not the least of which is the four amazing women who help
shape my view of the world - my mother Virene, my wonderful wife Tina and my amazing daughters Jenny
and Aspen.
My 94-year-old mother is one of the strongest people I have ever met. She is a retired mathematics teacher
and instilled in me a deep sense of community. She inspired me to pursue a career in teaching and helped
give me the strength to run for Congress. My wife and daughters are my rock. These three generations of
Kissell women amaze me every day.
I hope you will take a moment this month to thank the women in your life for everything they do.
Congressman Larry Kissell (D-N.C. -8) offices include Rockingham: 230 East Franklin St., Rockingham,
NC 28379, Phone: 997-2070; Concord number (704) 786-1612; Fayetteville number (910) 920-2070;
Washington office: 512 Cannon House Office Building, Washington, DC 20515; phone (202) 225-3715.
Web site, kissell.house.gov.
8 (a). Demystifying Lymphedema - Wednesday, March 17, 2010, 12:57 PM - Orland Park Prairie -
Tina, for this one when I click on the link itself I only get a calendar, and when I click on the link that says
"See all stories on this topic" it goes to a page with an error message saying "No related articles were
found." I tried searching on the website too and did not find this article there.
8(b). New Treatment Relieves Arm Lymphedema After Breast Cancer - Wednesday, March 17, 2010, 12:
57 PM - About - News & Issues (blog) - By Pam Stephan
Sandi Johnson went for a routine mammogram and came out with a diagnosis of Inflammatory Breast
Cancer. She endured a range of treatments: chemotherapy, surgery, radiation. Sandi is dealing with bone
metastasis and the loss of her husband's job. She's also raising two sons and managing a gym. Refusing to
gripe (not much anyway) and still searching for hope and answers, she decided to work on her life and
health instead of giving in to despair.
She developed arm lymphedema soon after her first surgery, as a result of axillary lymph node dissection -
the removal of several underarm lymph nodes - a test for metastasis. Without the full number of lymph
nodes to process and clean lymphatic fluid, the lymph builds up near your surgery site and causes swelling.
Sometimes it's just in the upper arm, but Sandi's lymphedema extended clear down to her fingertips and was
very debilitating. This was so bad that it caused her some trouble with getting dressed and it actually caused
her pain. She had tried therapeutic massage, a pump, a compression sleeve, and special arm exercises.
Accustomed to being very fit, slim, and shapely, Sandi decided to try a new procedure which offered her
some hope for relief from lymphedema.
Lymph nodes make immune cells to help fight infection, and filter out bacteria or cancer. When nodes near
your ears or throat swell, you know that you've got an infection. We have lymph nodes throughout our
bodies and all of them work the same way. A new microsurgery technique takes lymph nodes from your
groin or abdomen and transplants them into your armpit area. Microsurgery is the same surgical specialty
used in free-flap breast reconstruction. Your surgeon will use a high-powered microscope to see the tiny
vessels which need to be connected with your existing lymph system. Once the transferred lymph nodes
begin functioning in your armpit, 90% of patients experience rapid relief from lymphedema symptoms. This
procedure is done by a plastic surgeon that specializes in microsurgery, and must be done in a facility with
the proper equipment. Choose a very experienced surgeon for your lymph node transplant, and ask to
speak with other patients who have had this surgery.
9. War declared on breast cancer - Tuesday, March 23, 2010, 8:01 PM - Arab News - by K.S.
RAMKUMAR -
JEDDAH: Breast cancer is one of the world’s most dreaded diseases and accounts for a majority of deaths
among women cancer patients all over the world. In light of this, local health experts, doctors and
educationists have launched a new campaign to raise awareness about it, showing people how to prevent
and treat it.
“In fact, breast cancer has entered a new era and an intensive campaign is continuing with the projects
undertaken at King Abdulaziz University (KAU),” said Dr. Samia Al-Amoudi, associate professor,
consultant obstetrician, gynecologist and head of Sheikh Mohammed Hussein Al-Amoudi Breast Cancer
Chair at KAU, in her presentation on Sunday.
Dr. Benjamin O. Anderson, chair and director of Breast Health Global Initiative (BHGI) and full member of
epidemiology at the public health sciences division of the Seattle-based Fred Hutchinson Cancer Research
Center, delivered a presentation on breast health.
“The key to breast cancer’s new era includes the various programs and projects undertaken at KAU,” said
Dr. Samia. The university’s education and training unit is involved in integrating the breast- health program
into the existing health-care system with the involvement of health-care providers and medical students.
A screening center with a mobile unit is in operation, she said, adding that with the cooperation of the
Ministry of Health a national program has also been launched with the involvement of a psychosocial support
group and a breast-counseling unit.
A long-term follow up program for survivors includes the establishment of a lymphedema clinic,
implementing an education program through postgraduate studies at KAU, oncology nursing and psycho-
social oncology programs, nutrition for cancer patients, and a research center with evidence-based studies.
Several key initiatives have been accomplished or have seen substantial progress. Faculty support is strong
and the dean and department chairs are committed, she said.
She added: “Let us commit ourselves to address the breast cancer issue for my daughter, your daughters
and every daughter in the world.”
-------
Ski for a Cure raises $40000 plus for cancer research - March 29, 2010 - Montreal Gazette by SUSAN
SCHWARTZ
Event in memory of Rob Lutterman
Shortly after Montrealer Rob Lutterman died of pancreatic cancer in 1999 at age 63, his family and a group
of friends created an annual ski event in his name to celebrate his passion for skiing and to raise money for
research into a cure for this deadly cancer: No effective treatment for cancer of the pancreas has yet been
found.
The Rob Lutterman Memorial Fund of the Cancer Research Society was created in his memory, with the
goal of promoting and funding pancreatic cancer research.
This year the 11th Annual Rob Lutterman Ski for a Cure day, held March 13 at Mont Sutton in the Eastern
Townships, raised more than $40,000 for the Cancer Research Society.
The second Cancer Research Society/Rob Lutterman Pancreatic Cancer Research Grant has been
awarded, to a team from McGill University. The three-year, $300,000 grant will go to Dr. Michel L.
Tremblay and his McGill University team, Dr. Bruno Gagnon and Dr. Neil McDonald. The first research
grant was awarded in 2007 to an Alberta researcher.
One reason that cancer of the pancreas has so poor a prognosis is that it is difficult to detect early, before it
has spread to other parts of the body. The metastatic process, as it is called, is especially aggressive in
pancreatic cancer.
Tremblay's team has collected a blood bank and urine samples from cancer patients to permit them to
identify early markers of pancreatic cancer, with a view toward improving survival.
The mission of the Canadian Cancer Research Society, a national not-for-profit organization founded in
1945, is to fund basic cancer research and to provide seed money for promising original ideas, projects and
researchers across Canada.
Tight 'n Bright, a club-themed event held March 12 at Club 3519 on St. Laurent Blvd., raised $6,000 for
the Lymphedema Association of Quebec. Guests were encouraged to wear - you guessed it - tight, bright,
wacky clothing.
Another goal of the event, in addition to fundraising, was to raise awareness about lymphedema - a
progressive disorder caused by damage to the body's lymphatic vessels; it can occur near the site where
lymph nodes have been damaged or removed. In severe cases, lymphedema causes unsightly swelling, most
often in limbs. It occurs most commonly as a result of cancer treatment; between 20 and 30 per cent of
people with breast cancer, for instance, are affected.
The Lymphedema Association of Quebec is a volunteer-run charity, based in Montreal; it relies on
donations to help people with lymphedema.
Visit www.infolympho.ca for more information.
Bengala, a charity dinner and party held Feb. 25 at the Parisian Laundry, raised $100,000 for Haitian relief.
About 180 people attended the dinner/auction portion, including Montreal mayor Gerald Tremblay and his
wife, Suzanne Tailleur; Lise Watier; Peter Svoboda, a former player with the Montreal Canadiens and
Quebec business leaders. About 400 people turned up later for a party which lasted into the wee hours.
The event was a fundraiser for MAÂT, an independent, not-for-profit organization founded in 2007 to
improve the quality of life and opportunities for young single women and their children. Main event partners
were Belvedere vodka, the Velvet Speakeasy, La Porte Rouge on Mount Royal Ave. E., Hype Energy
Drink and Boréale.MAÂT has been in Haiti for several months; following the Jan. 12 earthquake, the
kindergarten and training centre for young women it was funding became a shelter for orphaned children.
For more information, go to www.maatworld.org.
Brenda Fahey-DeJean, a Grade 6 teacher at Wilder Penfield Elementary School, says the best thing about
fundraising efforts for Haiti relief by the 72 Grade 6 students at the Dollard des Ormeaux school was that
they were a result of the kids' own interest and initiative. "In teaching, we do not always see the results of the
seeds we have planted," she wrote in an email. "The school community at Wilder has a culture of generosity
and has often supported various causes; sometimes we answer to a specific situation and sometimes it has
been an ongoing commitment."
The school, part of the Lester B. Pearson School Board, holds fundraising days called Wilder Days; this
time, the Grade 6 students chose four themes for days dedicated to raising money for Haiti relief: on Bubble
Gum Day, for instance, students brought 25 cents to be able to chew bubble gum in class. On Extreme Hair
Day, they paid 50 cents to curl, colour or otherwise decorate their hair for the day.
On Feb. 12, Wear Canada Day, held in honour of the opening of the Olympics, children were encouraged
to wear red and white or anything representing Canada and donate $1. For the fourth Wilder Day, Wear the
Colours of Haiti's Flag Day, students donated $2 apiece.
The children raised a total of $2,444.95. Much of that amount, $1,600, will be matched by a federal
government program that was in place until Feb. 12.
"We are very proud of the actions of our sixth graders," Fahey-DeJean wrote. "They saw a problem and
took an action. If we have young people who are paying attention to the plight of their community, both local
and global, and doing something about it, we feel that true education has taken place - and that bodes well
for the future."
By mid-March, English Montreal School Board schools and centres had raised close to $108,750 for Haiti
relief. The EMSB has decided not to publicize their totals individually, said EMSB Chairman Angela
Mancini, so as not to give the impression the schools were competing with each other.
Westmount High School Principal Michael Cristofaro said in a message to his students: "One of the greatest
acts of charity is to give without expectation, without promise of something in return and with the notion that
our giving will assist a human being less fortunate than ourselves. Perhaps some of you gave up a snack at
recess or a drink at the depanneur and instead gave that loonie or toonie to a greater good. Because of your
actions you have put rice into empty bowls, water in thirsty mouths, and blankets around shivering children."
Funds are being directed to the Canadian Red Cross Society, World Vision, UNICEF, Canada Care, New
Missions, Oxfam and the Centre canadien d'études et de coopération internationale.
Among many highlights of the EMSB efforts: Nesbitt Elementary School in Rosemount has decided to assist
families from Haiti who have settled in Montreal following the earthquake and need basic items to start a
new home. Each grade level, from kindergarten to Grade 6, will adopt one family each and determine their
needs.
Michelangelo Elementary School in Rivière-des-Prairies held a drum-a-thon: students participated in a
continuous drum circle through the school day. "Haiti took a beating and we are beating for Haiti," was the
slogan used.
Staff and students of Haitian background at John F. Kennedy High School in St. Michel manned a donation
table during two lunch periods and showed images of the devastation; money was also raised through
classroom collections and a dress-down day.
Also in St. Michel, Perspectives Alternative High School students collected funds the day after the
earthquake and walked them over to the Haitian Community Centre a few doors away.
Honoré-Mercier Elementary School in St. Léonard held a Pennies for Haiti program involving students in
Grades 1 through 6. Kindergarten students held a Hearts for Haiti campaign: they designed magnetic hearts
by colouring, gluing and painting them, then took them home to family or gave them to friends, with a letter
explaining the project.
applause@thegazette.canwest.com
The Montreal Gazette
Read more: http://www.montrealgazette.com/health/Cure+raises+plus+cancer+research/2738001/story.
html#ixzz0jbSl0h1Z 2. Free Post-Surgery Breast Cancer Garments - March 29, 2010 - KPSP Local 2
News -
Breast cancer surivors who are under-insured or uninsured can schedule an appointment to get free post-
surgery garments Tuesday.On March 30, 2010 from 10:00 a.m. to 3:00 p.m., the Kommah Seray
Inflammatory Breast Cancer Foundation (KSIBCF) is partnering with Serenity: A Fitting Place for Women,
to offer free Mastectomy Bras, Prosthesis, Lymphedema Sleeves, and Gauntlets for the uninsured, Medi-
Cal, Medi-Care, and underinsured residents in the desert.
Serenity is located at 35-800 Bob Hope Drive, Suite 245 in Rancho Mirage.
"As a survivor, I understand firsthand how expensive these garments could be for survivors," said Kommah
McDowell, Executive Director of KSIBCF.
Unfortunately, for the community we serve, these garments are more of a privilege, and that shouldn't be.
No one should have to walk around feeling uncomfortable just because they had or have breast cancer,"
said McDowell.
Interested people are encouraged to make an appointment. Call (760) 699-8685 to schedule an
appointment for Tuesday.
=======================
Eema treatment demonstrated - Victoria Times Colonist - Thursday, March 4, 2010 -
A special demonstration event for those needing treatment for lymphedema and other chronic edemas,
caused by cancer surgery and other conditions, will be held tomorrow from 12:20 to 5:30 p.m. at the Emily
Carr Branch of the Greater Victoria Library, 3500 Blanshard St.
During this free presentation, compression garments will be shown and their use demonstrated by garment
fitters. Everyone is welcome including therapists, medical professionals and patients. Experts will also be on
hand to answer questions. For more information call 905-687-8500.
Yahoo! AlertsTaking action to better their own health - Parksville Qualicum Beach News Mon, 01 Mar
2010 - By Auren Ruvinsky Parksville’s Lynn Holloway is one of the founders of the BC Lymphedema
Association and suffers with the condition (below).
Sufferers of lymphedema growing grass roots awareness of their condition and their hopes
People suffering with lymphedema don’t have a lot of hope treatment will be covered by the medicare
system any time soon, so they are pushing for grassroots awareness, education and support.
Parksville’s Lynn Holloway has suffered with the debilitating condition since she survived her second battle
with cancer in 2002.
Lymphedema is not the best-known medical condition, despite the fact that it afflicts 20 to 40 per cent of
people who survive cancer in the breast or groin areas.
“It effects every person differently depending on the level and location of the lymph system destruction from
radiation and surgery,” Holloway said.
She explained damage to the lymph system causes secondary lymphedema, while some people are born
with what is called primary lymphedema.
It occurs when the lymphatic system doesn’t function properly, causing protein and enzyme fluids to collect
in the limbs.
The often dramatically swollen limbs can become painful and difficult to move and can lead to severe
infections and other complications requiring hospitalization.
While cancer treatments are the most common cause it can also come from any physical trauma to the areas
including burns and surgery.
When cancer returned to Holloway’s groin area in 2002, after surviving a 1995 bout with it, doctors told her
lymphedema was a strong possibility after treatment, but she didn’t think much of it.
“I could live with swollen ankles if I could be cancer free,” she said, but the condition that followed has also
changed her life.
There is no cure, but she said it can be managed with special massages to move the fluids around manually
and with expensive compression garments.
“Treatment can be extremely expensive and isn’t often covered by health plans,” she said.
“Compression garments have to be replaced every four to six months at a cost of $450 to $1,000 at a time.”
She also said it would be useful to get the massages daily, but at $70 or more per treatment, most people
are lucky if they can afford one a week. They also require extensive treatment before they get re-fitted for
the compression garments at least once a year.
To help support the unknown number of people suffering with lymphedema Holloway was one of the
founding members of the provincial association four years ago, along with some of the limited number of
experts in the province including a registered massage therapist and doctor.
Because lymphedema is an effect that comes after cancer has been treated, it isn’t covered by the
considerable support services that exist for people suffering with things like breast cancer, she pointed out.
She said that while they do need more government support, their more immediate hope is developing public
awareness and moral support to help cut down on some of the reclusion and depression they often suffer.
“Our best hope is people living with the condition are educated about it and when they need psychological
or social support they can reach out to us and find someone who feels their pain.”
The association is also developing a system of best practices for medical professionals and hoping to
develop some better estimates of the number of people suffering with it in the province.
To raise awareness, Saturday, March 6 has been declared Lymphedema Awareness Day in many B.C.
communities, including Parksville, and the provincial association is holding their annual general meeting and
an educational event in Burnaby.
Holloway thanked the City of Parksville and Parksville Pharmasave for their ongoing support of the
association.
The association is staging Tuesdays with Morrie as a fundraiser, featuring award-winning 90-year-young
Antony Holland from Gabriola Island.
There are only two shows, at 2 and 7 p.m. on Friday, April 11 at Knox United Church, with tickets $20 at
the door or $15 in advance, available from the association.
For more information visit www.bclymph.org or call Holloway at 1-866-991-2252 or e-mail mlholloway@.
shaw.caw.ca.
MHNCS: Lymphedema Common in Head and Neck Cancer - MedPage Today - Tuesday, March 2, 2010
- By Charles Bankhead
PHOENIX -- Treatment of head and neck cancer causes potentially severe lymphedema, which responds
to complete decongestive therapy in most cases, a retrospective chart review showed.
The most severe lymphedema occurred in patients treated with surgery and radiation therapy, followed by
definitive surgery alone. Complete decongestive therapy led to clinical improvement in a majority of the
patients, including 83% of those treated with surgery alone.
"Lymphedema is vastly under-recognized and under-reported in patients with head and neck cancer," Jan S.
Lewin, PhD, of M.D. Anderson Cancer Center in Houston, said in an interview at the Multidisciplinary
Head and Neck Cancer Symposium.
"The lymphedema can be just as severe as what's seen after treatment of breast and other types of cancer.
Lymphedema in patients with head and neck cancer can be terribly disfiguring and cause severe functional
problems."
"Complete decongestive therapy leads to clinically significant improvement in most patients, whether it's
performed in a clinic or at home," she added.
Available evidence suggests that fewer than half of patients with head and neck cancer develop lymphedema
after treatment. However, cosmetic and functional sequelae can be severe, including problems with
speaking, eating, airway obstruction, and drooling, as well as self-image.
As compared with lymphedema in other cancers, a paucity of information exists about the presentation and
treatment of the condition in patients with head and neck cancer, said Lewin.
In an effort to add to the information base, she and her colleagues retrospectively reviewed records of
patients referred for evaluation of lymphedema following treatment of head and neck cancer.
Data collection included patient and disease characteristics, site and severity of lymphedema, and the type of
complete decongestive therapy each patient received (outpatient or at home).
Investigators stratified patients by type of cancer treatment and decongestive therapy regimen. Outcomes
were assessed by clinical examination, and improvement was defined as a reduction in lymphedema stage,
resolution of the lymphedema site, or =2% decrease in total surface area affected.
Complete decongestive therapy conformed to recognized standards and consisted of manual lymphatic
drainage massage, use of compression bandages, physical exercise, and a skin-care regimen.
Outpatient therapy was performed by a certified therapist and consisted of an intensive phase of three to five
sessions weekly for two to four weeks, followed by maintenance home therapy. Patients who were unwilling
or unable to complete the outpatient regimen were assigned to a self-administered home-based regimen.
The study population consisted of 270 patients, 30% of whom were treated with definitive external beam
radiation therapy, 9% with surgery alone, and 61% with surgery and radiation therapy.
The neck was the most common site of lymphedema (89%), followed by the submental (84%), facial
(32%), and intraoral (6%) areas. Some patients had more than one affected area.
Lewin reported that 53% of the patients had moderately severe lymphedema, defined as M.D. Anderson
stage 1b (reversible, pitting edema). Combined therapy resulted in significantly worse lymphedema (P=0.
001).
Overall, 161 (60%) patients reported functional problems related to lymphedema, including difficulty
swallowing in 80 patients (30%) and speech problems in 31 (11%).
Outcome data were available for 152 patients who received complete decongestive therapy and returned
for follow-up evaluation (an average of 10.7 weeks after initial evaluation).
Lewin and colleagues found that 54% (82 of 152) of patients had improved clinically at follow-up (15 of 20
who had outpatient therapy and 67 of 132 who had home-based therapy).
Improvement was observed in 83% of patients treated by surgery alone, 55% of patients treated with
definitive radiation therapy, and 49% of patients treated with surgery and radiation.
Evaluation of functional outcomes is ongoing, said Lewin.
Lewin and her co-investigators had no disclosures Making sure those with breast cancer get help -
9NEWS.com - Tuesday, March 9, 2010 - DENVER - When Wendy Newman was 27 years old, she was
starting her own business and trying to save some money. Since she was healthy and had no family history of
serious illnesses, she decided to let her health insurance lapse. Then, she found a lump in her breast.Newman
learned she had stage III breast cancer. With the help of two tenacious doctors Newman was able to get
treatment through grant programs for the uninsured.
Still, she became aware of the many women and men who may not meet the specific requirements for this
type of treatment.
Newman is the founder of the Breast and Women's Reproductive Cancers Fund. In 2008, the BWRC Fund
was created to expand cancer education, screening and treatment throughout Colorado.
Competitive grants are awarded to organizations across the state to increase survival rates and improve the
quality of life of Coloradans affected by these cancers. Two past grantees include the Klose Lymphedema
Care Center and the Colorado Ovarian Cancer Alliance.
Every year in Colorado, nearly 1,000 women are diagnosed with reproductive cancers and more than 2,800
men and women are diagnosed with breast cancer. An estimated 17 percent of Coloradans are uninsured
and many others have inadequate insurance coverage.
Last month, with the help of the BWRC Fund, breast cancer survivor Sharon Farnsworth acquired a
compression garment to control her lymphedema, a chronic and sometimes debilitating condition
characterized by swelling in the arms or chest, affecting approximately 20 percent of breast and other
reproductive cancer patients that have undergone surgery or radiation treatment.
Farnsworth was diagnosed with stage III breast cancer when she was 33 years old and after undergoing a
radical mastectomy, she started experiencing signs of lymphedema. In order to control the swelling in her
arm and hand, Farnsworth needs to wear compression garments 24 hours a day.
The BWRC Fund has also helped expand cancer education programs across the state. Survivors Teaching
Students, a program sponsored by the Colorado Ovarian Cancer Alliance (COCA), brings ovarian cancer
survivors into the lives of medical students with the goal of helping them become more sensitive to the
symptoms of and risk factors for ovarian cancer.
"The majority of ovarian cancer cases are not diagnosed until the disease is advanced and women's survival
is compromised, so the key to treatment is early diagnosis," said Lucy Trujillo, COCA executive director
and ovarian cancer survivor. "We have the unique opportunity to connect with health practitioners, and with
the help of the Breast & Women's Reproductive Cancers Fund, we've been able to expand the program
statewide."
In 2009, the BWRC Fund awarded more than $24,000 in grants. Colorado tax filers may have any amount
of their refund check directed toward the BWRC Fund.
Colorado taxpayers can show their support in the fight against breast cancer and other reproductive cancers
by checking off line 38 on their 2009 income tax forms. All donations will go toward the Breast and
Women's Reproductive Cancers (BWRC) Fund.
For more information about the BWRC Fund, visit www.coloradocancercheckoff.org or contact Wendy
Newman, BWRC Fund project director, at info@coloradocancercheckoff.org or 1-800-511-4998.
To learn more about lymphedema, visit www.lymphnet.org.
To learn more about the Colorado Ovarian Cancer Alliance, visit www.colo-ovariancancer.org.
(KUSA-TV © 2010 Multimedia Holdings Corporation)
What Is Lymphedema? What Causes Lymphedema? - Medical News Today - Tuesday, March 2, 2010 -
by Christian Nordqvist
Lymphedema, lymphoedema, or lymphatic obstruction is a chronic (long-term) condition in which excess
fluid (lymph) collects in tissues causing edema (swelling). Lymphedema can be very debilitating. In short,
lymphedema is edema due to lymphatic fluid; a blockage of the lymphatic system. The lymphatic system is
an important part of our immune and circulatory systems.
Lymphedema commonly affects one of the arms or legs. In some cases, both arms or both legs may be
affected. Some patients may experience swelling in the head, genitals or chest. It is often a consequence of
surgically removing the lymph nodes in the armpit (axilla) or groin, or their damage caused by radiotherapy.
The normal drainage of lymphatic fluid is faulty. Lymphedema can also be caused by a tumor which presses
on lymphatic vessels.
According to Medilexicon's medical dictionary:
Lymphedema is "Swelling (especially in subcutaneous tissues) as a result of obstruction of lymphatic vessels
or lymph nodes and the accumulation of large amounts of lymph in the affected region."
Lymphedema is incurable. However, with diligent care it can be controlled.
What is the lymphatic system?
The lymphatic system consists of the tissues and organs that produce and store cells that fight disease and
infection. They include the bone marrow, thymus, lymph nodes and spleen, as well as the channels that carry
lymph.
Most of us know about the circulation system that pumps blood from the heart to the rest of the body. A
significant number of individuals, however, are not aware that the body also has a second circulation system
- the lymphatic system.
There is a series of vessels and glands (lymph nodes) that comprise the lymphatic system. They are spread
throughout the body, in a similar way to blood vessels.
The lymphatic system has three main functions:
•Fighting infection - the lymphatic system transports a watery, clear fluid full of lymphocytes. Lymphocytes
are infection-fighting cells. The white fluid is known as lymph.
•Draining excess fluid - after blood has circulated through tissues it leaves fluids and proteins behind; these
are waste products. The excess fluid is drained through tiny capillaries and into the lymphatic system. After
filtering out bacteria, viruses and other undesirable substances or organisms, the clean fluid is then returned
to the blood. This filtering is done by the lymphatic system.
•Lipid (fat) absorption - the lymphatic system also absorbs lipids from the intestine and transports them to
the blood.
A disruption to the lymphatic system can eventually undermine its ability to drain fluid properly, resulting in
excess fluid (swelling) in parts of the body. Patients with lymphoma have a higher risk of infection
complications because their lymphocytes cannot reach parts of the body where swelling occurs. Cellulitis, a
type of bacterial skin infection, is a common infection for patients with lymphedema.
There are two main types of lymphedema:
Primary lymphedema - often called congenital lymphedema. The lymphedema is evident at birth or shortly
after puberty. It is caused by a congenital malformation (faulty genes) of the lymphatic system. This type of
lymphedema is rare; affecting approximately 1 in every 10,000 people.
Secondary lymphedema - the lymphedema occurs as a result of something else, such as an infection, injury,
trauma or cancer which affects the lymphatic system. Lymphedema may be a side effect of cancer treatment,
such as radiotherapy or the removal of some lymph nodes, which may damage the lymphatic system. This
type of lymphedema is more common. According to the National Health Service, UK, approximately
100,000 British people have secondary lymphedema. More women are affected than men.
What are the signs and symptoms of lymphedema?
A symptom is something the patient feels and reports, while a sign is something other people, such as the
doctor detect. For example, pain may be a symptom while a rash may be a sign. Lymphedema signs and
symptoms include:
•Swelling of either part or the whole leg or arm, may include the fingers or toes. Some patients experience
just slight changes in limb size, while others have severe swelling. Some people may find it difficult to wear
jewelry, watches or fit into clothes or shoes.
•Sometimes the head or neck may swell
•The arm or leg feels heavy
•The arm or leg feels tight
•The range of motion of the limb is restricted (affected limb loses some of its mobility)
•Discomfort in the affected limb
•The affected limb may ache
•There may be a tingling sensation in the affected limb, much like pins and needles
•Recurring skin infections in the affected limb
•The skin may thicken and harden on the affected limb; blisters or wart-like growths may develop on the skin
•Severe fatigue
What are the causes of lymphedema?
Causes of primary lymphedema - experts say it is caused by mutations in some of the genes that are
involved in the development of the lymphatic system. These faulty genes interfere with the lymphatic system's
development, undermining its ability to drain fluid properly.
A significant number of patients with primary lymphedema have a close relative who has/had the same
condition. However, this does not necessarily mean that the offspring of somebody with lymphedema will
develop the disorder themselves. Primary lymphedema is more common in females than males.
Causes of secondary lymphedema - this type of lymphedema has several possible causes, including:
•Cancer surgery - cancer may spread through the body through the lymphatic system. Sometimes surgeons
remove lymph nodes to stop the spread. There is a risk the lymphatic system may be affected, leading to
lymphedema. Surgery for breast cancer, skin cancer, vulval cancer, cervical cancer, some other female
cancers, bladder cancer and penile cancer carry a significant risk of subsequent lymphedema.
•Radiation therapy (radiotherapy) - the use of radiation to destroy cancerous tissue can sometimes damage
nearby healthy tissue as well. When radiotherapy is used to destroy cancerous cells that are or may be
present in the lymph nodes or vessels, there is a risk of node/vessel damage, with subsequent damage to the
lymphatic system, resulting in lymphedema.
•Infections - severe cellulitis infection, a type of skin infection, may damage tissue around the lymph nodes or
vessels. This may lead to scarring, increasing the risk of lymphedema. Some parasite infections which occur
in tropical parts of the world can also increase the risk of lymphedema.
•Inflammatory conditions - some conditions which cause tissue to swell (become inflamed) may permanently
damage the lymphatic system, such as rheumatoid arthritis, dermatitis or eczema.
•Cardiovascular diseases - these are diseases that affect blood flow. Some patients with cardiovascular
diseases have a higher risk of developing lymphedema, such as those with DVT (deep vein thrombosis),
venous leg ulcers and varicose veins (very rare).
•Injury and trauma - more rarely, severe skin burns or anything which results in excessive scarring may raise
the risk of developing lymphedema.
Diagnosing lymphedema
Patients who undergo cancer treatment are commonly offered lymphedema assessment as part of their after-
care treatment program.
When diagnosing lymphedema the doctor may try to rule out other possible causes of swelling, including a
blood clot or an infection that does not involve the lymph nodes. If the patient is at risk of lymphedema, e.g.
recently had cancer surgery or treatment involving the lymph nodes, the doctor may diagnose lymphedema
based on the signs and symptoms.
If there isn't an obvious cause for the lymphedema, some imaging tests may be ordered to find out what is
causing the swelling, and other signs and symptoms. The following imaging techniques may be used to have a
better look at the lymphatic system:
•MRI (magnetic resonance imaging) scan - this device uses a magnetic field and radio waves to create
detailed 3-D images of the inside of the body. The doctor can get a better look at the limb tissues, and
possibly identify characteristics of lymphedema. MRI and some other scans are also useful in ruling out
lipedemia; another condition in which the limbs swell due to abnormal fat deposits.
•CT (computerized tomography) scan - this device employs tomography. Tomography is the process of
generating a two-dimensional image of a slice or section through a 3-dimensional object (a tomogram). The
medical device (the machine) is called a CTG scanner; it is a large machine and uses X-rays. This type of
scan can reveal areas in the lymphatic system that may be blocked.
•Doppler ultrasound scan - this is a variation of the conventional ultrasound. This type of scan may help
identify obstructions, if any are present.
•Lymphoscintigraphy - a radioactive dye is injected into the lymphatic system. This dye shows up in a
special scanner, which can follow the dye's movement through the lymphatic system and identify any
blockages.
Determining the extent and severity of the swelling:
•Water displacement method - the patient places the affected limb in water. The amount of water displaced
is measured. The doctor then knows what the volume of the limb is.
•Perometery - this is a device that uses infra-red light to measure the volume of the affected body part.
•Bioimpedance test - this test can determine how much fluid there is in tissue. Electrodes are placed in
different parts of the patient's body. The electrodes release a small electrical charge, which is measured using
a hand-held device. The procedure is painless.
What are the treatment options for lymphedema?
Lymphedema is incurable. However, there is treatment which can help reduce swelling and pain.
Complex Decongestive Therapy (CDT) - this is known as the recommended treatment for lymphedema and
has four components (listed after the end of this paragraph). It starts with an intensive therapy phase, during
which the patient receives daily treatment and training which may be six weeks long. This is followed by the
maintenance phase, when the patient is encouraged to take over their own care using techniques that have
been taught to them. This will be followed by regular six monthly follow-up meetings.
The four CDT components are:
•MLD (manual lymphatic drainage) - the lymphedema therapist uses special massage techniques to move
fluid into working lymph nodes, where they are drained. It is crucial that this is done by a fully trained
lymphedema therapist, and not just a regular masseur. The therapist needs a thorough knowledge of the
lymphatic system for this to work.
The lymphedema therapist also teaches several massage techniques that can be used during the maintenance
phase.
Patients who have a history of heart disease, deep vein thrombosis or kidney disease may not be suitable for
MLD.
•MLLB (multilayer lymphedema bandaging) - muscles surrounding lymph vessels and nodes move the fluid
through the lymphatic system. Unlike the circulation of blood there is no central pump (heart). The aim here
of bandages and compression garments is to support the muscles and encourage them to move fluid out of
the affected body part. MMLB is utilized after MLD to stop fluid from building up again in the limbs.
Patients will also be taught how to apply their own bandages and compression garments correctly so that
MLLB can continue during the maintenance period.
Compression garments may include long sleeves or stockings which compress to encourage the flow of the
lymph fluid out of the affected limb. Even when swelling is reduced, the doctor may recommend that the
patient continues wearing them to prevent recurrence of swelling. It is important to get garments that fit
properly.
•Remedial exercises - these are light exercise aimed at encouraging movement of the lymph fluid out of the
limb. The exercises involve moving the affected limb. It is important that the exercise not be strenuous or
tiring. They should focus on gentle muscle contractions. Each patient is given his/her own personalized
exercise plan. This is done with a fully qualified physical therapist (UK: physiotherapist).
•Skin care - good skin care reduces the risks of skin infections, such as cellulitis. Patients are taught how to
keep their skin clean, and also how to check for cuts, abrasions and signs of infection.
Surgery - surgery has historically had disappointing results, compared to non-surgical therapies for
lymphedema. However, a new surgical technique using liposuction has proved more successful. It removes
fat form the affected limb, resulting in less swelling. Patients have to wear a compression garment for at least
one year after the procedure is done.
NICE (National Institute for Clinical Excellence), the body that approves therapies for the National Health
Service (NHS), UK, says this procedure is acceptable in terms of clinical safety, but adds there is no
evidence about its long term effectiveness.
What are the possible complications of lymphedema?
Skin infections - repeated episodes of cellulitis are common in patients with lymphedema. Cellulitis is a
bacterial infection of the dermis - the deep layer of skin - as well as the subcutaneous tissues (fat and soft
tissue layer) that are under the skin. Cellulitis is treated with antibiotics. However, if the bacteria manage to
get into the bloodstream the patient has a higher risk of developing septicemia (sepsis). Patients who are
particularly vulnerable to repeated episodes of cellulitis may be given an emergency supply of antibiotics, to
be taken as soon as signs and symptoms appear.
Lymphangitis - this is an infection of the lymph vessels, usually caused by Streptococcus, a type of bacteria.
If left untreated it can spread to the skin, causing cellulitis, or into the bloodstream, causing septicemia
(sepsis).
Psychological effects - lymphedema can affect the way the patient looks, which in turn can have a
psychological impact, especially among patients who have been coping with the stresses of living with
cancer. Some patients with lymphedema have a higher risk of developing depression.
Patients who notice signs and symptoms of depression, such as feeling particularly down, or no longer
enjoying things in a way they used to, should tell their doctor immediately. Depression can usually be treated
effectively.
Prevention
Looking after your skin - the affected limb is more vulnerable to skin infections as the supply of lymphocytes
(which fight infection) is lower than it should be. If the patient takes measures to minimize the risk of cuts and
grazes to the skin, his/her risk of subsequent infections may be significantly reduced. The following measures
may help:
•After cancer treatment avoid heavy activity with that limb; rest it while recovering.
•Avoid sun beds, steam rooms and saunas
•Do not let the affected area be used for infections or blood pressure readings. If possible, avoid medical
procedures on the affected limb
•Do not take very hot baths or showers
•Do not wear tight fitting clothes
•Do not wear tight fitting jewelry
•Don't go barefoot outdoors
•Keep a watch for changes or breaks in your skin
•Keep your skin supple by moisturizing it every day (ask your doctor about this)
•Make sure your footwear fits properly
•The risk of cuts with an electric razor is much lower
•To prevent developing athlete's foot use an anti-fungal foot powder
•Use a thimble when you sew
•Use gloves when gardening
•Use nail clippers to keep your nails short, or see a chiropodist for foot and nail care
•When going outside in an area where they may be insects, use insect repellent
•When out in the sun use a high factor sun block
•When you have a cut, treat it straight away with an antiseptic cream. And keep the area clean
•Whenever you can, raise the affected limb above the level of your heart
Diet and bodyweight - the heavier a patient with lymphedema is the higher the strain is on the areas that are
swollen. A healthy diet, aiming for an ideal body weight, may help alleviate the signs and symptoms of
lymphedema. Some patients report that spicy foods make swellings worse.
==========================
LYMPHATIC SYSTEM: Regulator of lymph vessel growth uncovered
In addition to our network of blood vessels, humans have a network of vessels known as lymphatic vessels.
These vessels have a role in many processes in the body, including regulating fluid levels in tissues and
immune surveillance. Although dysfunction in the lymphatic system contributes to human diseases such as the
spread of cancer to other sites and lymphademas (localized fluid retention and tissue swelling), little is known
about the molecules that regulate the formation of new lymphatic vessels, a process known as
lymphangiogenesis. However, a team of researchers, led by Sophia Tsai and Ming-Jer Tsai, at Baylor
College of Medicine, Houston, has now identified a role for the gene regulatory protein COUP-TFII in
lymphangiogenesis in mouse embryonic development and tumor lymphangiogenesis in adult mice. The
authors therefore suggest that COUP-TFII might be an effective molecular target in pro-lymphangiogenic
treatment of lymphedemas or in antilymphangiogenic therapy targeting tumor spreading via the lymphatic
vessels.
TITLE: Direct transcriptional regulation of neuropilin-2 by COUP-TFII modulates multiple steps in murine
lymphatic vessel development
Source:
Karen Honey
Journal of Clinical Investigation
------------------------------
Ski for a Cure raises $40000 plus for cancer research - March 29, 2010 - Montreal Gazette by SUSAN
SCHWARTZ
Event in memory of Rob Lutterman
Shortly after Montrealer Rob Lutterman died of pancreatic cancer in 1999 at age 63, his family and a group
of friends created an annual ski event in his name to celebrate his passion for skiing and to raise money for
research into a cure for this deadly cancer: No effective treatment for cancer of the pancreas has yet been
found.
The Rob Lutterman Memorial Fund of the Cancer Research Society was created in his memory, with the
goal of promoting and funding pancreatic cancer research.
This year the 11th Annual Rob Lutterman Ski for a Cure day, held March 13 at Mont Sutton in the Eastern
Townships, raised more than $40,000 for the Cancer Research Society.
The second Cancer Research Society/Rob Lutterman Pancreatic Cancer Research Grant has been
awarded, to a team from McGill University. The three-year, $300,000 grant will go to Dr. Michel L.
Tremblay and his McGill University team, Dr. Bruno Gagnon and Dr. Neil McDonald. The first research
grant was awarded in 2007 to an Alberta researcher.
One reason that cancer of the pancreas has so poor a prognosis is that it is difficult to detect early, before it
has spread to other parts of the body. The metastatic process, as it is called, is especially aggressive in
pancreatic cancer.
Tremblay's team has collected a blood bank and urine samples from cancer patients to permit them to
identify early markers of pancreatic cancer, with a view toward improving survival.
The mission of the Canadian Cancer Research Society, a national not-for-profit organization founded in
1945, is to fund basic cancer research and to provide seed money for promising original ideas, projects and
researchers across Canada.
Tight 'n Bright, a club-themed event held March 12 at Club 3519 on St. Laurent Blvd., raised $6,000 for
the Lymphedema Association of Quebec. Guests were encouraged to wear - you guessed it - tight, bright,
wacky clothing.
Another goal of the event, in addition to fundraising, was to raise awareness about lymphedema - a
progressive disorder caused by damage to the body's lymphatic vessels; it can occur near the site where
lymph nodes have been damaged or removed. In severe cases, lymphedema causes unsightly swelling, most
often in limbs. It occurs most commonly as a result of cancer treatment; between 20 and 30 per cent of
people with breast cancer, for instance, are affected.
The Lymphedema Association of Quebec is a volunteer-run charity, based in Montreal; it relies on
donations to help people with lymphedema.
Visit www.infolympho.ca for more information.
Bengala, a charity dinner and party held Feb. 25 at the Parisian Laundry, raised $100,000 for Haitian relief.
About 180 people attended the dinner/auction portion, including Montreal mayor Gerald Tremblay and his
wife, Suzanne Tailleur; Lise Watier; Peter Svoboda, a former player with the Montreal Canadiens and
Quebec business leaders. About 400 people turned up later for a party which lasted into the wee hours.
The event was a fundraiser for MAÂT, an independent, not-for-profit organization founded in 2007 to
improve the quality of life and opportunities for young single women and their children. Main event partners
were Belvedere vodka, the Velvet Speakeasy, La Porte Rouge on Mount Royal Ave. E., Hype Energy
Drink and Boréale.MAÂT has been in Haiti for several months; following the Jan. 12 earthquake, the
kindergarten and training centre for young women it was funding became a shelter for orphaned children.
For more information, go to www.maatworld.org.
Brenda Fahey-DeJean, a Grade 6 teacher at Wilder Penfield Elementary School, says the best thing about
fundraising efforts for Haiti relief by the 72 Grade 6 students at the Dollard des Ormeaux school was that
they were a result of the kids' own interest and initiative. "In teaching, we do not always see the results of the
seeds we have planted," she wrote in an email. "The school community at Wilder has a culture of generosity
and has often supported various causes; sometimes we answer to a specific situation and sometimes it has
been an ongoing commitment."
The school, part of the Lester B. Pearson School Board, holds fundraising days called Wilder Days; this
time, the Grade 6 students chose four themes for days dedicated to raising money for Haiti relief: on Bubble
Gum Day, for instance, students brought 25 cents to be able to chew bubble gum in class. On Extreme Hair
Day, they paid 50 cents to curl, colour or otherwise decorate their hair for the day.
On Feb. 12, Wear Canada Day, held in honour of the opening of the Olympics, children were encouraged
to wear red and white or anything representing Canada and donate $1. For the fourth Wilder Day, Wear the
Colours of Haiti's Flag Day, students donated $2 apiece.
The children raised a total of $2,444.95. Much of that amount, $1,600, will be matched by a federal
government program that was in place until Feb. 12.
"We are very proud of the actions of our sixth graders," Fahey-DeJean wrote. "They saw a problem and
took an action. If we have young people who are paying attention to the plight of their community, both local
and global, and doing something about it, we feel that true education has taken place - and that bodes well
for the future."
By mid-March, English Montreal School Board schools and centres had raised close to $108,750 for Haiti
relief. The EMSB has decided not to publicize their totals individually, said EMSB Chairman Angela
Mancini, so as not to give the impression the schools were competing with each other.
Westmount High School Principal Michael Cristofaro said in a message to his students: "One of the greatest
acts of charity is to give without expectation, without promise of something in return and with the notion that
our giving will assist a human being less fortunate than ourselves. Perhaps some of you gave up a snack at
recess or a drink at the depanneur and instead gave that loonie or toonie to a greater good. Because of your
actions you have put rice into empty bowls, water in thirsty mouths, and blankets around shivering children."
Funds are being directed to the Canadian Red Cross Society, World Vision, UNICEF, Canada Care, New
Missions, Oxfam and the Centre canadien d'études et de coopération internationale.
Among many highlights of the EMSB efforts: Nesbitt Elementary School in Rosemount has decided to assist
families from Haiti who have settled in Montreal following the earthquake and need basic items to start a
new home. Each grade level, from kindergarten to Grade 6, will adopt one family each and determine their
needs.
Michelangelo Elementary School in Rivière-des-Prairies held a drum-a-thon: students participated in a
continuous drum circle through the school day. "Haiti took a beating and we are beating for Haiti," was the
slogan used.
Staff and students of Haitian background at John F. Kennedy High School in St. Michel manned a donation
table during two lunch periods and showed images of the devastation; money was also raised through
classroom collections and a dress-down day.
Also in St. Michel, Perspectives Alternative High School students collected funds the day after the
earthquake and walked them over to the Haitian Community Centre a few doors away.
Honoré-Mercier Elementary School in St. Léonard held a Pennies for Haiti program involving students in
Grades 1 through 6. Kindergarten students held a Hearts for Haiti campaign: they designed magnetic hearts
by colouring, gluing and painting them, then took them home to family or gave them to friends, with a letter
explaining the project.
applause@thegazette.canwest.com
======================
ASCO GU: Extensive Node Dissection Key for High-Risk Penile Cancer - MedPage Today - Monday,
March 8, 2010 - By Crystal Phend
SAN FRANCISCO -- Thorough lymph node dissection improves survival in high-risk penile cancer but is
vastly underused, researchers said.
For high-grade tumors, excision of at least eight lymph nodes was associated with 86.4% higher multivariate-
adjusted odds of survival at five years than less complete dissection (P=0.002), according to Viraj A.
Master, MD, PhD, of Emory University in Atlanta, and colleagues.
However, only 18.0% of men with high-risk penile cancer received extensive inguinal lymphadenectomy in
the analysis of a national cancer registry database.
In fact, nearly three-quarters got no lymph node dissection at all, the investigators reported here at the
Genitourinary Cancers Symposium.
No American physician groups have guidelines for treatment of this relatively rare cancer, but textbooks
generally agree with European guidelines recommending that high-risk patients get modified or radical
lymphadenectomy, Master noted.
Fear of complications appears to undermine this apparent standard of care, which has the potential to be
curative for those harboring microscopic disease in their nodes, commented Nicholas J. Vogelzang, MD,
medical director of the Developmental Therapeutics Committee of US Oncology, who was not involved in
the study.
"When you have a rare disease and a sexually-charged disease like this, patients often don't think logically
and doctors are not always forceful," he told MedPage Today.
Complications affect up to about half of patients, according to some clinical series. Lymphedema can be a
lifelong consequence, leading to skin infections or ulceration, a poor cosmetic appearance, and need for
compression stockings.
But the rationale for the procedure is clear, since penile cancer metastasizes in an orderly fashion through
embolization into the lymphatic system, starting with inguinal nodes and spreading outward, Master
explained.
His group analyzed the Surveillance, Epidemiology and End Results (SEER) database of men with a single
primary penile tumor of grade 3 or pT2-4 diagnosed from 1988 through 2005.
Among the 593 men in this group, adequate lymph node dissection defined by 8 or more nodes removed
was second only to tumor grade as a predictor of five-year survival.
For grade 3 tumors, excision of at least eight lymph nodes was associated with 66.3% five-year survival
compared with 49.2% with less complete dissection (P=0.0100 for trend).
For grade pT2-4 tumors, eight or more lymph node dissection improved five-year survival to 70.2%
compared with 53.6% for less extensive lymphadenectomy (P=0.004).
Independent predictors of receiving any lymph node dissection included:
•Age under 65 (P<0.001)
•Being widowed or separated (P=0.002)
•Higher T-stage tumor (P=0.004)
•Higher grade tumor (P=0.046 to P=0.031)
The researchers cautioned that their study was limited by the limitations of the SEER database, including
lack of data on comorbidities, vascular invasion, laterality of lymph nodes, and complications and morbidity
associated with extensive inguinal lymphadenectomy.
One solution to underutilization might be minimally invasive approaches, Master said.
His group has successfully attempted laparoscopic inguinal lymphadenectomy in a few dozen patients and
seen complications in only 19%, suggesting it is not only feasible, but may also lower morbidity, he said.
The researchers reported no conflicts of interest.
Vogelzang reported conflicts of interest with Allos Therapeutics, Ambit, Amgen, Bayer, Celgene,
Genentech, Keryx, Novartis, Onyx, Pfizer, Wilex, ArQule, Clinical Care Options, Cougar Biotechnology,
Imedex, Lippincott, Williams and Wilkins, Novartis, Wyeth, Argos Therapeutics, AstraZeneca, Endocyte,
GlaxoSmithKline, and Medarex.
Primary source: ASCO Genitourinary Cancers Symposium
Source reference:
Master VA, et al "Extensive inguinal lymphadenectomy in high-risk penile cancer and overall five-year
survival: A SEER study" ASCO GU 2010; Abstract 248.
Putting her best face forward, all the time - AsiaOne - Monday, March 8, 2010 - By Joan Chew
FOR cancer patients undergoing treatment, looking good is not always a priority.
But this is not the case for Ms Susan Ginsberg, 53, who was diagnosed with gynaecological cancer 12 years
ago.
An operation to remove her lymph nodes resulted in lymphedema, which caused her right leg to swell. Even
then, the nurses at KK Women's and Children's Hospital (KKH) rarely saw Ms Ginsberg without makeup
on.
"My husband brought me my lipstick at the hospital," she recounted with a laugh.
"I believe that when you look good, you feel good," she added.
This was also the message Ms Ginsberg shared with other patients at the Women's Cancer Support Group
at KKH: to keep up with their looks despite their illnesses.
Each time she visits them at the hospital, she takes along bottles of nail polish and gives them free manicures.
For patients undergoing chemotherapy, she shows them how to tie a scarf to conceal their thinning hair.
Ms Ginsberg said: "A little nail art will really perk them up, and they keep coming back for more."
Besides visiting patients in their wards and talking to their families, Ms Ginsberg helps to organise events and
bakes cakes to raise funds for the support group.
Ms Chew Sen Mei, a nurse clinician from KKH who nominated Ms Ginsberg for the award, said: "It is
Susan's commitment and dedication in volunteerism that motivates and inspires me to think positively while
dealing with cancer patients."
Ms Ginsberg has since recovered from her cancer, and remains actively involved in the hospital's support
group.
In brief: AHP revenues drop, Walgreens reorganizes - HME News - Friday, March 5, 2010
Lymphedema bill introduced
WASHINGTON - A bill that seeks to improve Medicare coverage for lymphedema diagnosis and
treatment was introduced Feb. 23 by Rep. Larry Kissell, D-N.C. The Lymphedema Diagnosis and Cost
Saving Act of 2010 would, among other things, establish therapist qualification requirements and require
Medicare to pay for compression garments, compression bandage systems and other devices used in the
treatment of lymphedema.
Yahoo! Alerts
House Calls with Dr. Peter Gott: Should reader seek a new physician? - The Scranton Times-Tribune Fri,
05 Mar 2010 -
Q: My doctor has told me that I have lymphedema and should take a water pill. When the 20 milligrams
wasn't sufficient, she put me on 40 milligrams. Because I wanted to know more about my condition to better
educate myself about things to do and not do, I looked online. It appeared to me that my doctor should be
looking for the cause of the swelling, not just treating it. So I pressed her into doing more. She ordered a CT
scan of my pelvis, a heart echo and a venous Doppler. My CT scan showed a lesion on my liver and no
abnormalities of the kidneys. The Doppler was negative, and I don't have the results of the echo, even
though it was done more than a month ago.
Because my doctor didn't discuss my lab work with me, I requested a copy from the front office of the
clinic. I then looked up each value online and became concerned over several of the numbers. My GFR was
71. My BUN and bili totals were high. When I asked her about these numbers, she said she wasn't
concerned. When I pointed out that the National Kidney Foundation says my GFR level indicates stage 2
kidney failure, she told me that she doesn't look at that number, and I shouldn't worry because I was
probably just dehydrated on the day of the blood drawing.
Should I be concerned about the results and continue to press my doctor into ordering more tests? Or
should I just take her word for it that those numbers don't really matter?
A: I have reduced the size of your letter owing to space restrictions but will attempt to cover all your
concerns. In my opinion, your physician is failing to provide adequate, timely medical advice. You should
discuss your concerns and disappointments regarding how she is handling your medical care. If she is
unwilling to change her habits, seek out a new primary-care physician who meets your standards.
As to your stomach pain, I am inclined to agree that it was a spontaneously resolved ulcer, but because of
the delay in getting proper testing, you may never know. If your physician was truly concerned about your
symptoms, she should have gotten into testing sooner.
Bilirubin is caused by the normal breakdown of red blood cells in the liver. You claim to have a lesion on
your liver and an elevated bilirubin, which may indicate liver damage. This is reason enough for referral to a
specialist or at least further testing to determine what the abnormality is.
In my opinion, you should not wait to see if your numbers resolve on their own, because both kidney and
liver damage can be extremely detrimental to health. The sooner a proper diagnosis and, if necessary,
appropriate treatment are received, the better the outcome is likely to be.
PETER GOTT, M.D., is a retired general internist and the author of "Dr. Gott's No Flour, No Sugar
Cookbook." Send questions to Dr. Gott, c/o United Media, 200 Madison Ave., 4th Floor, New York, NY
10016